So tired and burnt out, just need support
I just got off the phone with our new insurance company and her endo. I consider myself a capable, high functiong adult with plenty of resources. Today I'm feeling so frustrated and sad and burnt out with all that it takes to manage this disease with/for my child.
Aside from the grief for my daughter and her chronic illness I'm tired from struggling with her (she's a teen.) She's resistent to doing what needs to be done to keep herpself healthy in the long run and controlling her blood sugars (doesn't bolus when she should, doesn't check her BG etc. Then there's the battling/advocating/calling/figuring out how to navigate all that needs to be navigated to get her what she needs at school, after school activities, insurance/medical needs.
Finanically I'm fortunate enough to have coverage for her and a decent paying job. I'm a single parent, struggling, always, to make ends meet and the constant changes/challenges nuances are difficult to keep up with.
I'm venting more than anything. We are incredibly blessed and fortunate in so many ways. I just don't have a spouse or signficant other to talk to. There's no one in my life that understands the toll managing all this takes, on a daily basis. I try to be very careful never to show or say anything about how this affects me to my daughter. I'm not the person living with T1, just the parent. Seems trivial to even go down the path of feeling sorry for myself or sad at all.
I wish we living in a bigger town, with more access to support options and I had more time in my day/life to attend to all this stuff without having to squeeze it into breaks or lunch hours etc.
Thanks for listening - it helps just to type it all out.
Onward and upward!!
Dana
Replies to This Discussion
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Permalink Reply by Omni dad on -
My son was diagnosed on 12/1/09 and it has been a life changing year for us. This site has been a God send for me and has helped my family come a long way. My son is 14 and very active in sports. 14 is tough enough now a days for both teen and parent but add T1 to it and its a bit more to contend with. I think the key for us has been to focus on the good things we have in life and the blessings the Lord has given us. There will be tough times but they will pass. God bless you and your family.
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Permalink Reply by Jeannine on
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We are just coming up on a year diagnosis tomorrow on New Years Eve! Our daughter is 13! She is also very active in sports and its' so tough! But know that you are not alone and that God only gives us what he thinks we can handle! It is tough though-- sometimes I just want to know is she acting like this cause she is 13? Is this Type 1 or what is it? As for sports we have been able to work through numbers with G2 Gatorade! Not that it's full proof!
Take care -- God bless you
Jeannine
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Permalink Reply by dtessler on
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Thank you everyone, for your words of support and encouragement. It was another very rough night last night. My daughter was at 550 and very out of control behaviorally (that's pretty rare, even for her.) I was able to stay calm and supportive while she brought her BG under control Still felt a bit sad last night but it does really help to read (and re-read) all your posts.
Thanks - Dana -
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Permalink Reply by Peggy on -
Hang in there.. there are good and bad days just like for most people.. it's hard harder with this on top of everything. My 14 year old is doing okay with his diabetes but just flunked 4 classes.. it's always something..
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Permalink Reply by Lynda Marie on -
My daughter was diagnosed at 17 and squeaked by at graduation. Diabetes gives them so many things to deal with ... and even when they seem they're great, we can't entirely know what they are feeling. The days do come and go, but at the time ... it seems pretty frustrating. You're not alone!
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Permalink Reply by Lori on -
I know this post is old but I just wanted to say I sorta understand what you are going through. I'm not a single parent but my husband works second shift and I work during the day. We usually don't see each other much, or in the morning, or as he's leaving. At times, I feel like a single parent, because I manage my daughters Diabetes majority of the time. It's tough and heart wrenching and sometimes I wish life was more simple. My daughter is 10, not a teen yet, but starting this pre-teen drama. So being diabetic on top of that isn't very fun. I hope things are better for you now, I try to just take one day at a time and think to myself that the next day is gong to be better. :)
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Permalink Reply by Tita on -
Hi Dana!
Iam a grandmother of a 2 years Type I girl, my daughter lives in the states with her husband and her child... Iam in Puerto Rico...really far. I'm her support through telephone every day and sometimes nights. I know for experience this is not an easy condition...I've been there with them for months and has struggled too. Although my grandchild is still a baby somedays she is tired and do not want them to poke her finger or the needles in her butt or nowhere. And the time of eating is not easy...Sometimes she ask for a cookie and is not easy telling her no, it makes our heart srink...But we have to do it...Our confidence is in the Lord and doing what we have to do. My daughter do not work outside the house, all her days are for her, and her home. Her dady works but anyways help her with the things around their child...
I feel empathy with you, there are days that my daughter feels sooo lonely and far!!!
We are praying and waiting in the Lord...men says no but for Him there is nothing impossible...I know He'll guide Science find the cure.
I pray for everyone going through this and know for you and your daughter. This is a brief of what could be when my grandchild grows up to that age if she is still in this.
Big Hug and new strenght come to you...You are not allone!!! Tita
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Permalink Reply by pj on -
I believe that the strength we have to deal with this comes only from God too. I do think, though, that if He doesn't lift the burden He will definitely give us the strentgh to bear it. And it is truly possible to live a happy, healthy and productive life with Type 1.
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Permalink Reply by Jeannine on
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Please know that ALL of us feel the same way from time to time! I know sometimes I am so sick of it! It never stops! Our daughter was diagnosed one year ago on New Years Eve! Simetimes it feels like a lifetime ago-- other times it seems like just yesturday! But know that you are not alone and YOU NEED TO VENT!!!!!!!!! I'll keep you in our prayers!
Jeannine
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