Incidence/prevalence of Type 1 in the US - looking for reliable numbers
I've done some research on the epidemiology of Type 1 in the US. I can't seem to find a reliable number that reflects either the entire population of Type 1s (children and adults) or, especially , those who live with Type 1 who are under the age of 19. The CDC page (link below) says that 13,000 young people are diagnosed every year in the US. Simple math (too simple, I know, but follow the thinking) says that 13,000 x 19 = 247,000. On the same page it says that the incidence for young people is 1.7 per thousand. The US Census says that 28% of the US population is under the age of 18 - 85 million. 85,000,000 x .0017 = 144,500. (close to the 151,000 noted on the same page).
http://www.cdc.gov/diabetes/projects/cda2.htm
The JDRF page says that 15,000 young people and 15,000 adults are diagnosed with Type 1 each year = 30,000 total. The average lifespan of someone who lives with Type 1 is 68 years (simple math - I know too simple...but) says that there should be approximately 2 million people living with Type 1 in the US. That number seems high but the JDRF says it is as high as 3 million.
http://www.jdrf.org/index.cfm?page_id=102585
Interested in anyone's take or help - I'm not a mathematician or statistitian.
Replies to This Discussion
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Permalink Reply by rick phillips on -
here is what i found for the adult US population:
Diabetes is a debilitating and costly chronic disease [1]. On
an age-adjusted basis, those with diabetes are twice as
likely to die prematurely as those without the disease [1].
For the estimated 23.6 million individuals (i.e., 10.7% of
the adult population) with diabetes in the United States, the
annual direct and indirect medical costs in managing the
disease are estimated at $174 million [1]. Locally, data
from the Centers for Disease Control and Prevention estimates
that over 9% of the adult population in the Brazos
Valley region has diabetes [2, 3].here is the source.
Associations Between Health Care Factors and Self-Reported
Health Status Among Individuals with Diabetes:
Results from a Community AssessmentJustin B. Dickerson • Matthew L. Smith •
SangNam Ahn • Marcia G. OryPublished online: 24 September 2010
Springer Science+Business Media, LLC 2010
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Permalink Reply by Melitta on
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But this information provided does not differentiate between Type 1 and Type 2. The OP is looking for prevalence/incidence of Type 1.
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Permalink Reply by rick phillips on
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ok well here is the answer but not the percentage
About 215,000 young people under 20 years of age have diabetes. Most of them have type 1 diabetes. As obesity rates in children continue to soar, type 2 diabetes, a disease that used to be seen primarily in adults over age 45, is becoming more common in young people. Children with diabetes and their families face unique challenges when dealing with diabetes.
National Diabetes Education Program
CDC - Centers for Disease Control and Prevention NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases
Search NDEP siteNDEP is a partnership of the National Institutes of Health, the Centers for Disease Control and Prevention, and more than 200 public and private organizations.
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Permalink Reply by rick phillips on
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and
Diagnosed Diabetes among People Younger than 20 Years of Age, United States, 2010
About 215,000 people younger than 20 years have diabetes—type 1 or type 2. This represents 0.26 percent of all people in this age group. Estimates of undiagnosed diabetes are unavailable for this age group.
National Diabetes Statistics, 2011
http://diabetes.niddk.nih.gov/dm/pubs/statistics/index.aspx#ddY20
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Permalink Reply by type1moms on -
Thank you for your efforts. Your numbers are the closest to the numbers I've found. If correct, the incidence is actually.0026. My research shows that this number or, more specifically,.00249 is the incidence in the entire population - adults and children - for a total of 770,000. Almost every diabetic I meet disagrees with this number but has no research to back it up. If the .26 is correct, and there would be approximately 2 million children and adolescents in the US which would translate to an unrealistic number within a total population of 310 million. To my mind, the 1.7/1000 (CDC) makes the most sense because it reflects the incidence that I see with children in schools in my area - approximately 2/1200. However, there is a high school that reports a .01 incidence and I am absolutetly sure this number is correct. All this said, I suspect the pharmaceutical companies and the insurance companies are the only reliable source since they either get paid or pay for the care of those who live with Type 1 - and they aren't giving up the numbers.
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Permalink Reply by rick phillips on
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well I am familiar with a HS of 1600 that had 6, but two of those were twins. Another HS I worked with 1700 in an impoverished claimed 2. The later was wrong though I have no idea were actually there and the former was abnormally high due to the twins and a growing population. I think it important to remember I went nearly 7 months in HS before i told anyone and when I did , they found out. So variance and undercover diagnosis is to be expected I suppose.
Rick
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Permalink Reply by rick phillips on
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I am sorry I did not find the 19 and young number or percentage. It is like a darn Easter egg hunt. LOL
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