So my long, long, long awaited appointment with my new endocrinologist took place today and it was very bizarre. I was there to settle the debate as to what type I am. He believes I'm Type 1 for many reasons. I did take the antibody GAD blood test on Dec. 21. But get this -- I'm in Calgary and the sample had to be sent to Edmonton and then to Montreal and apparently they get around to doing when they feel like it, which could take up to three months.
So he gave me a choice. Wait until the test results come back, and then if it's postive we know that I am. If it's negative, it doesn't necessarily mean that I'm not Type 1, so it would be inconclusive basically. Alternately I could stop taking my insulin completely for a week. If my sugars only rise a little bit, then I'm Type 2. If my sugars spike drastically and I have ketones, then he will put me on a better insulin. If my sugars spike drastically and I don't have ketones, he will still diagnose me as a Type 1 but put me on oral medications.
Now I'm really confused! Isn't the whole point of determining your Type to decide if you need insulin or oral medications? He said if I don't have ketones it means my pancreas is working to some degree and he would therefore put me on medications that would stimulate the remaining cells to "pick up the slack." I asked him if this would exhaust the remaining cells, he said no.
Has anyone else been diagnosed with Type 1.5 before their honeymoon ended? Were you given the same advice? What exactly makes you have ketones and how does this relate to what type you are and how well your pancreas functions? Any input is greatly appreciated.