type 1 diabetics diagnosed later in life
hi. anyone get diagnosed with type 1 later in life? i got it at 32 yrs old. it hit me fast.within a few months i lost about 20lbs...lost most of my eye sight...couldnt remember anything. so exhausted....thirst beyond belief.....it was a huge adjustment b/c i lived 32 yrs without it. i felt like i litterally started my life over. it was so overwhelming. id love to hear from ppl tht got it even in their early 20s. ive only had it 5 yrs so it took me til now to finally get things under somewhat of control. i am very outgoing n always felt very insync with others...now having diabetes i find a part of me feels very "alone" even though im not. even when i explain what im going threw at times..i know tht ppl dont really get what im goin threw. wld love to hear from ppl in the same boat as me. :))
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Permalink Reply by Melitta on
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Thanks for clarifying Terry, and I apologize for leaping so swiftly on my soap box! If all the adult-onset Type 1s are included in the stats for T1, and since the vast majority of new-onset Type 1 is over the age of 20, it is probably not true that the "most likely age of diagnosis is 10-14." I have read that there is a peak at age 10-14 and also a peak at ~40. Anyhow, again, thanks for clarifying and we are certainly on the same page, and I appreciate your comments.
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Permalink Reply by Terry on -
Melitta - Thanks for the reply. I think we're dealing with a matter of semantics here. The incidence or rate of T1 diabetes diagnosis (number per 100,000 per year per limited age cohort) is probably the highest in the 10-14 age group. Comparing absolute numbers, I agree that the number of adult T1 diagnoses outnumber child diagnoses. In that context, I still think that ages 10-14 is the most likely age of diagnosis based on the rate of diagnosis for any given year. We may be splitting hairs here but I think we've illuminated some important points. I appreciate your response.
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Permalink Reply by Zoe on -
Just to further pick nits: I think the stats that are out there are skewed because "new diagnosis" numbers would include people like me who were initially misdiagnosed type 2 due solely to age. I'm sure nobody went back in and corrected my initial diagnosis for the purpose of "initial diagnosis stats". Since about 10-15% of newly diagnosed type 2's are actually type ones that would be a large portion of adult diagnosed type ones who don't correctly appear in the type 1 stats.
I just looked at a website for a Type 1 support organization in which the old outdated stat is still being repeated."Type 1's are about 10% of the population of diabetics". Nope. Including the misdiagnosed type 2's that figure rises to nearly 25%. I wonder how many years it will take for the stats to catch up with the reality?
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Permalink Reply by Natalie ._c- on -
So does my ~43 for knowing that something was wrong, and my formal diagnosis when VERY symptomatic at 45 qualify for that second peak? :-)
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Permalink Reply by Wren on -
A few months ago I was diagnosed with Type 1 at age 35. My dad had Type 1 and I worried about getting it when I was younger but after age 30, I assumed I was in the clear. Nope! I agree- most people have no idea what diabetes is like and many assume it's not that serious. I was in my last semester of grad school when diagnosed, and most of my professors didn't give me much of a break! My biggest pet peeve is when I tell someone I have diabetes and they say, "well, it's easy to manage." WTF? Diabetes care is like learning a new subject that changes every day- and my life basically depends on consistently giving it the attention necessary to stabilize my BGs. Still, I'm also really grateful that I didn't develop it earlier.
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Permalink Reply by jessica on -
I cannot agree w u more! its so fustrating but when I read ur post n others I feel so validated n understood. The most compassionate of ppl stil cnt relate to our evday b******* tht we deal with with diabetes. Its such an isolating feeling at times. but hearing similar stories HELPS SO MUCH ty very much for ur kind words n understanding n if u ever have to vent feel free! I'm all ears! ;)
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Permalink Reply by Zoe on
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God it's hard to read your posts, Jessica! I'm sure you have lots of good things to say and it would be easier to understand them with out all the text message abbreviations!
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Permalink Reply by Zoe on
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Sorry to hear it. I had it very bad as well and had surgery on both hands in 1994. No problem ever since!
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