Hi all. I'm here to see if I can get any wisdom from those of you who have had diabetes longer than me. I was diagnosed about 2 months ago and I've gathered from other posts that people here are all over the spectrum as far as how long they've had it. It may be helpful to a lot of others like myself who are just starting out to hear from some of you veterans out there. More specifically; Is there anything you wish you had or had known up front that would've helped you in the long haul either with management or with your health? Is there anything you wish you had done or started doing right away that would've helped your health and management or prevented any complications?
To be clear, this isn't the thread to say "I wish I had never gotten this" or bemoan your diabetic state. So please, keep things positive here! Hoping to find some great insight and learn from others!
Gos, this is great to read. Thank you. You know, being diabetic for 53 years this year now, I wrote my autobiography. However, back to the point of alcohol consumption, I am an experiment unto myslef. For example, wanting to have a "hot Saturday Afternoon Light Beer," I first tested my blood. It was a good range, don't remember exactly what the number was. Acceptable. Having quenched my desire, an hour later my bG rose to about 250. Hmm. Scary. My hypotheses resulted in my conclusion that one light, 8oz beer equals a peice of bread. Carb counts are not on beer packs or cans or bottles. However, when I drink, testing and insulin dosing is the norm as with daily food intake. Yah, I have always stayed away from sweet sugar doused alcohol drinks. Make me too sick.
I wrote a blog for the newly-diagnosed Type 1 adult that may be useful. I would say "test, test, test", technology will improve your life, find like-minded Type 1s, take the best care of yourself as possible, and live your life well. For example, I love to travel, so I have figured out how to travel the world with diabetes without a problem (maybe my travel tips should be my next blog?!).
That's a great blog post. I need to start reading some of those books I keep seeing mentioned all over the forum here. A travel tips blog post would be great! I love to travel even though I don't get the opportunity all that often. Knowing a few tips and tricks to make that as problem and worry free as possible would be wonderful. Keep it up so newly dx people like me can continue to learn from those who have been at this longer.
Although I was just dx'd a month ago..
I think I would add 'refuse to see someone who tells you that you are testing too much when you are testing 8 to 10 times a day.' LOL..
I absolutely agree. This is my body, my disease to manage, and I'll test whenever I feel like it, thank you very much! I have not had a problem at my Endo with the amount I test yet though and don't think I will. She is not diabetic, but, as she puts it, is obsessed with her BG levels. She tests herself and wears a CGM from time to time. I would really like to get a CGM at some point so I can see the fine, detailed changes in my levels. Currently, I test anywhere from 5-10 times a day depending on what I feel I need and so far it works for me.
Yes, blog about travel tips. I have had one such blog of mine on www.buckroth.wordpress.com. Please read. I should revise/update it. But my oh my, I sure have had my challenges with traveling! To the point of not liking to fly. My pump has been negatively interrupted causing me to use syringes, always a back up. And the stories of rude flight attendants! O M G!
I wish someone had really known about D. I have stated this before here, but the diagnosing doc told me I would not live to 50.... I did!
Really--two things--BG testing and understanding what that meant to my body and carb counting. Even with the antiquated insulin at the time It would have made my teens a lot easier....
OH, and an insuling pump when I was a kid.... Puberty was h*** A pump would have helped and let me be more normal.
Hey, best of everything, awg. Keep coming here and asking questions.
i wish i had had more time to be a little kid. i was diagnosed when i was 4 years old and i dont remember much being a non diabetic
I have been avoiding growing up for 44 years...so far so good.
Hi awg --
I was dx'ed at 23. Simply put, the best thing I did then from day one onwards (and continue to do now) was to take this malady seriously, and take my meds. I can count almost on one hand the number of times I have missed an injection over the 30 years I have been dealing with my T1. It has never been an option to not treat my diabetes. It just is what it is, and it ain't goin' away. Doesn't matter if I am mad at it or not, or if I am burned out on it or not -- I just have to take care of it. No choice in that matter.
I've never had perfect control, but I have pretty good control (current A1c was 6.7 a few weeks back). But, beign honest I regularly see sugars in the 300s and in the 30s, and I just figure that's life for me (I ride my mountain bike a LOT and for very long distances and this can wreak havoc on sugar control sometimes). I am fortunate that I have no complications (of course, your mileage may vary -- I am not condoning having such scattershot numbers -- it's just the pony that I ride).
Good luck out there.