This is my first time posting, love the site so far, great community. But I have a huge problem, and I wanted to see if anyone had feedback for me.
I was diagnosed in October 2007 at age 20. My primary care doc thought I was too old for Type 1 (yeah, pretty lame) so diagnosed me as Type 2 and started me on Metformin. At diagnosis my fasting sugar was 268. Within a week, my blood sugar was over 500 and I was sent to the ER, where I got my 1st A1c-- 14.1.
Needless to say, I was put on insulin and started seeing an endo, who diagnosed me as Type 1. Everything has been fine since then, by 3 months into treatment my A1C was 5.7 and is now 5.9 (never been over 6.0 since insulin). I hadn't had many problems with lows at all, either, and have considered myself in the honeymoon phase. I have been taking a pretty steady dosage of 20u lantus and 1u novolog/ 15 g carbs, though the lantus dose has varies a few units in either direction over the past couple of years.
Two weeks ago, i woke up in the middle of the night feeling worse than ever in my life, with my sugar being 52. I got it back up over 100 after about 30 minutes, but over the past two weeks I've had to keep taking less and less insulin! That night I had low blood sugar, my lantus dose was 17u. Over the past two weeks it has gone down more and more, last night i only took 11u and I haven't taken any Novolog since last thursday. I have been eating between 200 and 250 grams of carbs a day, and my blood sugar before meals has not been over 95. It is usually between 70 and 85, and i have had under 60 twice.
I made an emergency appointment with my endo today, and she said only one other paitient in her career has exhibited this before me. That patient was able to switch from insulin to pills. I don't understand how this can be! Has anyone had a similar experience? I have read about 1.5 diabetes, or LADA, but I don't seem to fit in with what I've read.
So sorry for the long post. Thanks for any insight you guys might have.