The goal of this discussion is to collect in one place some gems -- pithy quotations about living with diabetes that say it like it is. I'll kick things off with some excerpts from Riva Greenberg's talk to us on Friday, February 1.

"February is my 41st diaversary -- my 41st year of living with Type 1 diabetes."

"How many of you think that diabetes is the leading cause of heart disease, blindness, kidney disease, and amputation? You’re wrong. ['How could we be wrong? It’s all we hear, all we read.'] Poorly controlled diabetes is the cause of those outcomes. Well controlled diabetes is the cause of nothing."

"Most people don’t feel listened to."

"Health care providers are trained to heal and cure acute illness, so most of them really haven’t got a clue how to help and support patients with a chronic condition like diabetes."

"It’s all about building emotional resilience, because half of this condition is knowing all the medical stuff you have to know to deal with this condition, and the other half is dealing with the emotional part -- to get up every day and do it again . . . it’s not easy."

"What’s wrong with insulin? Everybody has insulin. I just have to put it back in my body."

Advice for health care providers: "Create a compassionate partnership with your patient. You’re a team. There’s two experts in the room—you, and your patient. And your patient is an expert on themselves, their life, their condition, what they’re doing, how things are going. It should be a meeting of two experts in a compassionate partnership . . . look at what’s working, and build on what’s working."

That should get things started. Please add to this list with the "nuggets" you've encountered in your own journey.

Views: 213

Reply to This

Replies to This Discussion

If you have a bad result correct and move on - my endo

I hear you DNS, med prof can sometimes be it of touch.

To the health provider, or anyone who does not understand T1D, "Let me educate you."

I figure if the tattoo on their forehead says educate me, I don't miss the opportunity. Kind of hard nose, but that's part of why I've had success, mostly, for 42+ years as a T1D.

RSS

Advertisement



REsources

From the Diabetes Hands Foundation blog...

Congratulations Diabetes Advocates Scholarship Recipients!

The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were …
Continue Reading

La Familia de EsTuDiabetes Sigue Creciendo

El Centro Nacional de Prevención de Enfermedades Crónicas y Promoción de la Salud en el Estados Unidos encontró que a partir de 2002-2009, el 11,8% de los hispanos mayores de 20 años, que viven en los EU, viven con diabetes …
Continue Reading

TuDiabetes Team

DHF STAFF

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Emily Walton
(Business Manager)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Teena (has type 2)

Brian (bsc) (has type 2)

jrtpup (has type 1)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2013   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service