I will be going on a trip to Boston, by car, with a friend to give a blood sample for Dr. Faustman's research on Sunday. I plan to bring all my usual D supplies and my other meds of course. But I'm wondering what other things I should be thinking about. This is my first trip since my DKA and DVT and it is going to be a big deal. We will drive part of the way one day, then the next day we will arrive and the same thing on the way back.
I will have to stop and walk around frequently but I'm wondering what else to look out for with D. I'm worried about lows etc. Should I run my bg higher while driving? Should I bring extra insulin other than my two current pens? I will bring a cooler for that but one of the hotels said a fridge is only available if it's available- I requested that. They have a fridge but it's for employees, I guess they will let me use it if there is not fridge available, but I wonder if it is safe to leave my extra insulin there. Or should I just keep everything in a cooler with ice. Is that good enough?
I would get a frio which is a lot easier to use for your insulin than a cooler and ice. I believe you can link to it from this site and get a discount. It just needs to be soaked in water. I wouldn't necessarily run your blood sugar high to drive but would test more frequently.
I'm going to check out the frio- I wonder if I can get it in time for this trip though- I keep seeing everyone mention them so they must be good. I don't want to run bg high- I hate doing that really, but I am worried about such a long drive, but I think you're right, just testing more and stopping is better.
I always carry spare insulin, but I don't refrigerate it. I have never had a bottle go bad due to heat, but I am quite careful to keep my diabetes bag out of the sun. When driving, it is always a good idea to have glucose very handy. And rest areas are my friends on a road trip--I will stop, hydrate, stretch, use the facilities, and test. Depending on the trip length and where I will be, I bring a backup meter, batteries, and all the backup/spares I need for my pump and CGM (I realize you use pens).
Great that you will be participating in Dr. Faustman's research! Awesome!
Thanks Melitta, good idea to bring a spare bg meter and batteries- I didnt' think of that- that is very important. I keep a bottle of g tabs next to me in the console whenever driving and one on my lap too! I think I will use a cooler this time just in case as I keep my unused insulin pens in the fridge until I use them.
I'm so excited to be able to participate in it. My friend is going to be my control. I hope to participate in phase II maybe, although I know there are probably tons of people who want to do that. I was watching some of her interviews last night and thinking, thank god for Dr. F and everyone who is helping her.
I always bring extra insulin. Never leave it in a hot car and pack it in a frio pouch or something that is at least insulated (like an insulated lunch box). The Frio pouches are awesome for lots of hot weather stuff, but you probably wouldn't need one for this.
Insulin should be ok in the hotel room without refrigeration, assuming the hotel room is at room temp. If possible, I always try to avoid leaving my insulin out of my sight (i.e., in a staff refrigerator). You may not have access to it if you need it and someone could easily tamper with it.
You're right mbp, I didn't think of that but it's not safe to leave it anywhere other than under your own care or that of someone you trust. I will keep it in a cooler in my room or the fridge if I get one and it seems like it isn't one of those ones that freeze things. thanks!
ps.I ordered a frio, but I don't think it will be here in time, we are leaving monday now- we decided to take the ferry and this will cut down the driving time.
Over time, you will feel more comfortable with travel. In the end, it is good to feel like you can handle disaster and be ok. Last summer, I went on two weeks of travel overseas and had all my insulin frozen. It turned out ok. I don't trust hotel fridges, they can freeze too easily. I just use a frio as discussed by others.
It is always good to test before driving and test every hour or two if you don't have confidence in your blood sugar control.
If there is a sudden alien attack on the drive up and take all your diabetes supples, you can still go right to Walmart and replace everything. There is a Walmart in Quincy and one in Lynn.
I am driving to Boston over Labor day and back. I like to stop at Cracker Barrel for a meal on the way.
I hope a sudden alien attack will not occur! does walmart do that? I assume if you have an rx there... I have filled most of my D things there, but I plan to switch things to my mail order which is cheaper. I will bookmark those walmarts when we get there. maybe we will get to the cracker barrel too, we're going to stay another night and do something after the tests.
was your insulin ok after being frozen?
Is it really possible to ever be "in good control" of your bg?? lol... even though I'm in a lower range now I still seem to have wide swings. I will definitely test before driving and test each time we stop which will be a lot most likely.
I am concerned since I had a bad hypo last night in early am of 39 which took about 20-25 g of carbs and some protein to get back to normal. I'm not sure what is going on- I have been changing my basal dose to some in the afternoon when bg tends to rise and the rest with dinner or a bit later.
I have been way too nocturnal lately and I think this is affecting everything but I also think I need less insulin maybe overall.. my inr nurse said she thinks I'm a brittle diabetic because I have so much fluctuation, but I wonder if it is just my odd hours, a little too much insulin at times and insulin/glucose sensitivity.
so far travel for me has been just going out the front door and local things and even that I am scared to do sometimes, but I think this will be a step to show myself I can do this and be ok.
Brian- I finally read your frozen insulin story and I was thinking good thing you were in Mexico when it happened, that must have been scary... my frio arrived and I'm going to test it out. I ended up using my cooler but it really wasn't cold enough so next time I will use the frio and or get a fridge for sure.
If you are staying at a hotel without a fridge, I WOULD keep your insulin in YOUR cooler. However, it will be ok at room temorature unless the weather is just so very very hot. Have a great trip. Boston is a fun city.. It was not too terribly hot when I went there in August last year, for the same reason you are going.The staff at the Faustman lab is very nice. You may even get a chance to meet and talk with Dr.Faustman. I did at my first visit. She is enthusastic, engaging, and encouraging. Great, accomplished lady,not at all ego-driven.
Whenever I am driving long distances, I always use my 2nd basal rate pattern, which is a tad bit higher, since I am just sitting in a car and the stress level, as well, is higher.. Make sure you have glucose tabs, jelly beans, skittles,juice boxes, whatever you use for lows, within a hands reach while driving. I do long-distance driving frequently, sometimes alone; and these are two of the strategies I use. The other posters have great ideas, as well.
Enjoy the Boston trip and visit everything you can. yes, even the tourist traps. I never drive in Boston, I have always flown there. Public transportation is easy;and a lot of the attractions are free or low cost. It is a walking city with so much to do. You will be at the LAB FOR AN HOUR OR LESS.. .Have a great trip.
and Nataliant, again,Always bring extra insulin. always. and extra supplies. rather be safe than sorry. But you will NOt be sorry. The Boston Experience has always been a great one for me. Do check out my profile and pictures to see my Boston photo albums.
You will have so much fun!!
thanks for adding me as friend :) I tried to post something on your wall but I couldn't... I will try again later...
I am going to keep it in the cooler most likely because I won't forget it that way... and I have a mini one just for the insulin... I will be bringing food too as I don't want to eat out that much. I'm going to bring doubles of everything so that way I should be ok..
I think the weather is going to be nice.. that would be great to meet her.. she seems really nice in her videos and Sophie who I spoke with on the phone is nice too..
I just had a bad hypo so I think I will keep the basal as it is and just run a little higher if that happens and maybe even lower it a bit. I seem to be swinging all over again lately and I feel dizzy a lot whatever my bg is. I keep my glucose right next to the console and some tabs in a little open drawer too... I will keep some soda/gatorade etc. too nearby. I have to educate my friend on what to do if I go really low.
Thanks... I'm getting psyched for it now.. but I will have to get up sooo early for me, lol. I'm going to check out your pics!