Hi,

 

I've been doing a lot research on diabetes the past few weeks, and keep coming back here, so I decided to join!

 

My name is Jennifer, I'm 32 years old.  I'm 5'1' 100 lbs.  I never had regular "cycles" in my life, was diagnosed with PCOS (self diagnosed my OBGYN couldn't believe it because I don't exhibit any of the tell tale signs until they saw the labs I requested) when trying to get pregnant.  I had gestaional diabetes with both my pregnancies, which I controlled with diet only.

 

Since the birth of my last child 15 months ago, I've tried to stick to my GD diet, and do test occasionally.  My fasting is usually high 80's to low 90's and my 2 hr post meal is usually fine (under140) unless I eat something bad like pizza, pasta, rice,etc...then it could be in the 160's 2hrs later.  I excercise regularly and in fact will be doing my first (very small) triathalon next month.

 

I had my OBGYN do my Ha1C last September 2009 just so I could stay on top of things.  She was never concerned about me developing Type 2 diabetes.  It came back 5.4 and they said that was great.

 

The past three weeks I just haven't felt right.  I'm not sure if it's in my head or not...I can be a bit of a hypochondriac.  Anyways, I've just felt run down, my eyes are heavy, and feel like I'm in a fog, and have a weird feeling in my mouth, but still not sure if it's thirst or not.

 

I decided to get a physical and got my labs back last week, and will be meeting to discuss with my doctor next week.  All my labs came back OK, except my Ha1c was 5.7...which is just out of "normal" per the report.  My fasting was 79, my thyroid was fine, iron was fine, all my cholesteral levels were perfect.  I was secretly hoping my a1C would be better...I wonder what it would be right now if I ate fast food, drank soda, etc...

 

SOOO...if you've made it this far, I'd really value your opinion.  I'm curious to see what my family doctor will have to say.  How concerned should I be about a 5.7 a1c given my history?  OH...and my dad and my grandma are both Type 2.

 

I've been reading up on LADA, or Type 1.5...and I'm wondering if I should request the c-peptide and the GAD test?  I just don't feel like I fit into the Type 2 category. 

 

I've been stressing about this the past few weeks.  My husband thinks I am overreacting, and maybe I am. 

 

Should I go see an endocrinologist?  Should I just continue to try a little harder with my lifestyle and get re-tested again in 3 months?  I don't want to go overboard  but I don't want to blow it off either, if that makes since.  Is it possible that my BG has always been off my whole life, but I've just never gotten to be a true diabetic?

 

If you've read this, thank you.  I feel that many of you, with your backgrounds and personal experience with diabetes, would provide greater advice than even a physician or my ob/gyn!

 

Thanks again for any support and I will try to support you as well.

 

Jennifer in Texas...

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Your sister could request an A1c test from her doctor. Would be great if these were a standard part of blood testing & hopefully one day they will be. There are home A1c tests, if this is something she'd do.

Certainly not everyone with PCOS has diabetes, but worth encouraging her to be tested to be sure. Fasting glucose is not always an indicator.
I have no insight to add, but just want to say "Welcome to TD."

Mark
Hi Jennifer,

First of all, I just want to say that you should be very proud of yourself for taking the initiative to understand what's going on and working to do the best that you can. I meet so many people who play that "I won't ask because I don't want to know" game and it's tragic.

I don't really know what's going on with you and the fact that you're not sure does warrant further testing, in my opinion. What I can tell you is that the severity of your blood sugar fluctuations is not an indication of what Type of diabetes you have. Some docs and endos will argue that you're too "mild" to have T1 because T1 occurs so quickly that it's evident at the outset.

I'm living proof that that is not the case. I had symptoms of diabetes going back to 2003. Was tested in pregnancy in 2006/7 and my bgs were in the 100-140 range 2hrs post meal back then. In my second pregnancy in 2008-09, I failed the oral glucose tolarence test at 324 and my A1c at 5 months pregnant was 6.8. I've been on insulin since then and now if I forget to take my insulin or don't take enough, I go well in the 400s. My fasting in 2006 was 108, my fasting in 2009 was 142, my fasting this morning with my regular insulin was 183. (I know that's bad, btw, and working to fix).

I don't know if you're in the same boat, but if you are or you aren't, keep on top of it and keep searching for answers.
Jennifer,
Welcome to TuDiabetes, I hope this is all a false alarm.

First realize there is a certain variation involved in the A1c test. Your different readings may in fact not indicate a deterioration in your blood sugar control. As an aside a mental fog was one of my symptoms.

My advice is to educate your self and gather data through testing your blood glucose levels. The website bloodsugar101 at http://www.phlaunt.com/diabetes/ was very helpful to me. I would read the entire site but in your case I would pay particular attention to the links, titled How Blood Sugar Control Works--And How It Stops Working and How to Lower Your Blood Sugar. This will give you the information needed to understand your meter readings.

Forums like this can be really helpful. You will be exposed to a wide variety of opinions on treatment, diet etc. This will shorten the learning curve, and help you formulate your own opinions and plan of action.

The book, The First Year: Type 2 Diabetes by Gretchen Becker is also very good. If you unfortunately find yourself with a blood sugar control problem I would recommend the Diabetes Solution by Dr. Richard Bernstein, this book recommends extreme carb restriction and is not for everyone, but I would still recommend reading it to familiarize yourself with the concepts.

While the onset of diabetes in some is very sudden in others it is a slow slide downhill until the tipping point is reached and then the slide starts picking up pace until the person finds themselves with uncontrolled blood glucose.

In reading lots of posts on various diabetes forums I have acquired a somewhat jaded view of the medical profession. Many of them dispense appalling advice. The earlier in the progress of the disease the intervention happens the less drastic measures need to be taken. Yet many of them assume deterioration is inevitable and won't intervene until its too late. In defense of the medical establishment they are under tremendous pressure to contain costs, and I am convinced that the vast majority of people want to continue eating the way they have always done and just take a pill. In many cases this just flat out will not work.

So... first Test Test Test. I would initially test first thing in the morning, before each meal and at 1 and 2 hours after eating.
Also note what readings correlate with which foods. This will give you a baseline to compare future results to.

If you feel comfortable using it I would recommend using a meter that has software so you can download your meter readings onto your computer. Then you can produce easy to read reports to take with you when you see a doctor. This will greatly increase the chance your doc will look them over in detail and understand what is happening. It will also make it easier for you to understand what is going on with your readings.

Assuming your readings don't raise any alarms, you then can cut back on your testing ( the cost of strips can add up real quickly on this program). Then periodically resume an intensified testing schedule so that if your control is deteriorating you can intervene early in the process.

Second educate yourself about the disease so you can recognize if a doc, nurse, dietitian, or CDE is blowing smoke. You can then fire them and look for another. This will also give you the ability to interpret your readings yourself.

Again welcome and I applaud you for your proactive stance.
Your story sounds exactly like mine. My father and grandmother have type 2 diabetes. I am 5'4 107 lbs. 23 years old. I had gestational diabetes during pregnancy with my son 4 years ago. I was just diagnosed this past January as a type 2 diabetic (endocrinologist said my only risk factors were my gestational diabetes and my family history: dad,grandma)...I was never tested at my 6 wk checkup after giving birth or anytime there after until I was diagnosed in January so I am not sure what my #'s were before the actual diagnosis but my first fasting was 126 and my first A1C was 6.1. You should eat a high carb meal and see if you are at 200+ 2 hours after, (two readings of 200+ anytime can diagnose diabetes.)
Make sure you educate yourself good job keeping on top of things I was blindsided by the diagnosis and absolutely shocked, I wasn't even warned about developing diabetes after having gestational.

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