Replies to This Discussion

Permalink Reply by pancreaswanted on November 19, 2012 at 2:52pm

uggh, why cant it just be true and hppen right now!?! i want to eat chocolate without limits, damn it!!

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Permalink Reply by Heather Nicole on November 19, 2012 at 6:44pm

So did they find a cure? Technically

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Permalink Reply by Sam on November 20, 2012 at 12:17am

Technically, no. Although, Dr. Faustman's research is some of the most promising ever. Like most genius visionaries, her work is highly criticized-- but I hope she may be on the right track. I've tried to sign up for her trials, haven't found the right track to do so appearantly... but at least she's working hard on the matter

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Permalink Reply by gigem99 on November 22, 2012 at 6:45am

I enrolled in this trial in 2009 --- they've drawn several gallons of blood from me, I think. Another poster here - Brunetta - is also in the trial.

i have no idea why you haven't been able to get in the trial....it was really easy for me, and I know they are still enrolling participants. If I had to use a single word to describe Dr. Faustman, it would be 'delightful'.

She is passionate about the trial, and she truly believes she can fix our immune systems. I talked to her for almost an hour when I first went. I will always regret not taking a tape recorder.

I am skeptical, but hopeful at the same time. When I enrolled, I was living just outside of Boston. I've since moved back home to Colorado, and it's a little tougher to get back east. I had an appt. at the lab in Oct, but I had to reschedule for next summer.

Go back to her website and see if you can sign up.

Tom

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Permalink Reply by Capin101 on November 20, 2012 at 5:50am

I think this article certainly is positive, but this is the very early stages of Dr. Faustman's research. In her latest study that was just published she admitted 6 patients, 2 recieved BCG and 4 recieved a placebo. She is just trying to figure out if her ideas are even plausible in people. Her next step is likely to try to determine some type of dosing that may be reasonable or adequate and what the risk are. This will involve many volunteers and a good length of time to get enough data.

Doctors are not supposed to prescribe a drug for use in a way that has not been approved by the FDA, or a TB vaccine being used to treat T1D. Her team needs to get a waiver to use the drug for research purposes in a non-approved way. Also, if she is successful and can prove that a BCG treatment will help T1D (maybe not even cure). Then she will have to work with another entitiy to provide all the necessary tests for FDA approval. This is still an early stage of the research, but these results show some promise.

That being said I have wondered if I can go to Mexico and buy BCG over the counter and do my own tests?

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Permalink Reply by gigem99 on November 22, 2012 at 6:59am

There's a guy on another forum I visit that got BCG in Europe. He took massive doses, but I don't think it's done much for him. I think he's kind of crazy, though. I wouldn't do what he's done. He had some problems. I prefer doing it under supervision.

Tom

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Permalink Reply by garidan on November 23, 2012 at 10:36pm

I think those positive outcomes where very small, nothing to prompt for a cure ....

I find this other article more toward a cure:
http://www.sciencedaily.com/releases/2012/11/121118141516.htm

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Permalink Reply by gigem99 on November 24, 2012 at 4:38pm

Thanks for that link. One of the things I found interesting in that article was a link from 2 1/2 years ago that - again - claims a cure in mice. That link is here: curing mice.

My gosh... sometimes I wish I was a mouse.

Tom

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Permalink Reply by garidan on November 24, 2012 at 11:03pm

Yes, but now they are in trial phase 1-2 on humans, they used nanoparticles on mouses just as first test and that was good.

Anyway I agree, mouse is not a different kind of man ;-)

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