Hi! I apologize in advance for the length of this post, but you guys seem like a gold mine of information and experience. I've already learned a lot reading through the forum and researching. I feel compelled to lay it all out here in the hope that you all will be kind enough to answer some of my questions, even if they seem silly :-)
I'm a 33 year old woman dx'ed 2 weeks ago. I'd been in a bad state for months. I was exhausted, achy, loopy, cranky, with loads of fluid in/out, ravenous hunger, boils, abscesses, colds/flus, blurry vision, headaches, high body heat, super dry skin, and recently, yeast that won't stay gone. I'd also lost about 20lbs while eating massive amounts of food. I thought that part was a miracle, ha!
Q- Are all these symptoms common? Will they all go away when my bs is more normal? Any tricks on dealing with these issues?
I finally saw my GP, but he wasn't really concerned and didn't get any tests done. Luckily, I had an obgyn appt soon after, and she agreed to do blood work. I was surprised to get a call from her early the next am. She told me I had severe diabetes and that she'd made an urgent appt with an endo for me that day. She's awesome! My blood sugar was about 500, and my A1c was 11.8.
Q- How dangerous was it to go around like this? What would've happened if I hadn't gone to that dr? Do you think it's likely my body was damaged from having my bs so high for possibly months?
At my appt with the endo, I was given a novolog pen, 70/30 mix, and a glucose monitoring kit. My instructions were to test and inject 10 units 3x/day before meals with 60-85 carbs each. My bs stayed in the 400's.
My next appt a few days later covered more information and answered some questions, and I was put on a schedule to slowly increase my dosage to bring my bs down. Blood was taken for a lipid panel, metabolic panel, and antibodies.
Over the next 10 days, my bs was between 250-400 while I ratcheted up my insulin to 20 units 3x/day. My thirst is less, but I still feel like a mummy... dried up! My infections are gone, but I must take diflucan every 4 days to keep yeast away. I swelled about 10lbs so far and have a constant headache. I still get loopy, hungry, and super tired. Exercise (even heavy housework) makes me feel AWFUL.
Q- Is it normal to still have these symptoms? Will this all stop once my bs are under a certain #? If so, at about what #? What's causing the headache? Will anything make it go away?
My last (3rd) appt was yesterday. My endo dx'ed me as having type 1 due to the presence of GAD antibodies (8.1 U/mL) and the way I presented. I'm still surprised that it's not type 2, I didn't even know that adults can just suddenly have type1 D before all this! I was negative for the other antibodies. I switched to 4 meals/day (and 20 units novolog mix before ea meal) with a goal of 50 carbs/meal. Told to only test before each meal.
Q- Is there any way it's not type 1? Are there any other tests that could give more insight, or a possible change in dx? Is there anything I should ask my dr to change his instructions on? Is there anything else I can do right now to improve my progress?
I'm concerned about my other test results. Dr. says it's likely all from the high bs, but I can't find much info on internet searches.
My microalbumin was high (28 ug/mL, normal 0-17), and the microalb/creatine ratio followed suit (69.5 mg/g). I was told to use less nsaids (so hard w a bad back!) and go light on meat consumption.
Q- How bad is that? Is it likely that my kidneys will go back to 100% with better bs? How do you know when there's permanent damage? Is high protein from veg, soy, dairy, and grains ok? How much will eating meat affect me? Is there anything else I can do to be kind to my kidneys?
My triglycerides are crazy high at 959 (0-149 normal), cholesterol is 357 (100-199 norm), hdl is low at 30 (39+ norm). I was instructed to eat low fat, retest later.
Q- Anyone else ever have numbers like that? Did they go to normal quickly once your bs was ok? Am I at risk for any extra problems right now, assuming those levels haven't been a long term thing? What do I eat??? Does having four meals consisting of 400-500 calories, 50g of carbs, low in fat, and no/low meat seem ideal for me? Any suggestions?
