Hey everyone out there need some help.
I am not sure how to cope any more. For years I have been able to handle it but it seems like lately it has gotten more and more difficult. I am a T2 on a insulin pump, I have my A1C hovering at 7.6 down from a high of 13 years ago.
I am dealing with people in my life family, and friends, and co-workers who seem to think they know more than I do. I have read book after book after book about diabetes. I understand it like many of us on here do. I know I shouldn't just sit down and eat sugar, or eat unhealthy food, but I have to admit I like to spoil myself and eat some tasty stuff along with the healthier items.
How do you handle people at work, or in your life thinking that a diabetic can't eat this or that? How do you deal with it, I find it is adding more and more stress to my life, and am tired of explaining myself to people. Granted I am not under 7% but 7.6 if I was doing something that bad would be off the charts.
Curious to hear how you all handle this, and ways to handle stress that comes along with diabetes in general. For example my insulin just went up to 100 bucks a month for the same amount that I paid for last year and it was 25 a month. Anyone have tricks up your selves to deal with all the stress that we all get from diabetes?
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My trick to avoid diabetes related stress has been to find other hobbies that are more important. When I was younger, it was wild, rock and roll debauchery. Staying up late, partying my brains out, learning how to play guitar, being in bands, etc. Then I got old, sort of slowed down and my main hobby was reading, which was not quite engaging enough to pull me out of my doldrums.
I might have been drifting in the wrong direction (weight, BP, cholesterol, etc. A1C ok but SD all over the place I think?). Independently of diabetes, I fell for the "exercise is the antidote to obesity" argument and decided to start working out. That was about 2005 or 6 or maybe 4 and I have stuck with it. If I have something planned, shooting bottle rockets in the basement back in the daze or going for a run now (and I started walking...), I am inclined to work to keep diabetes more in line. I don't look at diabetes as a thing I do "for" diabetes but something I do "with" diabetes although perhaps the net effect of "for" vs. "with" is muted?
I've read some books too and, while I find them interesting, part of me thinks that I've done better perhaps because of the "medication friendly" philosophy I developed during the "wild years" and just looking at it as a constant experiment that needs a strong hand on the tiller. If something doesn't work, I figure "ok were my carbs off or is my dose off?" and, if they are, I file it away for "next time" and figure even a "bad" test, can still provide good data so when "next time" rolls around, I can try to "beat" my "score"? I am always doing stuff like that in my head. I don't usually even bother talking to the doctor about it as I'm sure they'd think I was totally nutso.
Great points, I did take up a few hobbies, I have had diabetes for a while so had a few hobbies come and go (super glue and I don't get along so models went out fast lol).
I think you have a novel idea though and make it a competition with yourself. I get a bad reading very rarely, although with CGM I can see the number creeping up from time to time. I say I need to not do that again when I know what I did. But trying to beat my body at its own game may not be a bad idea of how to think about it.
If you "rarely" get a "bad" reading but think your A1C needs to improve, maybe you need to redefine your definition of "bad"? I'm not entirely besotted with Dr. Bernstein (i.e. I like carbs, beer, junk food, Jameson's, etc...) but think that his suggestion that people with diabetes deserve normal BG, instead of "well, 140 is pretty decent, *high five*" is very sound. If you want a lower A1C, the way to get there would be by lowering your target, unless you are in a hypoglycemic stupor all the time, there's probably room to move? It can be a lot of work but it sounds like you are doing a lot of work anyway so maybe the problem is targets which might be based on something your doc said rather than something you want?
Obviously you have to be careful messing around with dangerous drugs like insulin and all that but, at the same time, if your A1C is 7.6, that's an average of 138ish. I'd want to change that if it were me but if you are generally doing what you are supposed to be, it may be something like switching a ratio a point or two? When my BG gets off, I will change my pump from 8-1 to 7-1 and see the difference immediately and perceptibly. I just got a new pump and am sort of intimidated by having access to tenths (8.3 vs. 8.7? hmmmmm...) but it's always a work in progress?
AR, wouldn't an A1c of 7.6 equate more to an average of like 193ish?
Damon, I commend you for working hard and bringing your numbers down but I agree with everything AR has said.
I don't look at the comments you've gotten here as criticism, but more as encouraging you to set goals that will keep you healthier in the long run.
My last A1c was 7.6 also and I have been fighting with everything I have to bring it down. Believe me when I say I know how hard it is. I'm battling female hormone changes and went to a pump about a month ago for flexibility in setting basal rates.
Since going on the pump and eating low carb, my average bg based on my pump meter is 140, which would equate to an A1c of around 6.1 I think. Of course, that's only over about a 6 week period and I feel like I can do better as I'm just now getting my basals set (and crossing my fingers they don't change tomorrow!).
