Hello, I've been looking for this group to get some understanding of what happened to my son john in september of this year. He went into severe DKA and was hours from death but didnt realize or understand what in the world was happening for 24hours. John had been at the ER at the same hospital less than 24 hours prior to this second visit. they didnt check any of the symptoms the day before. Since he is just married since August I've not been able to keep up as well with his diabetes in the past year untill this happened and now I'm seriously trying to not be to much of a nagging mother. The thought of loosing john really tugs at me alot since this happened. Didn't get much training on what was going on with him through all of this but after 4 days they sent him home. ICU 3 days then a regular room for part of a day. Sounds to short after such a major thing happening to him. About a week after john was put on insulin and sent home he started having issues with feeling his feet and burning/feet hurting very bad and unbareable pain. after 3 weeks this pain was getting very bad so I told his wife to take him back to the same ER. She brought him and she asked them about neuropothy and they treated her like she was stupid and said he was still dehydrated so they sent him home in alot of pain and papers about how to hydrate himself more. The funny thing is they had papers about neuropothy there to. John went home tried to drink more and deal with the pain. Wasnt working and feet legs back were all hurting worse after 2 days. Packed him up and met him and wife at a different hospital hoping to get some answers. Its been almost 4 weeks and john is on tramodol and Gabapentin 300mg morning and night. No insurence but finally got him in a free clinic. the day we walked in they were shocked to see what he was going through and we are trying to figure things out. Life is so frustrating for him and his wife rite now and he seems to be trying to get things good with the blood sugars. I dont want to miss something importent that might be going on and He cant just go to the clinic when ever and get test done to see whats still going on. Gave up on Hosptial after the last 3 trips there. Johns sugars are normal now but I dont know if there is still issues from the DKA going on? As a parent and what I see I would think the answer is yes. his potassum was still low when they said he was still dehydrated. we need answers and prayers that john doesnt have anything major going on that will do any damage to his organs ect.
I have very little understanding about this and I'm sorry its such a long story but trying to understand. Knowledge helps us prevent bad things from getting worse. thanks for your time. Kimberly
It has been nice to read about other peoples experiences of a DKA, as I have been feeing rather alone and cut off regarding the matter.
I have just spent a week at home following two weeks in ICU and a four day DKA induced coma. I had a little vomiting and thought it was a virus, however I awoke post-coma in the critical care unit covered in bruises and full of tubes. It had taken 16litres+ of fluids to stabilise me and apparently I am the second worst DKA they have had admitted in the last 20 years. In fact I managed to meet the mother of the other chap, who was one of my nurses!
I've been on a mostly liquid diet and am struggling to walk with all the bed rest, I am recuperating very slowly but am doing well and am cheerful enough.
One thing that has concerned me is that I am suffering from pins-and-needles in my feet a lot, it seems my circulation has taken a battering. I was wondering if other people experienced this and if they might have any tips?