hi. anyone get diagnosed with type 1 later in life? i got it at 32 yrs old. it hit me fast.within a few months i lost about 20lbs...lost most of my eye sight...couldnt remember anything. so exhausted....thirst beyond belief.....it was a huge adjustment b/c i lived 32 yrs without it. i felt like i litterally started my life over. it was so overwhelming. id love to hear from ppl tht got it even in their early 20s. ive only had it 5 yrs so it took me til now to finally get things under somewhat of control. i am very outgoing n always felt very insync with others...now having diabetes i find a part of me feels very "alone" even though im not. even when i explain what im going threw at times..i know tht ppl dont really get what im goin threw. wld love to hear from ppl in the same boat as me. :))
i was diagnosed seven months ago at 36 and it was a rough first couple of months. sometimes when i wake up in the morning i say to myself, before opening my eyes,"please dont let any diabetes junk be on the table when i get up"! its always there, of course. i just try to keep a sense 0f humour about it and the best advice ive got from here 0f late is to just focus on the number in front 0f me.
my best source of live support are friends chronically ill with RA and chrohns. they know what its like to be that bit different.
i definatly add alot of humor to this disease. u have too :)
i have had similar moments like tht drsoosie. its very surreal
Count me in on that thought as well. Sometimes when I have it, I also remind myself that I have no idea how long the rest of my life is. It could be a day, 30 years, an hour. It helps bring me back to the present moment and remember that my thoughts & actions right here and now are the only thing I have any control over. I guess it's a form of using my diabetes to increase my mindfulness -- keeps me from getting down in the dumps when those thoughts arrive. :-)
Yes Shawnmarie...I remind myself of the exact same things to move along out of that moment.
yeh very true. a cure wld b amazing, if tht ever happens we should all celebrate!
I totally agree. That is the attitude that I am slowly, but surely, learning to adopt.
Somedays I still wake up and think, "How in the HELL did this happen to me?"
I mean the realization set in but it still hits me sometimes. I guess because I've only been formally diagnosed since early January.
I was diagnosed just a few months ago at 22. I was a month into my second semester of grad school. I knew deep down that something was wrong and that t1 was probably the problem, but I attributed the symptoms to grad school stress and hoped they would go away on their own. I finally decided to stop kidding myself when I needed an hour long nap to recover from doing laundry. That's just not normal. My doctor diagnosed me with t1 right after doing simple blood sugar test. The more formal blood tests were mere formalities. I'm glad--if she had assumed I was t2, I would have ended up in the hospital.
I have 2 cousins and an uncle with type 1 as well. My uncle was diagnosed when he was in his late 30s, so I've known a long time that t1 wasn't just a "little kid" disease. I've had a few funny reactions when I told people about my diagnosis. I'm too old for "little kid" diabetes and too young for "old people" diabetes. So some people are initially surprised because I'm so old and others are surprised because I'm so young!
Overall, I've found that people are pretty open to learning more about diabetes. I give my t1 vs t2 speech a lot. By the time I've graduated, I'm hoping a significant percentage of the student body has a rough understanding of what diabetes entails. They can't understand what I'm going through completely, but I can give them a small idea. Looking at my d as a chance to educate others helps relieve some of the burden of isolation. And when I need people who "get it," I've got a significant online community of t1s here on tuD. :)
that last line was gold n so true. i always get.."but ur in such good shape..u dont eat bad" "how cld u have that?" hellooooo. google it. lol i tell them i have t1 n my pancreas makes no insulin. my diet has nothing to do with it. lol some ppl u just wanna slap...others, like u said, like to ask n can learn about it. i find i gravitate towds the people tht do wanna learn, it feels secure to me when im with people tht know enough to help if needed.
I love it when people ask questions because they actually want to learn! Makes me feel smart instead of sick. ;) BTW, I just noticed that I said a formal blood test was a formality. I laugh at myself.
Here is the cool thing Jessica. You have a ton of people to help support you on this site. I was hit with T2 at 39, then in the last 6 months,( I am now 41) was changed to T1 and I started Lantus and Novolog. It took a long time to adjust and to be honest, i am still adjusting it now. Today, I started on an Insulin pump(Animas) and have an awesome Endo and a DE. They care very much about how I am doing and are in this with me for the long haul. I tell them, I wont let it control me, but rather I control it! for a long time, I went through this site without becoming a member( I regret that I waited and should have done it sooner!)and learned a lot about T-1 and T-2. Feel free to vent! we will help you wherever we can.