Replies to This Discussion

Permalink Reply by Aimee on June 30, 2011 at 12:43pm

Hi Emily,
I just finished reading this book and it was great! I hope you like it as much as I did! Good choice.

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Permalink Reply by joy-f89 on June 27, 2011 at 6:34am

heeeey Emily. i was diagnosed wth type 1 one year ago & i was 21 then. i couldnt believe it, eventhough i'm a student nurse and have delt with so many diabetic patients and stuff, but to have it in ur own body is so much different. i even used to go see my doctor almost everyday to have her opinion on my results. my BG didnt get to the 100s untill one month later. it's normal to have frequent highs and lows in the first period, but later u'll find it'll get stable. wat u need to do now is to check ur BG frequently, take ur insulin & meds at the same times everyday, eat same amounts of carbs everyday, and eat at the same times everyday. avoid sugars and fats totally. and dont worry, u'll get used to it very soon hopefully. it's just about having you pay more attention to your health.

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Permalink Reply by Kim Nater on June 27, 2011 at 7:29am

I got diagnosed at age 20...what a rough age to get diagnosed! Are you seeing an endocrinologist? Honestly, I went to counseling to help me get through the first year, and that really helped a lot. I also tried out some support groups, but none were as effective as coming onto TUDiabetes. :) Hang in there and feel free to message me if you need any help. Don't be afraid to eat. Just write down your blood sugars before you eat and two hours after you eat. Then, take those numbers to the doctor so that he/she can make adjustments. With that method you'll eventually see your numbers start to stabilize a bit. Also, I recommend trying to eat breakfast, lunch, dinner, and snacks at the same time everyday until you get things sorted out. Hang in there....and keep posting when you need help!

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Permalink Reply by The Diabetic Chef on June 27, 2011 at 5:15pm

Oh Emily, I know exactly how you feel. The first month or so after getting out of the hospital I was afraid to eat, sleep, drive, work, etc.... It was like something new and evil attacked me and my life was changed forever. But you know, after getting a good doctor, learning as much as I could about diabetes I felt a lot better. It's true you know, knowledge is power... this kinda of knowledge has given me the power to stop being afraid and know how to manage my life with Diabetes. People will often say things like "I'm so sorry you have to go through this" I just smile and say "its okay, really.. it's not as bad as it looks". You'll get there too. Oh and try not to worry about getting your numbers back to 100's just yet, it will take time. Focus instead on avoiding anything below 70, on insulin I hate going below 80 because for me it's an indicator that I need to eat ASAP. I'll be praying for you and I hope you get a good support network around you too. My Diabetes care team is amazing and Animas is a great company to get my insulin pump through.
~Blessed Diabetic

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Permalink Reply by Don on June 30, 2011 at 1:08pm

Welcome to the T1 club, Emily!
It's a shock, no doubt. It sounds like you've got your insulin to carb ratio figured out. I think 1 unit for 15 carbs is pretty common around here. You also need to figure out how much a unit of insulin will drop your blood glucose so you can safely bring high bg down. Think Like A Pancreas will help with all of this including how long to expect insulin to last in your body. I have found that a 30/30/30/10 rule works for me which means 30% of an insulin shot metabolizes in each of the first 3 hours and then it tails off to 10% in the 4th hour. If you find a rule of thumb that works for you, then you will know whether or not to take a correction dose for high bg. Don't worry about any of this now if you are not ready for it.
The food labels required by law in the US are very helpful. Just remember to subtract the fiber from the total carbohydrates. You were brave to eat out at Applebees. To this day, one of my biggest challenges is being willing to try new foods and eat out without having a solid carb count to rely on.

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Permalink Reply by Stephanie on June 30, 2011 at 9:16pm

Hey Emily,
I am 19 and was diagnosed Feb.15, 2011 and everything will get better with time. I felt the same way when i got out of the hospital it took a week before a doctor could even squeeze me in. just do not do anything you don't feel comfortable doing. I went into the bathroom the first few times I was out but once i got comfortable with my new lifestyle and the people i was with i just started injecting at the table or wherever im at and yes sometimes i get looks but it is amazing how many other diabetics are out there that you will meet and can talk to just by doing normal everyday diabetic things. best of luck with everything!
Stephanie

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Permalink Reply by Natalie ._c- on June 30, 2011 at 10:32pm

Baby girl (I can call you that because I'm 63!), I'm sure you're still in a state of shock. A new diagnosis can't be anything OTHER than overwhelming. I cried for days when I was diagnosed.

You just have to take it one day at a time. And remember that you are on the very beginning of a long road, and if your first steps are faltering, at least you're taking them. It takes a lot of learning and a lot of time, and Type 1 is NEVER easy. But on the other hand, there are many people who are successfully living with it, and you can find a good group of them right here.

For right now, the goal isn't perfect BGs -- it's just to stay alive while you start the learning process. You have a ton of reading and studying to do, and in your current emotional state, that is very hard to do. So take it a little at a time, and ask as many questions as come into your mind. There are some VERY bright people here who can answer your questions better than the docs and dietitians can, and with lots of experience, so you don't have to reinvent the wheel.

And remember, you WILL adjust to this catastrophe, and you WILL learn how to deal with it, and things WILL get easier. Please have patience with yourself. You're surrounded by friends.

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