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wow all i have to say is she is on a tiny amount of insulin, when my son was first diag and honeymooning, he was on a sliding scale which meant we tried to keep his carbs stable for meals around 60 ish and if his bs was under 100 he would get no insulin 100-150 1 unit or something, ... this was 3 years ago so i'm skecthy on it but for the honeymoon period he sometimes needed hardly any insulin or just a few shots a day including lantus just a thought good luck, so many compexities but this is a great place to learn, it sounds like you have your act together i cant image the math 1:100 and doing such small doses, if you are really struggling check with your endo about temporarily trying the sliding scale. is she good about eating some protein and fat with her meals that helps with stability.. hang in there amy
The sliding scale is a pretty outdated method of computing bolus doses. I do agree that the change in her ratio seems dramatic, but I know children's management changes a lot more than adults do. Yes, sometimes basal can be too high, which means you need less for bolus, but it's hard to think of 1 unit total as being high! Also if you bumped the basal up a month ago it shouldn't suddenly be causing problems 3 weeks later. If basal is too high or low, you should recognize it in what I call the "in between times" like before meals, waking and bedtime. But if she is going low at her former I:C of 1:45, sure, I would reduce it. I'm not sure how the heck you manage doses that small with a syringe, though! What I've learned through my insulin use is that "it takes what it takes". Sometimes changes in needs make sense, sometimes not. But the goal is to stay as close to target as possible whether that means more or less insulin, or altering carb intake.
Hi livy's mom, i hope the both of you are well today. I just wanted to make a suggestion, if you post a question in a specific group you tend to get more replies, like the group parents of kids with type 1, because the question goes out to everyone in the groups email. Just a thought, we only used the sliding scale technique when jacob was honeymooning as prescribed by his endo, it worked for us esp when we were first taking things in and might not have been ready for the complexity of carb ratio's ect. in any case wishing you well, this really is a good site for support and advise, best wishes, amy
This post was posted in the "children with diabetes" forum. But many of us just access "forums" which includes all the topics, and respond to anything that we feel we have something to share, even if it's just support.
I was diagnosed at age 58 livy's mom, and I'm currently reading a book written by a woman who was diagnosed at age 12 in 1972. It's amazing how much better the treatment is today, but still, it's a lot to go through, for the whole family. I was thinking as I read that she's a good candidate for a pump, but didn't want to overwhelm you. There's a definite learning curve but it makes things so much easier and management so much more precise. The Ping which I have has a "meter/remote" so you could bolus her insulin without having to pull out the pump!
Hi Allison, how old is livy? it sounds like you are doing a great job. the one day at a time approach can be best, when i am feeling overwhelmed it sometimes helps me to think of all the nonD things i love about jacob and how well he handles everything... treatment is so much better and a cure is not an unreasonable expectation for their adulthood years, although i am not holding my breath on it, a pump may be good because you can fine tune things and if she is asking for it that is huge, it was 2 1/2 years before jacob showed interest in a pump, it was the right time for him, it has been a little challenging but overall the benefits outweigh the negatives, i dont know about you but i find people not affected by D have a hard time relating to my fears and struggles, that is when i sought out tudiabetes, it has been a real help to me, hang in there and enjoy your sweet livy loo! you have everything you need to succeed as her mom, just as you always did pre D, hang in there, and don't hesitate to vent or ask for help whenever you need it! amy
I like tu as well, so many nice people, honestly, if you werent having the struggles with dosing livy with such small doses, i wouldnt switch to a pump to early, it is like learning diabetes all over again.. however, you really are in learning mode already and if shots arent working so well for her it is challenging but doable, jacob only wanted the omnipod, the hardest part for me was checking him at night, he hates it and doesnt go back to sleep well, he has never had night type hypo, only afew 50'a or 60's in the am, i check on him everynight visually but not with a lancet! plus the first week we did saline so we were doing pump maneuvers and needles that was rough, once we settled in it wasnt so bad,( maybe you could hold off until summer vaca? we started in march and i wish we had waited, but when he was ready, he was ready so we jumped!) just new and certainly nice to celebrate the last lanus shot as well as the others! jacob does pretty well with his D, he isnt totally open with everyone at school but his close friends know, i guess he is a typical 13 year old, but more wise and sensitive i would have to say, if he is down about something else then his D comes up and all is bad but he wakes up his ussual happy self, i guess the key is to try to treat them normal and support the other parts of their lives, it is so easy to get to caught up in what they are eating and what was their number, i want to be all over that stuff, but i want him to feel that i have this for him, with him and he can just be himself.. hoping for success in high school, so far he is not very social and that has helped with my comfort level! how is livy adjusting, i would suggest being as open as possible, this has caused more anxiety for jacob with it not being totally out there, best of luck and keep asking we all have been there, when you dont feel so alone, it all seems more doable! amy ( i hope my rambling, no capitals doesnt drive you nuts, it is my email shortcut!)