My daughter was diagnosed last year at age 11. As an infant, I had issues breastfeeding her...she didn't latch properly and despite 6 weeks of efforts; pumping, fingerfeeding breast milk, and the complication of new-mom-dom, i gave up. Originally she took regular formula, but due to constipation, and upset tummy, her pediatrician switched her to soy formula, which she seemed to tolerate well, from what i can remember. I am now reading that there may be a link between soy and T1D. Any of you out there either had soy formula as a baby, or gave it to your infants? Just curious.
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Permalink Reply by Natalie ._c- on April 15, 2012 at 10:04am Well, I just don't think there is enough known about what triggers T1 to give you a definitive answer. There are plenty of people who will say soy was the better choice because cow's milk has been implicated in T1, and there in a nutshell, you have the a small picture of the controversy. There are others as well.
So the most important thing is NOT to blame yourself, because you did what worked best for your child -- she DID need to get fed! And if the scientists have exactly NO idea what really triggers T1, then you certainly don't either. So all you can do at this point is accept the reality -- you can't change it and you didn't cause it, and the most important thing is to forge ahead and create the best possible life for your child.
And PS. I fed my son soy formula with no problems -- but I don't think he has the genetics for T1, either -- he's now 38 and going strong.
Permalink Reply by christy on April 15, 2012 at 12:08pm I agree with Natalie. I don't think anyone can say for certain WHAT causes T1. There maybe many different contributing factors and u get enough of them in a certain sequence, or exposed to something, or have some kind of illness and bam you develop T1. I just don't think there is any ONE cause. And like Natalie said you did what you needed to do for your child at the time. The blame game is a waist of time, so don't do it. Just learn all you can about D and help your daughter develop good habits for managing this, and just encourage her that D doesn't have to rob her of life experiences. With good control she can pretty much go on to do anything she sets her mind to.
Permalink Reply by garidan on April 15, 2012 at 12:14pm My daughter got type 1 when she was 14 months old, never used soy, and I don't think anything could have effects after 11 years.
Somebody said, shit happens ;-)
Permalink Reply by sherrie on April 16, 2012 at 7:37am Facinating question. I don't read into your post as you feel guilty but more wouldn't it be great to have a reason. I am 40 and just diagnosed as type 1.5, I often wonder and would love to survey those with type 1.5 to find out how many were abused as children. My liver seems to be stuck in "fight or flight" mode. But I also was given Soy formula. As the others said no one really knows what causes different types of diabeties but wouldn't it be great to have a reason to link it to. Maybe then we would be that much closer to a cure.
Permalink Reply by Shawnmarie on April 16, 2012 at 9:52am I wonder whether it's more of a correlation connection rather than a causation connection. Perhaps there was already something going on with your daughter's body that made her intolerant to cow's milk and that same "something" is what caused the T1.
That's an interesting take on it. I totally agree that the stage was already set.
Thanks all. Natalie and Christy, not guilt so much as curious about any connections. I don't waste my time worrying about this. It is what it is. Syd was dealt this card and we are doing whatever it takes to make her life the most healthy it can be. She is doing fantastic and i'm soooo proud of her. I'm not feeling guilty....i did the best i could with the information i had at the time. It makes no sense to beat myself up and is unproductive to try to lay blame. Sherrie, thanks, you got my meaning:)
Permalink Reply by Shawnmarie on April 16, 2012 at 12:49pm I also read your question in the way Sherrie did. I sometimes wonder about my own T1 just out of curiousity as well.
how strange...i thought i replied to your first message. Anyway, I agree that there was probably something going on in her body--she obviously inherited the predisposition and from what i've read, this may have been years in the making before it surfaced. I find the human body fascinating and it interests me to talk about the why's...just to understand more of how the body works.
Permalink Reply by Shawnmarie on April 16, 2012 at 2:51pm You did reply to my earlier comment. I was just confirming that I didn't think you were guilt-tripping yourself. :-)
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