Lastly, I want to lose weight. I've been overweight for over a year now, and really want to get back in shape. I spent the 5 months after the 'big gain' eating clean (veggies, lean meats, good fats, high fiber carbs, some fruit, etc), lowish calories (1400-1800/day), and doing 4 hrs weight training, 5+ hrs cardio per week. I've been heavy before, but was always able to get back to normal this way. After 5 mo, I did look a little better, but didn't even drop 1 size. Scale showed only 3lb lost. I got frustrated, the mega hunger had started, and I went back to poor habits. That's when I started losing weight due to the D. Not a magical metabolism fairy, much to my disappointment ;-)
Q- Was my inability to lose weight related to D? If not, any theories? Any advice on effective weight loss strategy? Is there anything different I should do because of the D? Is there anything that will lessen the hunger? Are there any prescriptions or supplements that would help me?
If you made it this far, THANK YOU! I appreciate any and all guidance you feel like sharing.
Thank you! I was told today by the PA not to micromanage... I'm still hurt by that, lol. But I feel like this is my body, and if I want to micromanage it, I will. I want to live a long time.
I hear you, I'm definitely OCDiabetic. I do have days when I need to relax a bit though to avoid burnout - the issue for me is I stress about relaxing LOL
You'll find the happy medium for YOU with time. When I went on a cruise in December, I ate around 90 carbs a day - I usually eat around 30. On one hand I was horrified that I let myself do that, on the other hand I sure did enjoy it, and I know intellectually that 90g for 10 days is still way less than 'normal' people eat, and won't hurt me a bit. I plan to do the same on this year's cruise, and maybe once a month in between ;)
When I visit the endo, I always go to the awesome bakery across the street and get a fantabulous chocolate croissant. No guilt.
Uh oh, we sound a lot alike.
I *think* I've gotten over what she said to me.. but it hit me enough the wrong way that I may just stick with the family physicians group because they are nice and appreciate me trying harder.. I think they typically deal with people who are not as eager to learn or as dedicated..
I seem to be happy with around 75 to 100g of carbs a day right now. But I was one of those 'normal' people who would eat... gigantic candy bars.. huge bowls of ice cream... all sorts of carby wonderful goodness... Hell, maybe this IS all my fault and I murdered my pancreas.
Hi palominovet. No you didn't murder your pancreas, autoimmunity kicked in. Diabetes changes constantly on top of each of us being individuals. Do what works for you right now; you will change as necessary. (Just my thought: don't actually burn any bridges with your endo, sometime you might need actually need her.)
I know, I know. Would just love to know what triggered the immune response. I feel like it probably was a virus in my case.
And you're right not to burn bridges; the PA is the one that made the micromanaging comment. She had been nice the day before. The endo himself was very nice, period, but I won't be seeing him except once every three months. I will mostly be seeing and talking with the PA and the PA's nurse.
Hi again, palominovet. In time, once every three months will be enough between appointments to see your endo because you're doing so well! Somewhere you said something on the order of liking to have books and info, and that was certainly true for me. There are so many more good books available now than almost 20 years ago. I took a lot of books out of the library, and the library still has all those out-of-date books! (I now like the revised "Think Like a Pancreas" the best of all.) You'll find yourself able to write your own book one of these days! If you like poetry, the TuD store has its own book, "No-Sugar Added Poetry" for sale. Cheers!
I should finish reading Think Like A Pancreas. I just received Using Insulin yesterday and have been addicted. I love all the charts and graphs and everything it has.
Didn't know about No-Sugar Added Poetry, it sounds fun :)
Nah, you can't murder your pancreas, which I'm sure you know ;) Boy, I used to be able to eat a sleeve or oreos, a bunch of pizza, a good bowl of pasta... *sigh*. What triggered mine was chemo with a massive dose of steroids on top. Sometimes there's just no way to know, there's more we don't know about D than we do. The unknown factor for me is D gremlins LOL
I do understand the need to KNOW though - frustrating.
LOL. I love blaming it on the D gremlins :)
What I wouldn't give for one of those giant reese's cups right now...
It's only 21 carbs... :)
And... I do currently have quite a supply of dark chocolate goodness in my cabinet. I eat some every day. It satisfies my NEED for chocolate (yes, it is a need, it is not a want! LOL)... at only 3g carbs per square. :)
The best I've found is Chocolove 70% - 2g a small square, and a really GOOD dark choc.
check out www.gailambrosius.com
really good chocolate! (from a fellow 'chocolover'!)
I... just shot up 2 units for half of a rather large chocolate chip cookie.
It was worth it..... :/ Lol!