So I've just come back from the hospital from my clinic appointment and it seems that they want me to go on the pump, or at least explore the possibility.
The thing is, I'm not so sure I want to go on one. I'll be honest and say that I'm not all that clued up on them but I know the basics on how they work, how often to change the cannula etc.
To me though the pump seems as though it may limit my freedom and I can't help but think that multiple daily injections offer me more freedom that a pump ever could. Of course I could be wrong, and that where you lovely people come in..
Can you please tell me of your stories with the pump? Any hang-ups you had about having them and whether they were an issue or not? Do you love it? Do you hate it? Have you been on one and then gone back to daily injections? Any and all information would be greatly appreciated!
I went 35 years on shots. My doctors wanted me to try it, but I always backed off.I Had the same, MOSTLY self-image and day to day living with the pump,reservations about that the OP Has:
I will be always connected..
Everyone will know I am diabetic and what will they think about me?..
I am USED to shots, and
It will be too much !!! the pump and all those supplies require too much training and learning that I do not have time for..
Maybe it will decrease my viability as a romantic partner if people can see immediately that I am wearing something medical and "strange"..
How will I be able to swim, shower and bathe with that "thing "on me all the time?
I found that when once got to the root of my emotional issues, I wanted to use the pump. I had a bad health scare in 2002, pernicious anemeia (b-12 deficiency), and a long hospitalization, and a spiritual re-birth, that changed my way of "let;s hide the diabetes as much as possible" thinking. I started to not care about who knew I was diabetic and focussed on taking the best care of me that was possible. I was not able to do that on MDI. I got tired of carrying around syringes and bottles of insulin ( I never did pens, I am an old-school diabetic, trained in 1968 on one shot of pork insulin;urine glucose analysis with strips). I also had started to bruise and bump up from the shots. I did not like that at all. I was very active and just did not like to carry around all that stuff, and like other posters, I would sometimes forget if I had given myself a bolus.
I would never go back to using shots.: It is Too inconvenient. the pump remembers what I cannot remember, makes it far easier to get stable blood sugars, and it is as concealable as you want it to be. I wear it 24/7 the only times I go longterm untherered is when I go day-long swimming, boating, or canoeing (my MM pump is not waterproof) . No problems at all with wearing it ( I too hide it in the bra, If people see it on my belt or pants, they ususlly oay no attention, and if they do , I kindly tell them what it is. I never had any problem with being rejected because I was diabetic or wore a opump.. If men do not"choose'; me to date because I wear a pump, then they are not anybody I would want to be around anyway....And the boyfriend at the time I changed from injections to a pump had no problem with it.
Yes, the pump learning curve is long; there IS a LOT to learn and read and much trial and error in setting bvasals, etc, and learning hw to take advantage of all the oumno's features.. I never did dual or square-wave until I had beenon the pump for 3 years... but my blood glucoses sare much easier to stabilize, I have freedom to sleep in and eat when I want, even skip meals. Never did that on injections, even with Lantus.. I found it had a slight peak that I had to eat for.. and I just do not at all miss MDI.. I love not geting the shot "lumpy bumpies".
The Only down side to the pump is that you have to make sure the infusion set is intact and functioning at all times... You can creep up very high very quickly if you are not getting any of that short acting insulin.. so you have to watch it and make sure all is well. Think about choosing a pump. I do not think you will regret it. I don't for a minute.
Type one 43 years.
Hi all I can say for me, I wish I had made the switch to a pump YEARS ago, there is so much freedom and flexibilty with being on a pump, much more so than you can ever have on MDI...but that being said, the pump is a lot of keeping up with, and you have to be dedicated to testing frequently because if things go bad they can go bad QUICKLY. And the pump is not a magic fix, its only as good as the person operating it, and the amount of time and effort they want to put into good control. So while I wish I had done it much sooner, YOU truly have to be ready to want to do it. I LOVE mine, and I dont think I'd ever go back to MDI...however being on a pump is NOT a permanent thing, and if at any time anyone on one wishes to go back to MDI, we certainly can. I say demo a bunch of different ones...see what you like, dont like about them and just be open to the possibilities that i can bring.
I've honestly never had any interest in one for a variety of reasons but understand the more pumps they sell the more money they make so of course the doctors push them. I wouldn't be surprised if they get a piece of the action. Insulin needles are cheap and the profit is not much compared to a pump. I believe they could care less if it is helpful to the patient. To the manufacturer its just a business and nothing more. For that reason alone I would never get one. Also remember all it is is another way to get the insulin in your body.. Yeah you can program your basil to work more pancreas like but lets be real, when you go out to eat at a restaurant and don't know the exact carbs or you get stressed at work or you walk back and forth while your talking on the phone do you really think that precise basil is really gonna do much of anything? I rest my case! If your getting somewhat acceptable control on shots I'd stick with them.
