As a newly diagnosed T1 my low doses of insulin keep me well-seated in denial. I’m taking 7u of Lantus in the morning and my carb:bolus insulin ratio is about 30g:1u. When I’m reading about intensive insulin regimes these figures seem ridiculous!
One endocrinologist has told me these are totally normal for ‘honeymooning’ and another endocrinologist told me they point more to LADA or MODY being likely for me. A diabetes nurse educator told me that it could be an strong sensitivity to insulin and that I could have these low doses for a while and outside of the honeymoon.
Not trying to 'brag' about low insulin requirements, but wondering if there are others out there who started out that low and am interested to know what time frames they had with regards to honeymoon and so on...
I'm two weeks shy of the one year mark from my T1/LADA diagnosis at age 46 and I still need no basal insulin. My I:C ratios were between 1:30 and 1:20 for several months, but recently they've moved to between 1:20 and 1:12, depending upon time of day, time of month, etc. I don't need to correct yet because between the bolus and my tired pancreas the BG always comes down by the 4 hour mark no matter how high it's gotten and I'm afraid trying to correct would just cause serious lows. I think there are a number of us who have similar experiences of very low insulin needs for a while. I hope it lasts as long as possible!
hello a, welcome to the club, so sorry you had to join.
i am also honeymooning, have been since nov 2011. i am also on an I:C ratio of 1:30 and on 4 units of levemir. i also look at the "real" diabetics and think their dosages are crazy high and very scary. i have a real live diabetic friend that i see once a year and this summer was the first time i saw her with both of us having the D. i asked her how much she would have to bolus for my (carb free) salad and she eyed it up (shes a pro 3 years in)and replied, like three units. floored that she would have to bolus for chicken and greens. i just never want to go there but i know im on my way...
one thing i didnt realize at the beginning about peoples dosing was that t2s are usually the ones who have the really high doses since they are insulin resistant.
i live in spain and they just said im t1, no mention of lada or anything so dont know. doesnt really make a difference to me tho, as i know i have to insulinate every day whichever it is!
enjoy the honeymoon!!
All I can recall 29 years plus back ( 1983 ) , that I started out in hospital on 45 u ( I did suffer from a low BG incident ; thank goodness I was in hospital !) Soon back to work , normal activities , a vacation followed in summer of 1983 ..we were cycling a lot ..and my daily requirement was 2 u ( no talk about ratios then ) .I am still sensitive to insulin ( TDD just under 20 ) and not a low carber .Part of a unit less and I end up with higher than I like my meter readings to be ; part of a unit more and I may end up with a low BG ...the challenges of living with diabetes !...and for everyone it will be different.Some require more , some will need less
I see you are from BC ...and welcome to TuD.org from the Shuswap !
You are not abnormal. I am also early days here (aside from when I was pregnant when my insulin requirements soared). Though my early days has lasted for nearly 4 years now.
I take 6-7 units of Humalin in the mornings and 8 Units at night. For a total of 14-15 units a day.
1 unit of insulin drops my BS by about 40 points. I don't need to bolus for protein (usually) and my typical dose of humalog per meal is 0 - 2 units. 1 unit of insulin for about 20-30 g of carbs.
However, if I dose wrongly (or don't take insulin before the carbs) my blood sugars go far higher than they used to, so I guess things are very slowly deteriorating.
I am just grateful I can currently manage things relatively easily... and hoping it will last a good deal longer. However, it does make me feel like I am "cheating" or "faking it" as far as considering myself to be diabetic. Unlike "real diabetics" who have a much harder time.....
No matter what kind of diabetic you are, it's still hard. No you're not faking it at all. Hope everything stays easy for as long as possible.
Thanks for all this info about your experience.. I'm wondering when in your timeline with diabetes you became pregnant? It's hard to believe my endo when she suggests there is no evidence to suggest that pregnancy, despite it's inherent increase in insulin needs, would halt the honeymooning process I'm currently 'enjoying'. Sounds like you experienced just that, though. That's great.
Very delayed response here:
Actually the diabetes was diagnosed very early in the first pregnancy. Failed an OGTT done soon after I found I was pregnant and on insulin by 3 months.
This is not gestational as it was detected so early.... after first pregnancy I continued insulin. Second pregnancy 2 years and 5 months after first one.
Yes, I agree that the diabetes honeymoon was not halted by the pregnancies. There has been a very very slow progression, despite the massive insulin requirements needed by second pregnancy (over 100 units/day with low carb), but now post pregnancy I use less than 20 units a day.
I typically find I need more basal than bolus. I can't get numbers below 100 without basal, even though my post eating doesn't go terribly high.
Thanks for responding! It's always a comfort to hear a 'real life' example that supports the 'science' doctors/books offer. Minus the pregnancies, my situation seems similar - I also need more basal than bolus and a year after diagnosis/starting insulin I use about 10 units a day (moderately low carb) with no observable progression out of the 'honeymoon' at this point.
Sounds normal to me. Diagnosed LADA 2.5 years ago, insulin since March. Only needing 2u basal daily; bolus ratios range from 1:12 at breakfast to 1:30 at lunch. And like Shawnmarie, I don't correct yet, as my highs seem to always self-correct to 75-100 within a couple of hours.
I assume this is still honeymooning. But the endo said that it's likely a bit of insulin sensitivity also.
Pretty much the same thing I went through 27 years ago. I think there is more information about why newly diagnosed T1s might be going through a honeymoon period which may have ramifications down the road, but I'm not sure how the information actually affects your treatment options in the short term.
My "honeymoon" lasted a few years, well past the two years that my endocrinologist predicted it would last. There are a lot of lifestyle factors that will affect your insulin dosing, so things like increased activity level, increased lean body mass, decreased carb intake, so on, can work together to keep your insulin requirements at a minimum as you start to see a decrease in beta cell function. Some diabetics find that, even though they see an increase in insuin requirements, their insulin dosing becomes more predictable as they become more reliant on their exogenous source.
Really, the important thing is to stay on top of your insulin requirements at all times, whether they change slowly, quickly, or barely. It's nice to have extremely low requirements. I remember having to make very few lifestyle changes, but my extended honeymoon also started me off on years of bad habits based on unrealistic expectations about how much work it would take to manage my condition.
Everyone's diabetes is different. I don't think there is much in the way of "typical" insulin requirements, whether you're honeymooning or not. You need the insulin that you need. So many things affect exactly how much insulin your body absorbs. Remember that in non T1s, the insulin is dumped directly into the bloodstream. But when you take insulin via injection or through a pump, you're injecting it subcutaneously, and this then has to be absorbed via the fat cells.
We are all different, and most of us have variations in terms of how well/fast we absorb insulin, which in turn impacts insulin requirements. In addition, factors such as weather (in heat you need less insulin), sleep patterns, the secretion of other hormones, physical activity, diet, and many other things impact how much insulin you need relative to the next person.
I always say to just focus on what your body needs to achieve normal BGs. That's the right amount of insulin.
I wish I could remember if I had a honeymoon phase or not. Diagnosed in 1986 and I was put on quite a lot of insulin straight away. I ended up being hungry all the time. So a good many years of this I figured things out myself. I discovered I don't need that much insuliin at all. Compared to you it may seem like a lot. Usually take 1unit of Novo for bfast, 2-3 for lunch, then 4 Novo at teatime. 10 Lantus at bedtime. Before this I was on between 10-16 for each meal, ridiculous. There is a lot more info out there now and hopefully you will be able to prolong the honeymoon phase. Good luck, oh yeah, whenever I decide to excerise, which isn't often, I become more sensitive to insulin.