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Permalink Reply by acidrock23 on May 24, 2011 at 8:31pm

I've taken it for a while and don't even notice it. A non-D guy I worked with took it and complained about it quite a bit. I wasn't quite sure what his big deal was.

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Permalink Reply by AZsunbiker on May 25, 2011 at 6:55am

Good to know that for some people it doesn't have any negative side effects - thanks.

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Permalink Reply by MossDog on May 25, 2011 at 9:22am

I second acidrock. I had the cough for about a week and then it went away.

If you get the cough there are other options that still protect the kidneys. The drug named Losartan is in a similar class of meds as lisinopril and will give you the kidney protection without the cough. Losartan also just recently went generic so the cost shouldn't be too crazy either. There are other meds in the Losartan class but none of them are generic.

In the situation of high microalbumin I would certainly at least try it to see if you can tolerate it. If it drops your blood pressure too low then oh well at least you tried. For the most part you should feel the drops in BP when you are standing up so be a little careful when you first start taking it. My experience with Lisinopril is in the lower doses it did not have much of an effect on my BP but I know many others who have stories of how their BP dropped even on the absolute lowest dose.

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Permalink Reply by BMD on May 24, 2011 at 8:40pm

I take Lisinopril. It's an ACE inhibitor, a blood pressure med. Although I do not have high BP, I am Rx Lisinopril to lower the BP of my kidneys. That's the rationale anyway.

It is supposed to be a forever thing, but some choose to go off of it if their BP gets too low or if they do not tolerate the med well.

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Permalink Reply by AZsunbiker on May 25, 2011 at 6:57am

Thanks - BMD. How long have you been on it? It seems like some endos recommend it for most T1 as a forever med - not sure yet if that's my case.

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Permalink Reply by BMD on May 25, 2011 at 7:06am

I've been on Lisinopril for four years. I am used to it, so I don't really notice any side effects. I tend to feel more out of sorts if I forget to take it. That being said, I am considering getting off of it since I don't like the idea of my liver processing another medication, one that I may not really need.

I used to be very good about following the recommendations of my doctors, but I am very cynical these days and question everything. I just don't fully trust doctors like I did once upon a time.

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Permalink Reply by AZsunbiker on May 25, 2011 at 7:12am

Hear, hear about doctors -- even the most well-intentioned and thoughtful can still make decisions that don't work for your body. When I first was diagnosed I just wanted to be told: do this, do that. Now, I'm being more skeptical as they add more meds and my body gets more normal. If you decide to go off it, I'd be interested in hearing if/how things change for you. Really appreciate the perspective!

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Permalink Reply by Cosumne Jan on May 24, 2011 at 8:57pm

I was given Lisinopril when first diagnosed because "all diabetics need to take it." It bothered me a lot, I could barely function because my BP was way too low (70/45).

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Permalink Reply by Judith on May 24, 2011 at 9:05pm

I'm new on lisinopril and dubious. My BP at home is fine, but I have severe white coat hypertension. And my dentist, reasonably, won't even replace a lost filling until I can control my doc/dentist office spikes. So I'm trying it. Just today got a rash. Don't know how this will work, but I understand sometimes it can help a lot. My lower BP #, diastolic, I think, is consistently between 70 & 78. So one worries about too low diastolic and too high systolic.

Just need to moitor what your very own personal body is doing and relay it to your Doc...

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Permalink Reply by AZsunbiker on May 25, 2011 at 7:00am

Judith - how do you test your blood pressure at home to know what range you're in? and how often are you testing? Going low is my big worry since my BP now is totally fine, but I'm really active and don't want to get low while exercising. Seems like an insulin and BP low are a bad combo. thanks for the advice and perspective on your situation!

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Permalink Reply by mhynes on May 25, 2011 at 11:18am

I have been on lisinopril since 2000. I had normal to low BP (110/70) to start with and I am on a low dose. I have not noticed any drops in BP. No real side effects to mention. I recently came off it since I am trying to get pregnant and it is not allowed during pregnancy.

I was told it was a protective for my kidneys.

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Permalink Reply by Judith on May 26, 2011 at 9:19pm

AZ---My insurance discounted my purchase of a home BP meter. We bought my mom one at Walgreen's. And I know you can test at some stores. My HMO also has nurses' stations where one can have a free BP test. I am going to try the latter since my BP at home is okay, but I have very severe white coat hypertension. Maybe if I go once a week or so I can get over that??! Worth a try!

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