Hello everyone. I am new to TuDiabetes and wanted to share my story with you and find out if anyone has experienced something similar to me. I was diagnosed with diabetes in February this year and so far have been managing my my symptoms with diet and exercise. I am 25, have a history of type two diabetes in my family and also autoimmune disorders. I'm quite tall and very slim, so don't really fit into the type 2 box but I still produce insulin but the level I produce is a the lower end of 'normal' - so I don't really fit into the type 1 box either. My endo tells me I am a "medical mystery" because while I met diagnostic criteria for diabetes twice on glucose tolerance tests, I do not have the beta cell antibodies (which most of you on here seem to have) - my doctor tells me that this can occur in 10% of people? Does anyone on here have type 1.5 but no antibodies too?
My blood sugar levels certainly go high if I eat the wrong types of food, but since changing to a low GI diet this has been more under control. The main problem I experience each day are hypos - I seem to by quite sensitive to drops in my blood sugar levels and get symptomatic before I most people do - when my blood sugar levels are between 4 and 5. If I don't eat every 1.5 to 2 hours I start to get symptomatic, which has been really difficult to manage when I am at work when I can't always get access to food when I need to.
I am going to see my endo again in November to see if anything has changed. I find it terrifying to think that I might be getting sicker and find it frustrating that there is nothing I can do to stop this process from occurring. From reading some of the forums on here it seems going on insulin early can help, but then I wonder why my endo hasn't pushed for me to do this - she mentioned it when I was first diagnosed and it really upset and shocked me, so maybe she thought we should wait? My dietician has mentioned going on metformin which may give me more time between meals.. but nothing has really progressed there either. I have also hear that metformin can make you lose weight? Is this right? I am quite tall and very slim and can't really afford to lose any more weight - I've lost 5 kilos already this year after having changed my diet and starting to exercise.
Another thing that has cropped up this year has been my doctors telling me that I should try to have children as soon as I can, as by doing so pregnancy should not dramatically make me sicker. I've been told there is a good chance i will be completely insulin dependent once I have children. This has been a big shock to me and I'm finding it another thing that I am having to adjust to. I feel like the plans I had for my career and next few years of my life have been turned upside down since my diagnosis.
Without having the antibodies I'm not sure whether I do really fit in the category for type 1.5... but then i don't know where else I fit and who I can talk to get some support with all of these changes. Has anyone out there experienced something similar to me? Or have any thoughts on what I could be doing now that will help me?