You say that your medical team can't figure out why you can't lower your A1c. My dietician told me to eat 40-60 grams of carb per meal...and if I do that, I am on a bg rollercoaster and my numbers would never come down. I've had much more success eating about 40-60 grams of carb *per day*. Look at your diabetes as a constant experiment. Just try eating lower carb for a week and see what happens...if you eat enough protein, you will not lose more weight.
Good luck to you and I wish you the best! :)
All good feed back.
7.6 is above 155 and I bet is close to 193.
My read is at min one wants to get 155 (6.9 a1c) and closer to 140.
It was at this level my kidneys stabalized, hemoraghes left retina's and weight dropped and got off starlix/glyburide, actos and switched to met and insulin with far batter results.
When one's numbers crawl up; that usually is clear sign insulin resistance is crawling/increasing up and backing glucose up in system.
Portion size and calorie/carbs counting with sufficient heraty exercise needed to keep numbers down as stated.
Also liver throwback and glucose production and incorrect glucose release when liver is supposed to be fasting will mangle up numbers and throwoff.
For me that is as follows:
a) metformin to lower liver release of glucose.
b) portion and carbs control and NO extra snacking - I maintain a 1200 calories day target.
c) walking or other suitable heraty exercise to keep burning glucose off. I do 1.5 to 2 miles walking a day.
I would watch out and restrict carbs such as grains, breads, pasta , rice carefully - yes eat em but tight portion control.
When I do that my numbers stay in bounds and do not creep up. WHen I do not get sufficient exercise - I see BG crawl up.
Good luck. Acidrock has great comments.
Hey i stated with 40 to 60 grams like you, I am down to about 25 a day, really as a last ditch act trying to get it lower. I believe 7.6 is about 193 like you said. The one interesting thing is I hit my peaks when I sleep, but during the day I can take it and use CGM and I am am in the 90's to low 110's (exception to the rule would be if I eat something I know I shouldn't)
I think maybe I should look at it more like encouragement, I do appreciated all the support that TuDiabetes offers, I really didn't think I would get this much of a response but everyone has offered great advice and got me to at least think.
I think at times I get more frustrated because no matter what try I seem to be stuck in the 7's, I go see another specialist next month hoping they might have some insight too.
I run lower @ night fairly regularly but I have a CGM, which is sort of like cheating as if it gets really low (<60), it bleeps and annoys MrsAcidRock and the dog. I figure I don't mind running low at night as, when I wake up, I'm in a stupor until I have a quart of coffee whatever my BG is and I'd rather "bank" 6 hours of low than high? I wouldn't count on the specialist. If you have a pump and a meter, you have the tools and sort of have to say "ok, if x for an input isn't working, turn it up a shade and see if 1.5x or x/2 or whatever" will work and see how it goes from there? If I get numbers that are off for a couple of days, I'll try another number. Sometimes, I'll get all out of whack for a week or two but, eventually, I can get back to sort of "normal" numbers, like 100s and 120 after eating and am pretty happy with that. And then I "Celebrate" and get either a 180 or a 40 because I wantonly overestimated the carbs in the "celebration" and am back to the drawing board. I don't think that anybody is aware of the amount of energy I put into this stuff, except maybe you guys.
Your comment about the "celebration" made me chuckle. Yesterday I had the best diabetes day I've had in a really long time...I stayed between 83 and 125 overnight and allll day and I was mentally patting myself on the back and doin a little happy dance. Then the gremlins got wind of my celebration and threw an overnight 165 in there last night to bring me back to reality.
I mean if they're going to hit me with a high number, I'd at least like to be able to eat something that makes it worth it! :)
First thing is first, take a deep breath. Try and relax. Anxiety has an effect on diabetes as well, or so i'm told. Look at your ratios and try fine tuning them. The more you can do that, the better you'll be. Are you exercising frequently? if not, then make a plan to start doing it. That will help also. The reality is your doing good and are looking for ways to make it better. That's admirable in it's own right. Hang in there. Don't let what others ask get you down. Take it with a grain of salt. Most often they think they are helping in asking those annoying questions. They mean well. Think of an acceptable way to respond to them. Consistently use it. You'll be good to go. Hang in there.
I am more direct with people. If I get a comment that I don't like and it happens over and over I just say "please stop telling me that. I work hard and know how to control my Diabetes. Though I appreciate your attempt at help, your comments just upset me and are not really helpful." and yes I have hurt feelings saying that but guess what it sounds like they are hurting your feelings and don't know it so most people do actual handle that very well to be told to please stop.
Also if you have not watched this video yet you will get a good laugh out of it I think:
CLICK HERE TO WATCH
Laughed at this video! I like his advise at the end kill her with kindness! Will have to remember that :)
I have to say this video cracked me up, and I needed that. I think I am going to take the polite but direct way to get people to understand I am able to handle it. It's one thing if its my wife, she has a little more invested =) but co-workers who know nothing about my condition just drive me up a wall! Thanks for the info!