Let me just comment on this finding. This wiki reference on the rate of occurrence is from a briefing, which suggests a high occurence of the symptoms of Exocrine Pancreatic Insufficiency. The symptoms of this are more typically what I would term stomach dumping, where food just wooshes through you and you have diarrhea. What is not apparent is why diabetics might have disrupted enzyme production. One cause is perhaps gastroparesis, but another is what I would call messed up signaling. If you look, the drugs byetta and smylin are both used to alter digestion and enzyme production. Smylin is a synthetic form of human amylin and in fact a key effect of amylin is to "The overall effect to slow the rate of appearance (Ra) from the meal is mediated via a coordinate reduction of food intake, slowing of gastric emptying, inhibition of digestive secretion [gastric acid, pancreatic enzymes, and bile ejection]."
You may find that Smylin is helpful. You might describe your symptoms to your doctor and see what he things. If you don't mention digestive problems to your doctor, he won't know about them and won't help you.
You know your description of symptoms actually matches gastroparesis. The "cheap" tests for gastroparesis can fail to observe the problem and you can be told you don't have gastroparesis despite having a bad case of it. Dr. B suggests that the R-R study is most effective at diagnosing gastroparesis, did you have that study? He also suggests that digestive enzymes can, Dr. B actually recommends Super Papaya Enzyme Plus. While you only mentioned discomfort, having digestive problems like this can play havoc with your blood sugar control, having you meal finally digest hours after your bolus wears off is a recipe for a hypo followed by a high.
There are others who have struggled with this over ing the gastroparesis group, perhaps you could share some of your experiences over there.
My 9 year old daughter has stomach pains a lot, I mean A LOT and yet her diabetes clinic says that this can't be related to her diabetes because her numbers don't stay crazy high for long periods of time, and that she has not had diabetes long enough for it to affect her like that. I find this answer to be a bunch of bull because she is not sick in any other way. I feel so helpless. All I can do is keep letting them know about it since they are the top Diabetes place for several states around.
Hi CBuckner. The symptoms described by the OP can also be the symptoms of Celiac Disease. Diabetes and Celiac often go together (I have Type 1 and Celiac); it might be worth getting the test for your daughter. Sometimes the test for Celiac shows a false negative, at which time one can go gluten free for a couple of weeks to see how that feels. One should not go gluten free before taking the test, however, because then you will definitely have a negative whether or not you actually have Celiac. Best luck.
I second Trudy's Idea with Celiac Disease.
If Celiac can be ruled out then the "Pancreatic Enzyme Deficiency" that has been mentioned here is another candidate. Is sounds dramatic but the deficiency can be treated with one pill of encymes for every meal. These encymes will help to break up the food and the process of digestion will normalize again. T1 diabetes is an autoimmune disease that attacks the beta cells and their blood vessels. The theory is that these permanent attacks are stressing the pancreas so that over time an insufficient amount of encymes is produced for the digestion.