I feel your pain. Four days ago I was diagnosed and my head is still spinning. I feel so fragile now. I am afraid to do anything, go anywhere, or even be around anyone.
Anyway, I am glad to be on this forum. Your message helped me a lot.
WELCOME...you've found a great place to find your words...words that will build YOUR story!
wow you are 38 and just diagnose with type 1. Whats going on in this world. i hear more cases of older people getting type 1. This illness is growing exponentially i am, afraid.
Alessio, I was diagnosed at age 58. It isn't so much that there are more cases of older people, it is that people are beginning to correctly diagnose us.
you are right :) . And i also feel that there is a big crowd out there who is still misdiagnosed or not even diagnose yet. :( . In the past month i heard 2 more cases of acquaintances with T1DM
Unfortunately, you are right. Even though I think awareness is growing that Type 1 is not just a childhood diagnosis, people are still misdiagnosed.
I'm not sure if it's misdiagnosis or something entirely else. I mean Diabetes doesn't run in my family (on either side)and I've never had any issues with my blood glucose levels ever being abnormal in any of my lab tests. I even went back and double, strike that, triple checked and NADA. In my situation I'm convinced that it was a quality of life issue and specifically stress that caught up with me. Stress can be every bit as dangerous as a real disease. Especially in the way tjhat one's body reacts to stress. But I hear you Zoe. Whatever it is more attention needs to be paid to it becuase it's becoming more and more common.
In the case of T1, there are OFTEN no other cases in the family. And it can hit very quickly. Blood tests can be entirely normal a couple of months before it hits, and then BOOM! That's just the way it is, so now's the time to work on it, and learn all you can, and get on with your life. Good luck, brotha! :-)
Oh, I was actually talking about the adult Type 1's who have slow onset (LADA) and are misdiagnosed as Type 2's. However it got here (I'm sure you're right about how it happened for you), you do sound like a clear type 1 and you have a good quality of acceptance about that out-of-the-blue shock in your other post.
My new T1Brotha, It has been one year since I was diagnosed at the age of 44..I am a pumper and it made my life so much easier.. I just started training for a 5K..I am not sure when I will be ready but I just stay in trainig and it seems to help (I have never ran before in my life, except to catch a plane) As for the confusion, it really never goes away but I try to keep putting acceptance in it's place and pray that the "One" above continues to give me the patience I need.. I just entered by first chili cook off--yes, I never have done that either and I won 3rd out of 25!! Since I now try to cook very diabetically,(LOL) I thought what the heck!! So, just keep in mind, we can really do anything now because we live with this day to day craziness and still keep a smile on our face..Love, peace and Broccoli--Jujube
That's fantastic Jujube!!! Thanks for the kind words and thoughts.
Sorry you have to go through this, but welcome to the group; keep reading all you can on the boards, they contain a wealth of information. I have kept my disease pretty much to myself; other than medical professionals, I've told one sister and one friend. No one at work knows except the PA in Occ Health. My CDE strongly encouraged me to fill her in. Like you, I was a decent runner (not elite), completed over 30 marathons, have always eaten well, so I choose not to try and explain this T1 mess to folks who don't have a clue. I was diagnosed 3 1/2 years ago at the age of 59, and it took me a little over a year to begin to accept what had happened to me. Hopefully, you will get there quicker than I did.