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Permalink Reply by LaGuitariste on May 5, 2012 at 5:51pm

Despite your long hospital stay, an A1C of 11.3 is bad but not horrible for a newly diagnosed T1 (average of 15.4 mmol/l or 277 mg/dl.)

No doubt you are still in the honeymoon phase and your pancreas is cranking out insulin in sporadic spurts...? (Hence the weird low?) Or maybe the hospital told you wrong and you fainted due to a high, but either the EMT's or the ER over-corrected you? It's quite odd and a mystery. If you're truly wanting to get to the bottom of this, you have every right to see the records from the EMT's and the hospital, including the ER. You can just call and schedule a time to review your records -- they are YOUR records, they can't refuse you, but they can charge you a reasonable fee per page if you want to make any copies to keep at home or give to a new doctor.

As you probably already realize from your reading, most T1's who end up in the hospital like that at diagnosis have DKA and are really high, e.g. over 27.7 mmol/l (500 mg/dl) or even over 38.8 mmol/l (700 mg/dl) or (eeeeek) more!!!

I'm very sorry that you had to join the club, but I'm glad that you found TuD. There are lots of really kind-hearted folks here who will help you get on the right track.

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Permalink Reply by KatieT1 on May 5, 2012 at 6:06pm

Actually, DKA can occur with a blood sugar of 240 or over. as type 1's we're taught to test for ketones for anything above 240, at least I was. An A1C of 11.3 is certainly high enough for DKA. For type 1's, anything above 240 without insulin on board can be big trouble and lead to an ER. It's not only insulin our bodies don't make, but a number of other hormones too, alpha cells, etc..

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