Something is clearly wrong with me......
Over the last few days I started testing my sugar levels again and In general I just don't feel well and haven't for years. It goes way beyond feeling tired and lethargy. Its just very disturbing to say the least. Kind of equivalent to having a severe cold. The catch is this was documented at a 150 sugar. I was at work the other day and felt a little low which I apparently wasn't. I had 10 carb grams and felt the spike instantly like someone injected poison into my body. I got home and checked my level and was a whopping 150. I get these symtoms often and though its above normal I feel like death from it. I also just read something interesting about Bret Michaels that when he becomes intimate he boosts his level up to 200 which he claims increases his stamina. At 150 I'm ready to jump out of my own body. How could we have the same disease? I've yet to come in contact with any other diabetic that goes through what I do especially at the levels I do. I feel like I have nowhere to turn as we all know its virtually impossible to keep the sugars fluctuating in the normal range. I really need help but I don't know who to call or what to do anymore? My body knows where the levels are supposed to be and doesn't like it any other way. This is just beyond depressing. Are you listening GOD!
Replies to This Discussion
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Permalink Reply by Janny on -
r u type I or ii? inject insulin or a pump?
and...hAve you tried checking w/another meter?
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Permalink Reply by Marie B on -
Hi Gary, glad to see you here with us again. I was just looking at your page, and there was our angel Saundra Barragan reaching out to you. She would be so happy to hear that you are testing again! I'm sorry you're feeling like this most of the time. Sometimes when you're really out of control, a reading of 200 or so doesn't make you feel bad, so perhaps (I hope) your control is much better? when did you have that a1c of 8.5? anyway, we are all so different in how the d treats us. I've had it for 42 years. Please come and hang out with us here anytime you want - we are listening!
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Permalink Reply by Johnben. on -
Gary, two things I don't understand. 1/ Don't you test every day at least 5 times? 2/ Don't you carry something in your pocket that is sugary so when you feel low you take that to feel better> Here is another one..... Don't you carry a tester with you to work?
JOHNBEN.
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Permalink Reply by Cathy Jacobson on
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Yep something is wrong, you arent' taking care of yourself as you should be. Our bodies change, I could have the same disease as you, but unless we are clones, it will treat us differently. IF you don't have a team of medical/nutritional people whom you are working with to control this, and share your findings, you need to get one of those soon. That's my recommendation. No matter how good we are at looking up stuff, and taking care of ourselves, a team of professionals whom you can work with is a great asset.
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Permalink Reply by Kristin on -
Gary, have you been tested for other autoimmune conditions (that often come as a package deal with type 1)?
It might be worth asking... we always assume that we are feeling lousy because of our blood sugar (actually many doctors assume the same). As Carrp suggested, get your thyroid checked and test for Celiac.
And keep testing! :) The more info the better.
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Permalink Reply by Gary on -
Guys,
People don't believe me that I can feel the sugars and live without testing. My last AIC was 6.5 and I kid you not I took no tests what so ever. I am not bragging here but I can probably do as good as many that test all day long just based on feeling. I admit I screw up from time to time but never been hospitalized for lows or highs. My body just hates being out of normal range and thats the core of the problem. I just got to a point where I said to myself even testing I will still get sugars ranging from 60 to 300 so why add pain to my fingers, have an additional expense when their gonna fluctuate and I will feel like crap anyway. Its highly unlikely I have another condition as when I get a good sugar day which hasn't been happening too much lately I generally feel much better. I've got many personal issues besides the hell of diabetes and when the sugars run haywire it just manifests depression. As a kid I never thought the diabetes would have ended up being so devastating to live with as it turned out. I hate this F******G disease! I really thought by now it would have been cured. I give myself another few years and if nothing looks like it will breakthrough I'll just have myself committed.
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Permalink Reply by carrp12000 on -
One of the reasons you feel so poorly is beacuse you dont check. Your A1C being 6.5 is fine, but the rollar coaster of 65-300 makes you feel poorly. Period. causes depression. Screws up your natural hormones, which makes you feel worse.
You just said that when you get a good blood sugar day you feel better, but when its poor you feel like s--t. All the more reason to check....
Diabetes f--king sucks. Im with you 100%. 25 years of it. 266 office visits in my life. 6000 dollars a year of out of pocket expenses in addition to insurance.
But, you have no choice. Do you have insurance? You need a pump. The way I felt improved so much after I stated on a pump... Ive got an extra. We can figure away to let you try it.
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Permalink Reply by Gary on
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Well here is one for ya. I woke up this morning feeling relatively ok. Didn't test. Took my usual 8 units of humalog. I generally wait at least 40 minutes to eat even if my level is good to avoid the sugar spike. For some reason in the morning I need to wait. Anyway I started feeling the drop at about 50 minutes after the injection. I initially ate roughly 50 grams of carbs as one unit usually covers about 8 grams for me. At 1hr 30 min post shot I still felt low had an orange which is another 20 grams say. Ten minutes later my lips felt numb and still felt low. I decided f*** this I'll just check my sugar expecting to see around 60-70. The meter read 99. At that point being it was a little over 1.5 hrs post shot I figured I needed more carbs which I ate another 20 grams. After all that I finally felt better. When I say things like 60-300 I am generalizing as for some these numbers are real on a regular basis. Yes I can have days like that but thats not to say I would feel any worse then going from 70 to 180. My point is at least my body doesn't do well with the fluctuations which no matter what you do is part of the condition. Heck even non-diabetics can fluctuate within a 50 point range. My guess is if we could get that back none or very little of this would be going on. I don't have insurance and I don't want a pump. I will sometimes take 10 to 12 shots a day if I have to. Out of all things I hate about diabetes thats the only one that doesn't bother me much. In fact I find shaving more annoying.
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Permalink Reply by Gerri on -
That's the case for testing right there. You may have woken up low & taking the usual 8 units was too much from where you started out. Instead of feeding the insulin to feel better, you could have taken a different dose if you knew what your fasting was.
99 is great, so why eat another 20 grams? Since you're feeling low when you're not & raising BG when it doesn't need to be, you're probably having highs that you're not correcting. So, you can't really feel the highs or lows.
No one's body feels good with fluctuations. Going from 70 to 180 isn't good either.
Please reconsider testing. You're shooting in the dark & it's making you feel badly.
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Permalink Reply by Gary on
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If I woke up low there is no way it would have taken nearly an hour after injection for me to feel that. The reason I had to eat more carbs is the Humalog was still lowering and likely if I ate nothing I probably would have dropped another 30 or so points. Why I didn't feel well at 99 is startling to me??? I still can't believe at this point and time they haven't been able to get a non-invasive continues glucose meter aka like the (glucowatch) to the public. That in itself would be massively helpful. I hope Dr Zion and Company put all these money sucking bloodstick and Insulin manufacterers looking for new jobs..
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Permalink Reply by Gerri on
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Yea, but you don't know for sure without testing. You know how it goes that if your BG is high, normal starts to feel low. Or, if we're low too often we lose the ability to feel lows. I had a day recently where I was low almost the whole day & felt great. Scared me. Also scared me that I couldn't get BG up.
"My body just hates being out of normal range and thats the core of the problem." The only way to help avoid this is by testing & correcting. Well, until there is a non-invasive CGM! How great would that be?
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Permalink Reply by Gary on
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Well I don't know much about this company but someone posted this recently on the islet forum. Something to the effect of 2011 release.
http://www.solianis.com/cms/home.phtml
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