Replies to This Discussion

Permalink Reply by Laura S. on June 1, 2011 at 8:04pm

RE: Graves I was going to a terrible Endo. He thought it was anxiety and threw me on a Beta Blocker which made me sick. He also wrote notes on my lab report slips saying things like "I dont know what you think you are learning on the Internet but you are stupid and no one can learn anything there...." (I was researching what might be wrong with me).
Two famous diabetes authors did an Internet column based on this guy and my story.
They called it Dr. Dumb. We had a lot of people write in expressing similar situations.
Anyway, next Endo went with my idea and tested for Graves.
I did the Radioactive Iodine treatment, but it has not been easy every since.
I tend to either be shaky, hot, lose weight and hoarse, or Cold, Tired, and gain the weight back.
Up twelve pounds, down twelve all the time.
At least I know how to fix it myself, and what I do is skip one pill every week when I feel I dont need them.
Works really well for me, but catching the times when I need to do it is the tricky part.

Permalink Reply by Zoe on June 2, 2011 at 9:11am

Yikes! Sounds like you might win the award for most awful doctor! Sorry you had that experience.

It took me three radioactive treatments to fully kill my thyroid (they had tried supressing it with meds but that didn't work at all and were considering surgery before the last treatment worked so it was months) but after that I was stable on a dose of Synthroid until I got diagnosed with diabetes which threw the dosage off (or maybe it was the weight loss that came with my dx).

I'm sorry you haven't been stabilized, that would drive me crazy! Have you seen a thyroid expert who can maybe figure out why you go up and down? I'm guessing you've tried. But it does sound like you have found a system that works for you. What a pain!

Permalink Reply by Andrew Tumsuden on June 1, 2011 at 6:24pm

Thats commendable and good for you zoe I used to change my doses regardless of what dr said but with a pump its a big gamble and I feel its much safer to rely on some that studied the field for a long time they might not know alot but input is nice to hear

Permalink Reply by Ernie on June 2, 2011 at 5:47pm

MY animas pump and supplies came in this HUGE box back in December and it sat until the first of January when I met with the CDE and I already had done the 3 work books on line at animas and I knew more about the pump then the CDE... I look back now and I must say it has been an awesome six months... I love the pump, I can't believe I waited this long!!!!

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