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I have been a Diabetic for 9 years now, but I havent actually taken it seriously. I dont check my sugar and I sometimes forget to take my insulin. I went to my family doctor and then he sent me to an Diabetes Specialist. I have always wanted a pump but didnt know if it was affordable or even the right thing for me. I asked him if I could get one and he told me it would be pointless for me to have it. My A1C is 12 and I really do want to lower it. Im newly married and want to start a family but not till im healthy. I figure if I cant take care of this for myself i'll do it for my husband. Im looking into the Minimed Pump, but right about now anyone with suggestions about which Pump would be the best or just even if its good for me would be helpful.
How can one have fun with skyrocketing sugars? This is the thing about diabetes I'll never understand. How is it possible some people are able to walk around with such elevated levels and feel absolutely fine and I feel so horrible? I'm to the point where anything over 100 unless I have insulin on board to get me down lower and I feel freakin horrible in every way possible.I just now checked my levels because I feel elevated and I am at 116 aprox 1 and a half after food and shot. I was expecting to be more around 150 but yup I feel high.
I can walk around with blood sugars of 27 and in the 300's. I can tell highs now because my eyes feel like I've got allergies but that's about it I guess everyone's tolerances are different and mine seems to be quite a wide spread.
I agree with the others, a pump is just as much work or maybe more that shots but definitely worth it..... but so is just plain taking care of yourself with shots. I suggest you get the routine of testing, carb counting and taking your insulin and then the pump will make all this more convenient, Remembering to test, carb count and bolus doesn't change when on the pump.
good luck, gettingthat A1c down is doable and well worth the effort. You'll feel better and be ready for that family!:)
i agree with you, gary. Call it tough love or whatever..but this is simply ridiculous. this diesase is NOT going away, it does NOT get better. I can't imagine not taking my insulin, eating a meal without taking my insulin..why, because I can't stand feeling sick and knowing every time my sugars spike 'high' it probably is killing off another cell, nerve, blood vessel, etc..
This disease sucks, yes indeed it does. however, as much as we all hate it, we do have a way to manage it, however difficult and challenging it is. I noted a story I saw on ALS, this man has nothing, he can do nothing but sit by and watch the destruction of his body. We can do something. So, do it!
Good for you for taking the first step towards improving your care! With an A1C of 12 you probably don't feel so good, and I can assure you that you'll end up feeling a lot better with BGs that are in more of a normal range.
First and foremost, you HAVE TO start checking your BG on a regular basis. You cannot get a pump unless you have about 3 months' worth of logs. The primary reason for this is that the doctor cannot help you even figure out what your basal rates are on the pump if you don't have this information. Before going back on the pump last year, I had to improve my logging so that my endocrinologist could have enough data to establish my basal rates. So start there.
A pump alone is not going to improve your A1C. It does not make everything with diabetes magically better. However, if you're dedicated to your care and put in the effort, it can make living with diabetes easier and a bit more normal. It can give you tighter control, but only if you're checking your BGs, reviewing all your data, and making adjustments. It can make things like exercise and eating different foods easier, but only if you pay attention and make the necessary changes with your pump.
If I were you, I would start by doing 3 things:
1. Get on a regular schedule of checking your BG before and after each meal. So, at least 6 times per day. Record this information in a log book. If that doesn't work for you and you have a smartphone, try using an app for recording BG levels (I found this easier personally).
2. Take your insulin as prescribed. If you forget, set an alarm on your cell phone to remind you.
3. Read, "Think Like a Pancreas" and "Pumping Insulin."
The bottom line is that only you can improve your care. The doctor cannot do it for you and your husband can't do it for you. These people can support you, but at the end of the day, you're the one who has to do it. It's up to you.
As your A1C comes down, you're going to probably feel low quite often even when you're not. That's normal, and its just your body adjusting. You will have to get through that part, but if you bring your sugars down gradually, this won't be too bad.
Do this for at least 3 months and then talk with your doctor again about the pump. The most important thing about using a pump is that you HAVE TO CHECK YOUR BGs frequently. Because you don't have any long-acting insulin in your system, it's very easy to slip into DKA if you experience some sort of pump failure. Only people who regularly check their BGs are candidates for a pump. In addition, pumping takes A LOT of work. Initially, you will be spending way more time testing in an effort to figure out your basal rates.
why would you NOT take your diabetes seriously? I do not understand this and then we wonder why Endos, CDEs, etc...get frustrated. No one can manage this but YOU. Seriously, how could anyone 'forget' to take their insulin. I mean, i've started eating and went..oopsss, forgot to take my insulin, but took it right away when I realized it. If we, as type 1's, don't take this seriously, how can we expect our health care providers to be supportive and care for us. I don't care what your age is, we ALL KNOW the complications of this disease. I can't understand not taking one's insulin...yeah, maybe you get used to high blood sugars, but we all know what that is doing to our bodies and don't tell me you don't feel like crap. I've had very, very high blood sugars too, we all have, DKA levels, and it felt horrible! And you're probably throwing ketones all day long too. If you eat, you take insulin, period. You take your basal insulins as instructed, period!
Get yourself in check and take care of your disease. No, not for your husband, for yourself and your quality of life and longevity.
For me anyway I went through a far rougher period with it then people even know here. My problem more then anything was I had no idea that basically everything but water can and will raise your glucose. I used to eat sugar free stuff all the time thinking it was no different then diet coke. One day in my early 30's I was on vacation and loaded myself up with all kinds of junk before we left and was literally p***ing every hour for two days straight. I can't even imagine how high my sugars were. I called my mom and told her I noticed tingling in my feet. She called the Dr.s office and they knew it was high sugar but didn't tell me what I needed to do. So I basically starved myself and did extra exercise for two days. I knew it was the carbs. I finally started feeling better but knew my diabetes was overall way out of control. At the time I was on two fixed dosages of NPH only. I was a walking zombie feeling like hell every day. I finally went back to an endo to get me back on track. These day's my tolerence for even slightly elevated sugar is lower then anyone could imagine. I think the only people that can somewhat live in peace with diabetes are those who do not experience the nasty side effects of elevated sugar being the reality is most people more of the time are walking around with elevated levels. There seem to be quite a few of them but if you were sensitive like me there would be no way in hell you'd ever be able to skip a shot or you'd be beyond miserable. I'd love to even be able to have a random 150 sugar and feel fine but I don't. This is mainly why I don't test often. I pretty much know whats going on much of the time. Sometimes I screw up but I refuse to check my sugar all day long.
Not following how this relates to Kaytea's topic.
i don't see a problem with Gary's post...he's sharing his experiences and story, which is what we all do on here.
he hijacks threads ALL THE TIME.
Sooooo I'm not the only one that noticed that huh?????
Oh sooo true. I sooo agree with u!
36 years of this and I can still forget to take my insulin. Just a small change in routine will through everything off.