Insulin:Carb all over the place; pump sucks; general rant

Got some good advice a while back on why I need almost double the insulin when I work late and have to eat dinner at my desk. Last night was one of those nights. Except this time, instead of being high even with nearly double the insulin, I dropped to 50. Pretty sick and tired of this crap. How am I supposed to know if my body is going to demand 1:10 or 1:6? Should I just 'play it safe' and be very high afterwards? Should I play the odds that I will need the 1:6 9 times out of 10, and accept that on that that 10th time I will go very low?

I hated MDI b/c my levels were pretty crazy. But honestly, they are crazy on the pump too. I no longer believe there is a way to stay even. I am going to be up and down all the time no matter what I do. My insulin:carb seems to vary on a whim.

Let me also slam the pump for other reasons. They tell you the pump site won't bother you. Utter bull. Half the time it gets irritated for various reasons, including accidentally yanking on the tubing, you banging it, other people banging it, etc. They tell you it won't interfere with your sleep. Well, when the site is irritated, I can't sleep on that side. The tubing gets in the way as I toss and turn, etc. When the site is irritated, taking a bolus is painful. The pump is also annoying to carry around in my pocket - I think the bulge looks terrible. I think it looks worse clipped to my belt, and I don't always wear a belt anyway. I don't want to strap it to my leg b/c then I can't easily access it. In short, the pump is just a gimmick. I hate it. I have nothing nice to say about it other than when necessary, I am able to skip a meal. That is the ONE thing it's good for.

I am told I should exercise more, but that's going to mean even more wacky insulin:carb swings. No thanks.

I want one day off. I am raging right now. So mad at diabetes and my useless doctors. I give so much time and effort to this disease, and I feel it gets me no where. Maybe I should stop giving a s***.

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I'll add to that. A very good point I've come across that Im starting to run into is scar tissue. I've been pumping for about 7 years now and have some areas already scarred. To think this is supposed to last me another 40-50 years??? Yeah right. Thats even when I was changing the site every 3 days. Their answer, change the infusion set type. I did, its starting to happen again. F#$@ lame.

Im really debating going back to MDI, Im just real used to being able to do extended (square) boluses and frankly am dependant on them. I really hate that my life is just about big pharma / med companies making money. Commercialism 1, human interest 0.
Everybody reacts differently as far as that goes, just like everything else. I have been pumping for 16 1/2 years and only have one area with scar tissue that I can't put a site in and that's near a surgical scar, not caused by my pump infusion sites.

I had to go back to MDI while I argued with my insurance company about replacing a defunct pump. It was 7 years old when it died, but since they hadn't paid for it because we had different insurance when I got it, they were telling me they didn't need to pay to replace it. It took 3 months to make them understand it didn't matter who paid for the pump I was replacing. I just needed a pump. I told them to just pretend it is my first pump if that made it easier. Stupid, stupid, stupid. Anyway, going back to MDI was the worst 3 months of my diabetes life since going on the pump originally even though Lantus had been invented in the meantime. My current pump is 5 years old so I am thinking I'd better replace it before it dies so I won't have to deal with MDI again during the fight for coverage.
I don't have any noticeable scar tissue after 12 years on the pump. This is definitely a YMMV situation!
I dont doubt that at all. I've always seemed to reject foreign objects (piercings, cannulas, etc) in my body. The 6mm have always been more comfortable for me which may give me an option of going to 9mm to pummel my way through the bad tissue, but still.

Also, I eat low carb al a Dr. Bernstein and he is big into MDI. So, I'm thinking it wouldnt be quite as bad. Its been so long though, that I dont even remember what being on MDIs was like other than drawing insulin and shooting it.
All that money they are making off of us allows them to make new things to save other people's lives who will pay them and allow them to make more things for other people and so on.

Sure it is about the money but money is what allows us all to have pumps and CGM systems, and insulin, and test strips, and so forth.
Actually, I disagree. The CGMS and Pump, maybe. But, insulin was discovered in the early part of last century research driven by a desire to understand the pancreas and save lives. Same thing for BG meters - medical necessity. Originally developed in the 1960s. The BG meters were made to identify drunks from PWD in the ER. Labs closed at 5pm and thus in the evenings there was no way to test PWD for DKA or whatnot.
Well, my pump, the MM, certainly allows me to set temporary basals with a time limit. And different basals for different times of the day. And it's not arduous -- I set the number of carbs I'm going to eat, and then the pump calculates how much insulin I need, and it's usually spot-on. Occasionally I have to correct later.
It sounds like the Omnipod is not all it's cracked up to be.
Hi Jojojovich,
I've been on the pod for 3 months and I have different correction ratios for several different times a day, don't understand why they told you you can't unless I'm misunderstanding!?
It could well be a misunderstand on my part! Though I .... thought (ahem) that I had clarified that with the instructor. I won't swear to it though because my PDM was recently replaced and as I re-set-up all of that, I thought I noticed an ability to, indeed, set up different correction ratios for different times of the day. And hm, just checking it now, I see you can. Sorry for my misinformation!!

Sorry, Insulet!!

Having just started using the pump in September, though, one thing I have noticed, is how various things (carb ratios, correction ratios, what time I need to start the dawn basal increase, what various basals are, etc)... seem to change almost continually. Which kind of highlights Grego's initial point. Just that it's not easy. It's continual adjustment, and to me, almost requiring a cgm.

I'm currently in need of just that, a correction ratio adjustment, I believe. At least for now. ;) (I keep going a bit low)
hi, im new to this site and i see this is an old post but im sure youve felt like this more than once! i hear ya! diabetes sucks! theres a new group called diabetes burnout.... a girl made the group and i looked at it cause my old psychologist at joslin diabetes wrote a book named diabetes burnout... seems she mentioned his book. its a great read. i am still in contact with him and i told him today that his book was mentioned on the site. he thought that was pretty cool and hes a real cool guy. i suggest you read it.

sometimes i just want to say f#@% this!
Only way we are able to figure out the way a bolus effects her is to take a blood sugar two hours after eating. We pretty much know by know how different food is going to effect her but only in general. At the two hour mark we assess insulin on board and her current blood sugar and go from there. Her blood sugar has to be a certain number in order to be normal at the 3.5 hour mark. We either correct or fill in with carbs, if necessary. Adults can limit carbs to a great extent. Maybe I would try that at work, just chicken, salad, maybe 40 grams tops per meal. It is a roller coaster for sure and one you can't get off. Praying Smartinsulin or something better gets released asap. I know better therapies will be available in time. I am shocked there have not been more improvements in insulins, smaller pumps in the past ten years. Our teen clips her pump inside her jeans, very thin, you cannot see a lump. Of course, she has to fish the pump out when needed...... Animas Ping has a remote whereby you could hide the pump and use the remote. Maybe that would be a better fit. Would experiment with different sets because you should not have to suffer with sites constantly bothering your skin. Your time and effort will pay off in the long run; crappy disease; very time consuming and difficult to live with; you are entitled to vent. Hope you feel better soon
For most of my youth I was on 2 shots of Humulin N and glucose meters weren't available yet somehow I did OK. I really had no idea you could even manage diabetes. In fact I was clueless about how much any carb would impact my sugar. I looked into the pump a decade ago and thought to myself Nah.. I'll stick with the shots. I have no regrets. I've been saying for years no matter how you approach managing diabetes you have to deal with erratic sugar swings which in itself is extremely destructive to one's well being. Until they figure out how to stop that we all will continue to suffer. To me having diabetes is like having to go get chemo daily.




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