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Permalink Reply by acidrock23 on October 27, 2011 at 9:10am

Unfortunately, I think the only way to develop "Flow" (good word, btw, there's a psych book by the same name I'd read for martial arts classes that's *really* good and useful for diabetes with the waves of waves) is to test a lot with focus.

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Permalink Reply by WAYNE Z on October 27, 2011 at 9:15am

If you can't get into the routine of test often, have you considered getting a sensor? It might help you visualize what you blood sugar levels are doing

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Permalink Reply by acidrock23 on October 27, 2011 at 9:33am

Except you need to test often to make the sensor work too?

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Permalink Reply by J.Santiago on October 27, 2011 at 10:24am

I've read that you only have to test twice a day (Medtronic pump)

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Permalink Reply by WAYNE Z on October 27, 2011 at 10:36am

Technically yes, you only need to calibrate it every 12 hours. However, I do find that I test more than that. I just like that I have the ability to see the output of the sensor info in graphs. It makes it easier to see if you have certain times of the day that are worse than others. You can see trends of how your body reacts to certain foods and the insulin you take. I don't wear the sensor all the time, but when I feel like I am getting out of control I will wear it to get back on track.

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Permalink Reply by J.Santiago on October 27, 2011 at 10:54am

Thanks for the update :D

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Permalink Reply by acidrock23 on October 27, 2011 at 11:07am

To clarify this, you "need" to "calibrate" the CGM twice a day, which means you tell the CGM what your meter reading is. It works *a lot* better if they are close. The CGM also will recommend that you test approx 2-4 hours after each bolus. In my experience, I'm doing the additional testing to make sure that the meter and CGM are close when I calibrate, if that makes sense?

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Permalink Reply by Marie B on October 27, 2011 at 10:00am

hi J, glad you posted. I was reminded of another post here from a while back that contained some excellent suggestions to another type1 struggling with motivation.

http://www.tudiabetes.org/forum/topics/worst-diabetic-ever-needs-help

I especially like Kristin's suggestions about not letting the numbers rule your self-esteem. she really helped me on this. I used to not test very often too, because if I saw a "bad" number, it would make me feel BAD. now I don't think of bg numbers as bad, I think WOW, I'm glad I caught that now instead of later.

I'd also say, start with a small step first, don't try to change everything today. say, start with testing before meals and bed and keeping a log.

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Permalink Reply by MyBustedPancreas on October 27, 2011 at 10:51am

Two things come to mind:

First , testing is the ONLY way you'll really understand your trends and patterns. I don't even find the CGM as helpful as good, ol' fashioned finger pricking. You've gotta log those testing results and look at your patterns. With a pump this is actually pretty easy to do (as compared to the way we used to have to do it, which involved writing things down in those annoying log books). Use the features on your pump to help you with this. Use the meter the pump came with and let your pump record all that data. If you're using a minimed pump, make sure to regularly upload your data onto Carelink. I've never been as consistent with logging my info as I have since I started using Carelink. It's awesome.

Second, I know when I was your age, my body was still going through some wild hormonal fluctuations. College made things even worse because my schedule was constantly changing semester-to-semester (and I was CRAZY busy). I worked full time, went to school full time....I was a bit of a mess sometimes. Anyhoo, around the age of 22 (once I was finishing undergrad and heading into grad school) my body and schedule began to cooperate a bit more and I started to see more consistent patterns.

As a woman, you REALLY need to pay attention to the impact hormones have on your BGs. I think my patterns is fairly typical in that the week or so BEFORE my period, my BG gets crazy high, and then the day my period starts, I come crashing down. Once I figured out that pattern, I was able to proactively adjust my basal rates at these times and it has (more or less) done the trick.

Keep in mind that managing T1D is less science and more intuition/practice/dumbassluck.

Most importantly, you HAVE to start testing. Again, a CGM can help, but it's not perfect and I have found I get better results from finger pricking and logging all those patterns.

Also, DON'T EXPECT PERFECTION. You really can't achieve it with T1D and you should NEVER let the numbers determine your worth as a person. If you get a bad number, identify the cause, correct, and move on.

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Permalink Reply by J.Santiago on October 27, 2011 at 12:18pm

Thanks for the push. I just want to get on this and be consistent enough.

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Permalink Reply by Rye on October 27, 2011 at 12:56pm

Hey J.

I found out I had diabetes while in college. It is hard to focus on a disease when your young and just want to have fun like everyone else. I think your resenting your situation which is natural. I did the samething, I would NEVER test and would eat bad things all the time. I had two scared straight moments that kind of help change my behavior one was having this nurse who took it upon her self to yell at me about my numbers. She went off on how I am too young, too smart and too pretty to live like that and if I didnt get it together in 20 years I would have a limb cut off or in a coma...Dramatic, yes but I was thankful for her to verbally slap me up like that. The second thing was when I went into DKA and was in the ICU for 3 days....Also dramatic but when I got a hint what diabetes could if I dont try to get better control it changed me...I thought there are going to be many things I can not control in my life but if I dont do something about the things I can then its my fault of any outcome...If by chance in 20 years I have complications I know it wont be by my own doing.

What I did from that point was research EVERYTHING there is to know about diabetes, for me the better understanding the better control. I learned how my body reacts to different things (by testing) and learned how to be young without feeling like a burden. I learn thin pizza is better, wheat buns on bugers work, sweat potato fries or onion rings instead of fries, drink clear alcohol because it doesnt have as much sugar and it helps bring down your BG, shots are WAY better than fruity drinks. And I never missed a beat...These are just things that worked for me however I suggest you learn what works for you. I made all the substitution changes and my A1c is way lower than when I didnt take care of it which helped me focus more in school...

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Permalink Reply by J.Santiago on October 27, 2011 at 1:11pm

Thanks. Well I was diagnosed when I was 8yrs old and I come from a family that is very involved in the medical field. My father is a nurse, so were my grandparents. So I grew up with the dialisis and cut off limbs stories since I got into this. When I was 12yrs old, I was in ICU for a week and went through CT scans because they feared I might've had some sort of brain damage (which I didn't). So it's not that I don't believe in them, it just that I grew so customed to these threats that they don't really inspire me to go on. And as far as diet goes, I don't have hard restraints because my pump works like magic. I just need to get in the habit of doing things. As far as the denial goes.... Yeah, I think thats what it is but 11 yrs into Diabetes I should be over it.

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