In general, if you are a man with type 1 diabetes, the odds of your child getting diabetes are 1 in 17. If you are a woman with type 1 diabetes and your child was born before you were 25, your child's risk
is 1 in 25; if your child was born after you turned 25, your child's
risk is 1 in 100.
Your child's risk is doubled if you developed diabetes before age 11. If both you and your partner have type 1 diabetes, the risk is between 1 in 10 and 1 in 4.
There is an exception to these numbers. About 1 in every 7 people with type 1 diabetes has a condition called type 2 polyglandular autoimmune syndrome.
In addition to having diabetes, these people also have thyroid disease and a poorly working adrenal gland. Some also have other immune system disorders. If you have this syndrome, your child's risk of
getting the syndrome including type 1 diabetes is 1 in 2.
This last paragraph led to more googling "Polyglandular Autoimmune Syndrome" where I found there are four types, with Type 2 being the most common... here is the description:
"Type II PAS occurs in adults. Women are three times more likely to develop the adrenal gland insufficiency. It includes the thyroid (hypothyroidism) and pancreas (Type I diabetes). Pernicious anemia and rheumatoid arthritis are also detected with Type II."
This confused me because I am wondering because I have hypothyroidism and Type 1, if I have this PAS thing.... but I have never even heard a doctor use this term. Of course it's the weekend, so I will not bother the doc with this question till Monday. :) But I would really like to know if my son's stats are 1 in 25 or 1 in 2! Kind of a big difference. I realize it won't change anything, but I am just an anal Mom who likes to arm herself with knowledge.
If anyone is familiar with this and has some answers for me I'd appreciate it! Thanks!
I also have Type II PolyGlandular Autoimmune Syndrome. My name is Jill. I was diagnosed with Graves Disease in 1999. 10 years later I was diagnosed with Addison's Disease (last December). My 3-year-old daughter was diagnosed with type 1 diabetes in October of this year. She also has antibodies to her thyroid and to Gluten. Her identical twin sister and myself were both tested through Trial Net in November and were both found to have one antibody that contributes to type 1 diabetes. They are doing further testing to look for more antibodies in my daughter and myself. It's been a crazy roller coaster ride this year and we're hoping for good news with the test on my self and my other 3-year old daughter.