I don't think doctors get all that much more money out of a pump. I think an endo bills to a "level of service" based on how complex the visit is. A "pump installation" might be a "level 4" or "level 5" instead of a "level 3" or "level 4" but that's not a whole bunch of a money for an endo. I think they push them because they get better data from their patients. I suspect they may also see jollier patients? A lot of docs I've encountered in other specialties (surgeons, ER docs, the Anesthesiologist before I had my umbilical hernia fixed was *really* pleased to see I had one, although he didn't want to look at the CGM, which I thought was wierd...) have really been almost more enthusiastic about them?
Every doctor bills to a level of service, your exactly right. Most visits are billed around a level 3...so a pump initally would be billed probably at a level 4...its not THAT much more they get from a pump visit, and that would most likely be just for the initial visit...my CDE see's me for my pump and my initial visit...so my endo doesn't even get any kind of "kick back" me being on a pump because the CDE's bill differently from the Dr's. I too suspect the reasons Endo's push them so much is simply because they do get better data and I really do think they probably give the patient a better level of control than can be acheieved on MDI...not saying you can't have a good level of control on MDI, but I think the pump really tightens up that control, that otherwise you can't really do with MDI. And I think in the long run Endo's want the best possible treatment options with the best possible outcomes...not to say if you choose MDI you wont have good control...its just a tighter level of control that is possible on the pump...its also good for people who are really insulin sensitive like myself...where the difference in being able to much more accurately dose is a huge benefit.
So it's all a conspiracy?
I have found myself having a lot greater control now that I'm not using Lantus and only need to deal with regular insulin. Your statements regarding basal (basil is an herb) rates indicates that you are very unfamiliar with pump therapy.
The OmniPod was invented by a guy who had a daughter diagnosed with T1 and wanted to make pump therapy easier. God bless him and I hope he made a lot of money on the idea.
Tighter control is easier with a pump. I kick myself for not doing it sooner. And whether or not you are stressed at work or pace while you're on the phone doesn't really have anything to do with your basal rates. Basal rates can change due to the season or weather. Your reaction to stress can be more significant or less, we don't all run to the same clock.
Until there's a fix for this condition, we still need development of things that will help make management easier. Attributing everything to profit motive isn't very helpful. I doubt my doctor at a teaching hospital is making bank by suggesting pump therapy to his patients.
Like most here, I really like my pump and never want to go back to shots. That said, doctors sometimes push them because they appear to be a simple solution. It is much less work and responsibility for the doctor. They still get paid for the visit, and the pump company sends a CDE to talk to you instead of the MD. A major downside is that pump supplies can be expensive, and the pump companies aren't always that great to deal with.
Jackie, out of curiosity what pump were you using?
I think it's a mixed bag.
I personally wouldn't want to go back to syringes, but I've known of people who'v used them their whole lives and obtain excellent results.
I've also heard of Doctors being more hesitant to those people because they've found a groove that works, improving something that doesn't need to be improved upon can throw up new issues.
I love not carrying around needles, but I do still feel a sense of freedom when I rip out the infusion set, and the pump isn't suspended or hanging off of any part of me and I can just have a shower or whatever unencumbered.
I suppose I would tell you, if your insurance covers it and it isn't breaking you, then try it, and give it a couple of months to get over the odd sensation of having this prosthetic. As I said, I always kind of feel it there, but absolutely nowhere near as much as in the early days. Once that feeling fades you can enjoy the other end of this argument.
Not carrying around insulin and even limited blood test sticks if you go the extra step over to continuous glucose monitoring.
Pluses and minuses everywhere, but at the end of the day I would enact a cruel and savage revenge on anyone who tried to take mine away. I feel I've earned the right to the lifestyle advantages this now gives me.
A PUMP = FREEDOM. You will never regret having one--believe all of us! Yes, you are attached, but this is 2012 and EVERYONE is attached to email, cell phone, tablets. The pump is minor attaching tech that will improve your life in amazing ways and drastically improve you control. And you can figure out ways to work with it during exercise, and other activities....
I fought it too--being attached freaked me out. After 10 years, I now refer to myself as the "Six Thousand Dollar Woman" (if you get that, you are also older than a 5th grader!)
I wildly encourage you! Go for the the GOLD! You will be very glad you did.
I LOVE THE PUMP & WOULD NEVER GIVE IT UP. AS A MATTER OF FACT WHEN MY MINIMED MALFUNCTIONED & HAD TO BE REPLACED I COULDN'T WAIT TO GET BACK ON IT THE NEXT DAY.JUST GIVE IT A CHANCE & BE PATIENT.DON'T GIVE UP .:)