National Public Radio ran a story today on Morning Edition about how social media has brought diabetics together into helpful communities (GO TU!!!) It ALSO addressed how our discussions (but more those bloggers the drug companies pay) have influenced care. Take a look:
Honestly, I just think it is nice when any news outlet recognizes us. I tried to get the local channels to run stories in November and was told that they "run stories all the stime." Living here for nearly 40 years I only remember one story--she was VERY wealthy and had made a LOT of contributions...When she hit the 50 diaveresary she was featured on all local channels.
Any publicity is great and NPR has lots of very thoughtful listeners.
I actually didn't see any "us" in the article.
I think that the problem with this is sort of like the problem in history, in that people look for "heroes" to frame the narrative which leaves out the "us" factor of the forces that motivate and enable heroes. I know Natalie has mentioned listservs from back in the dark ages of the internet and I suspect that's probably where the notion of message boards grew from. Unfortunately, the explosion of other variants of social media makes it hard to explain the differences succinctly enough for a newsmedia timeframe so they look to heroes to explain why things are so fabulous here online, while it leaves out the "us" folks on message boards who offer something a bit different but, perhaps, more responsive for our community. I like the fact that there are people with blogs pulling money into the community like the donation matching for the Big Blue Test helping my preferred hangout here build it's "brand" but I don't begrudge someone else who's able to succeed in their own brand building to market a blog and turn it into support for what they are doing. I suppose there could be some sort of conflict of interest with the funding of people talking about products but I have usually felt that most people reviewing products are trying to be very honest about the products they are writing about, even when the product may be considered to be themselves!