I am a psychology student at the University of North Texas, and I am currently conducting a research thesis on Learned Helplessness in Type 1 Diabetes. It involves a short (5-10 minute) online questionnaire. If you are in the U.S., at least 18 years old, and have Type 1 Diabetes, please follow the link below if you are interested in participating. Thank you!
UPDATE: Data collection has concluded. Thank you to everyone who participated, I truly deeply appreciate it! Also, much thanks you TuDiabetes.org for giving me the opportunity to recruit here, and for all the support they offer us.
What standards of research were used to approve this?
I did the survey!
I hope you don't mind my asking, but wouldn't telling the respondants that the survey is about "Learned Helplessness" lead to a bias in who responds. I don't consider myself helpless, I consider myself powerful. I would be disinclined to respond.
I'm just sayin.
If I didn't say what the study was over, it would be considered "deception by omission" which is avoided in research like this because for some reason it makes things drastically more complicated. I'm just following rules.
"I'm just following rules" is a phrase that has covered a multitude of sins throughout history. But seriously, there have been many studies of many types that don't say what they are seeking to discover, or even say or imply it is something other than what it is. Sometimes that is needed to get valid results. I agree you are going to get a skewed sample and that most of us on TuD are proud of our proactive stances regarding diabetes. By using the DOC population, you are right off the bat getting a skewed sample. We may represent a cross-section of the diabetic population in terms of age, geography, class, profession, etc. But not in terms of degree of involvement in our own treatment which directly impacts your stated research subject.
Unfortunately, I don't have the kind of resources to minimize all the possible measurement error. That would require a much lengthier time frame and a bunch of grant money, which would then be the sort of project appropriate for a doctoral thesis, not an undergraduate one. I understand the limitations of my project, but it's not like it's useless because it has them. No project is perfect, but we can still learn SOMETHING from them, even if it is nothing more than a reason to do more/less research on the subject.
My original comment was based on the negativity of the survey and the supposition that we T1s feel helpless, which I don't. I agree with Zoe that you will get a skewed sample on this board from anyone who decides to participate in the survey. If you really read the posts here, again Zoe is correct. We generally have wonderful, productive lives. When we do get frustrated, this group comes to this community to ask for ideas, and usually finds a solution. We support and sustain each other.
I went back after ARs comment and tried to take the survey, but got half way through and again gave up. The negativity is too much for me. None of the statements fit me; I strongly disagree with each one.
That is good honest data, though. There is no supposition that we T1's feel helpless. That's what the question is asking - whether or not there is a relationship, and if there is not, that is what I need to show with the results, you know?
You are yourself a Type 1, Richelle? Why, then would you choose such a negative topic? You could have done your project on so many more positive topics like "Are participants in the DOC more proactive in their own care?" or "How are Diabetics portrayed in the media?" or "What differences are there in the management of Type 1's diagnosed as children versus those diagnosed later in life?" Or even, "Is there a correlation between numbers of carbs eaten and a1c?"
Because my degree is in Psychology, I had to test a psychological construct. The literature that exists (which I have to build off of, I can't just ask a question that I am personally curious about, unfortunately...) is on negative psychological effects, probably because psych research is more involved in trying to fix things. Researchers always stress "what are the implications?" and so I think that has created an environment where negative constructs get more attention. I'm not saying it's right at all, but it's what I have to work with. Whatever the data ends up saying, at least something is learned, or at least I gained some experience conducting research (this is my first project, so it is a learning experience).
No, it is skewed data based on your bias, especially if you are a T1, which your comment suugests, makes it even more biased. Sorry. In my degree quest, I have done too much research with one skewed idea. I always lose in the research, ...and the grade.