Hey everyone out there need some help.
I am not sure how to cope any more. For years I have been able to handle it but it seems like lately it has gotten more and more difficult. I am a T2 on a insulin pump, I have my A1C hovering at 7.6 down from a high of 13 years ago.
I am dealing with people in my life family, and friends, and co-workers who seem to think they know more than I do. I have read book after book after book about diabetes. I understand it like many of us on here do. I know I shouldn't just sit down and eat sugar, or eat unhealthy food, but I have to admit I like to spoil myself and eat some tasty stuff along with the healthier items.
How do you handle people at work, or in your life thinking that a diabetic can't eat this or that? How do you deal with it, I find it is adding more and more stress to my life, and am tired of explaining myself to people. Granted I am not under 7% but 7.6 if I was doing something that bad would be off the charts.
Curious to hear how you all handle this, and ways to handle stress that comes along with diabetes in general. For example my insulin just went up to 100 bucks a month for the same amount that I paid for last year and it was 25 a month. Anyone have tricks up your selves to deal with all the stress that we all get from diabetes?
Replies are closed for this discussion.
My diabetes is mine, I own it. If my A1C was 7.6, I'd be working really hard to get it down, but because that's what I WANTED to do. Are you sure the other people in your life aren't correct? If you were in the 6s, or lower, you'd have the facts on your side and their opinions wouldn't be stressing you out. Just be honest with yourself, then do the best you can and always know your life is your own. The critics may not go away, but you can handle what they say better if you just believe in yourself. I'm so sorry about your increased costs, that's really a bummer. Maybe you could modify your diet so you didn't need as much insulin? I suggest that, not having a clue what your needs are, it just seemed logical to me. If you're unhappy with my comments, then please practice telling people to butt out of your business by starting with me.
I know you mean well so I am not going to tell you to butt out. Instead I will respond. An A1C in the 7's is "decent" and 6's is "well controlled". However even eating a diet with out cheating prescribed by my doctor and his team which was almost over kill for even a rabbit the lowest I have ever managed was a 7.3. I have tried diets that were aimed to help and they didn't, not to mention I am not over weight I am actually under weight so they have to watch that I don't lose more weight.
My insulin intake is at a bare minium I have reduced it as far as I can, I need some to keep things going which is my background insulin. Most meals I use about 1 to 2 units if that. Compared to other diabetics I know that are using 15 to 25 units for a meal, I have cut my meals to reduce the need for it and to try to cut my A1C.
My critics are uneducated people who love to poke their nose in my business. I try not to let it get to me, but it does, I am human. I can say it doesn't but I still hear it.
With such low insulin usage, I'm curious as to whether they are certain you're not a T1/LADA. Have you had antibody tests?
As to your original question, I wish I had an answer. There is one particular person at work who always wants to ask questions about my health. I think he's doing it out of some sense of trying to connect, but I'm always surprised at my own negative feelings when he does it. Most of the time, I really don't want to talk about my medical conditions with my co-workers/bosses and I usually end up giving him a very short response and I try to immediately move on to another topic. My beetus ain't nobody's business but my own. :-)
Shawnmarie, I have often been referred to as a type 1.5, they did tests that basically said my body decided to turn on itself (which leads to other issues too) but the main area it has hit was my pancreas so my body makes a low amount, but my body can't use it. When they have done levels testing sometimes I have high levels over a prolonged time other times none at all. It's a lot of fun because people talk about chasing BG, mine can be fine and then out of now where go one way or another. I am not sure what LADA is, I will have to look it up, but thats what my doctors have explained to me. Which leads me to my next thing find a book on type 1.5 lol I have found some stuff on it but it appears its "new" in the medical world. I love new things but I would rather not have new problems lol.
Your answer is great, I think thats my problem, its my business just leave me a lone. I know you mean well but stop, if you don't see me talking about it or picking up on it leave it. I have seen people in the work place (thankfully my last company not my current) say they have to skip someone because they have diabetes, that was my sign to say see ya, we're not tainted or anything.. it's always fun. I will do more research on LADA I am going to guess by what I just see on google it's what 1.5 is being called. It's easy to tell people type 1 or 2 because people for the most part get those, and I fit more in to the type 2 side of things when it comes down to that.
Melitta has written quite a lot about LADA (latent autoimmune diabetes in adults) here on TuD. It's basically a very slow onset of Type 1. Here's a link to one of her blog posts:
If you go to her page, there are a number of other blog posts about it as well.
The fact that the doctors say your "body turned on itself" sounds like autoimmune diabetes, which is Type 1, but it also sounds like you have insulin resistance, which is often is part of Type 2. Such fun trying to figure out the body.
Have you considered taking metformin, which works against insulin resistance so that the insulin you make and the insulin you inject can better get into your cells? Seems odd someone with insulin resistance would not be on metformin.
