Pancreas Transplant
I am in the process of geting my name on a transplant list for an pancreas only. My insurance has ok it. Can any one help with the fear and excitement.
I am in good health have had d for 33 Years have been looking for a cure for the last 10.Has any one had this done, not sure if this will make things better or just different.
Replies to This Discussion
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Permalink Reply by Jim Devlin on -
Hypoglycemic Unawareness was a huge problem for me until I received the CGM 2.5 years ago. I'm still unaware, but the CGM's alert signal has made this condition insignificant.
I still maintain the CGM is the best diabetes advancement since insulin injection. I say this in spite of the fact that I've seen tremendous improvement in insulin itself during my 61 years as a T1.
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Permalink Reply by andrea on -
i am definitely interested in this too. but do not understand the side effects, what are they?
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Permalink Reply by JohnG on -
The anti rejection drugs cause kidney damage, high BP, cancer, Hyperglycemia and your immune system is shut down so you can catch anything.
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Permalink Reply by Cora on -
Those are all listed side effects, but are not common. And if they begin to happen, they will switch you to another drug. 8 years ago I began to get damage from one of my drugs on my transplanted kidney. They switched my meds and I have been fine ever since.
And please do not subscribe to the urban legend that your immune system is shut down. It is not - at all. I do not get sick any more than I did before the transplant. In fact I get sick less because now I use hand sanitizer when I touch things that many people handle (like grocery carts - yuck). In fact, last winter my husband had a horrible cold and even kissing him did not give it to me.
The increased incidence in skin cancer is only about 5%. So if you are careful with your sunscreen, the odds are in your favor.
Again, if your glucose goes up due to the prograf, they can change the med and often this gets reversed.
Cora
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Permalink Reply by pancreaswanted on -
wishing you the best of luck! please let us know what happens, really interesting!
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Permalink Reply by JohnG on
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Congratulations on your 8 years post transplant. I'm only 14 days post transplant and can only hope a pray that I do as well as you have. Staying positive is important and I thank the Lord every day I get out of bead... It's precious.
The decision was simple for me I was diagnosed with Hepatic cellular carcinoma in February and was placed on the transplant list with B+ blood which is 9.4% of the US population. I had survived most of my adult life without any diabetes related complications and went from being a very healthy PWD to very terminal PWD after one MRI and one doctors visit.
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Permalink Reply by Cora on
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Wow, 14 days. You are just a baby aren't you? lol Anyway, the first year is filled with paranoia - germs, drugs, etc. But that will fade and you will learn what to do. As I said, if you have problems with the drugs, they can switch you to something else. I am part of the steroid avoidance study at U of Mn and have been steroid free for almost 10 years with the kidney and all 4 1/2 with the pancreas.
Enjoy the new organ.
Cora
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Permalink Reply by type3mom on -
I wonder if you'd do better with a diabetic alert dog and cgm to help manage your blood glucose levels?
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Permalink Reply by pancreaswanted on
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it would certainly be more fun to have a dad!
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Permalink Reply by type3mom on
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Yeah and much cuter, too. I know that is not the type of input OP is looking for, but was just wondering if he'd tried this sort of route before opting for a transplant. I imagine he has considered all options.
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