Replies to This Discussion

Permalink Reply by Zoe on July 20, 2012 at 9:08am

First of all, a misconception that many of us in our society have, fostered of course, by the medical profession: You are not doing this for your nurse practitioner; you are doing it for you. So it really doesn't matter what he/she thinks.You are not "non-compliant" (I hate that term!) You do not deserve a scolding because you are not a "bad little girl". You are an adult who has been struggling, not very successfully with a chronic illness. If you change the way you look at it, it will make all the difference in the world!

So with that paradigm switch, go into the office, not like a kid being sent to the principal, but like a consumer who wants assistance from the medical provider they (or their insurance) is paying for their expertise. Talk about I:C ratios, talk about basal rates, talk about diet (though don't listen too much if she insists you eat tons of carbs); talk about ISF.

Then re-read your copy of Using Insulin by John Walsh or buy one if you don't have one or Think Like a Pancreas by Gary Scheiner. Then come on here and ask questions and work on starting somewhere anywhere, perhaps with basal rates and slowly but surely get into a better management program. Then come back on here down the road and brag!

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Permalink Reply by Lissaynch on July 20, 2012 at 9:20am

THANKS! I actually just had a phone conversation with the nurse and she was amazing. She came right out and told me there would be no scolding; we would look at what we can do to help me manage better from here forward. I'm so glad I talked to her so I'm not going in nervous. But you're right... it's all that attitude that we're supposed to go in and please the doctors. I'm lucky I actually do have a good endo who is very non-judgmental; I'm not sure why I've been avoiding him but I'm starting fresh today. :-)

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Permalink Reply by Zoe on July 20, 2012 at 10:12am

Excellent! It's great you have an NP and endo who are not into shaming and will work with you towards meeting your goals...one step at a time. Whatever your A1C is (13.8?) your goal is to get it under 13, then under 12, etc. But more important than the numbers your goal is to develop a management plan that feels sustainable to you and one day at a time to start new habits. Like you said, starting today! Bring your logs, bring your questions and don't hesitate to ask questions even if they are things you "think you should already know".

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Permalink Reply by Kathy on July 23, 2012 at 2:04pm

Excellent. I love the "consumer" attitude.

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Permalink Reply by Shawnmarie on July 20, 2012 at 9:09am

Good luck! You're the only boss of you, so go easy on yourself. Wish I had some words of wisdom, but you've been at this a lot longer than I have so I will just send many warm, positive thoughts your way.

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Permalink Reply by Lissaynch on July 20, 2012 at 9:21am

Thanks so much! All positive thoughts are gladly accepted and much appreciated. :-)

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Permalink Reply by MyBustedPancreas on July 20, 2012 at 10:43am

I hate the term "non compliant." Living with T1D is HARD and it's impossible for anyone who doesn't have it what am overwhelming job it can be. In addition to that, we are subject to so much judgment and misconceptions, just compounding the difficulty. Something tells me that you don't even need an appointment with a medical professional to get back to doing what you know you need to do to care for yourself. What is one thing about your current management that you want/need to change?

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Permalink Reply by Cinderfella on July 20, 2012 at 11:10am

Your children need you and want you in their lives for a long time. They are the prize in this. Being there and being healthy for them (and yourself) should be the priority. Best of luck with it all.

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Permalink Reply by Doug H on July 20, 2012 at 11:26am

Give yourself a break. We did not choose to be diabetic. Our job is to figure out how to enjoy our lives to the max while dealing with a chronic illness which is always lurking. The beauty is that you can press restart here and step by step figure out how to get back on track. Treat your appt as a restart opportunity. Every now and then I try to take the perspective of what would I tell me kids on how to handle the situation ... And then apply that approach to myself.

Now stop jerking around and get to that appointment!

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Permalink Reply by brokenpole on July 20, 2012 at 11:40am

I only have one thing to say to you Melissa. YOU CAN DO IT.

Now go to that appoitnment and hold your head up. The past is the past let it go and work towards the future. You have made the first big step...admitting you are not taking care of yourself and getting the medical help.

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Permalink Reply by BackIrish on July 20, 2012 at 2:23pm

Sending you lots of empathy! I think I struggle more with my Diabetes now than I did when first diagnosed 19 years ago.I have been non compliant T1 for years, until about a month ago. Keep taking it one day at a time, don't beat yourself up for not being "perfect" and keep logging onto this amazing site so you don't feel alone in your struggle. Go, Melissa!

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Permalink Reply by Aimee on July 20, 2012 at 3:05pm

The past is the past. You are doing a great thing by starting over and trying to change your ways. Don't feel guilty, reward yourself for your great new behaviors. For me, it is important to have regular appointments and A1C tests. This keeps me accountable. If it weren't for those regular A1C tests, I am afraid I would not have as good control as I do now cause who would know?! I know, bad thinking! But, you may want to make a promise to yourself to schedule appointments so you are held accountable, this may help you stay on track. I hate going to the doctor, so I make myself schedule the next appt before leaving the office. Just a thought. :) Best of luck, you can do this!!

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