I rarely get those comments. When I do I ask them what they know about D, which is usually next to nothing. If they are receptive I'll do a little education. But your post made me think, why are you getting so many comments? It may be appropriate to reflect on that. What is it that is causing those who know you to react this way? Why can't the healthier food be as good tasting and satisfying as the "good stuff"? Personally I don't like to use any more insu;in than absolutely necessary. I don't like how it makes me feel and I hate chasing my BG. There are a lot of things I just don't eat any more because they just aren't worth the trouble. I also made a committment to myself to keep my BG as close to normal as I could. Given all that, I have been able to assemble a diet that is very satisfying and varied. I can still indulge from time to time and have no problem finding something at a restaurant that will work for me. Most days I use about 4 to 6 units per day. Most boluses are 2 units. But that's all for me. For me, an A1s in the 7's would be devistating and force me into OCD mode.
What to do now? I would evaluate where I am with my D knowledge and control. Is it what I want it to be? Am I comfortable with it and how I feel overall? If I am okay with my answers then other people's comments are of no concern. But if their comments really bother me I'm most likely not being honest with myself. BTW this is true for anything, not just D.
I would too love to have an A1C in the 6's trust me. I have done everything possible to include going on special diets, eating only food that was prepared at a hospital etc. The only thing that normally happens is my A1C drops a little always above 7, and I lose more weight, which I really do not need to lose as I am not under weight. My team of specialist out here in Arizona can not figure out why it will not drop below 7.
As for why I get so many comments, one of the reasons is I work with mother hens. I have had other health issues (unreleated to diabetes), so that starts it. So when I do decide I can afford to eat a treat which isn't often I actually get sick eatting candy or sweets anymore, comments are made. Today eating fresh fruit and vegi's I got the comment.
I think what I need to do is take the stance of education and try to get them to understand them. Comments can bother people, its just part of being human, if you hear things it really start to get to a person, even if its not true.
Is it the diet or the ratio? I have found that it doesn't really matter that much what the food is, as long as I'm counting it and keeping an eye on ratios. I have noticed that mine seem to change, or have periodic shifts, so I fiddle with my pump and it gets better for a while and then shifts again. I dunno if that happens to everyone but a little bit of insulin can make a big difference in BG numbers which, spread out over time, could make a big difference in A1C results that you are talking about? I don't think that doctors are necessarily aggressive enough but, on the other hand, insulin is dangerous and it may not be worth whatever risks are involved in trying adjustments but, if you aren't happy with the results you're getting, it may be the best option?
We are all so very different. I hope that you do not take anything I say as critical of your efforts. All I can do is offer up what I do and what I have learned in the hope that something will help another PWD in their battle. What I do know is that by the time I was diagnosed I had developed some pretty bad PN and retinopathy. None of the doctors held out much hope to improve these conditions. The only thing they offered was maintaining as normal a BG as possible could stop the progression. After just a few weeks on the prescribed diet (essentially the ADA diet) I knew it would never get me the results I needed. I cut the carbs way back, narrowed my menu to what I knew was safe and figured out my insulin use. In Oct of 2010 my A1c was 12.3. In Feb of 2011 it was 5.6 then 5.4 and has been 5.5 since. All of my complications have greatly improved and I see more improvement every week. Maybe I'm just lucky, but I don't feel like I had a choice in my approach if I did not want to go blind and be crippled. The last thing any one would do is to describe me as OCD, far from it. So, adapting to this new regime has been my biggest challenge. But, the alternatives are no real choice at all.
Because I have been through the looking glass with complications, I am really concerned for people who are struggling with numbers that put them in harms way. If they could only look through my eyes, even today, or see me typing with two fingers when I used to do over 80 wpm so they could understand what the future may hold. These are the things that motivate me. These and the people I love. I could give a rat's a** what other people might think.
I see where you are coming from, and now that I see it then it becomes easier to listen to your advice.
Knowing people with Diabetes around me that haven't taken responsibility yet and are still on denial my initial urge is to shake them up and tell them is not the end of the world, suck it up, it is possible to take care of yourself! Somebody had to teach you how to pee inside of the toilet, then is just a question of practicing until you get it right...(wow, my examples are always so weird)
On the other hand, I was there not so long ago and when you are down on yourself and scared to even try you just close your eyes and your ears. Encouragement, support and humour brought me halfway out. And now I can listen to stories like yours and hopefully learn from them.
Thanks Maycri. I think that most people believe that a disease is a disease and their doctor can simply tell them what to do and give them the meds to take care of it. This condition, like many others, affects the whole person. It didn't take long to realize that relying on my doctor to manage and adjust was never going to be sufficient to successfully manage my life. I have yet to meet some one who has taken that route that actually understands what they are doing. Usually they have been following the program for years with A1c's around 7 and don't understand why they are developing complications. It is so sad and so avoidable. But it akes a lot of work and goes against the grain.