You don't give too much information, Patty, but I'll see what I can share on the subject! I see by your profile that your husband is a type 1, diagnosed many years ago. Unfortunately, as Type 1's we sometimes experience lows no matter how well we manage our condition, it just kind of comes with the territory. But there are things we can do to minimize the lows and to increase our awareness. When you say they are "unpredictable" does your husband recognize the symptoms he has when he is low? Those differ for everyone, but it's important to be able to recognize and treat a low promptly before it gets worse. If he has fairly regular lows close together and has been doing so for quite awhile, he might have developed "hypo unawareness" which means he doesn't feel his lows. This is not inevitable with longterm diabetes, but awareness can be regained by avoiding lows as much as possible for awhile. This might include running a bit high for awhile. How often does he test? Regular testing can show you when you are getting lower. If it is a chronic problem and he has hypo unawareness a CGMS would be a great idea to show him trends to prevent lows.
Other questions: When does he go low? At similar times during the day? Two hours after meals? It's important to see if there is a pattern. Lows are caused by too much insulin, but it would be good to know if it is basal or bolus insulin that is causing the lows. If it is basal, he might want to decrease his basal insulin a little. If it is bolus, than perhaps his insulin:Carb ratios need some tweaking. I haven't been diagnosed anywhere near as long, but I could see it would be easy to get into habits and not be aware when things needed changing.
Finally, are the lows treatable and mild? In other words are they in, say the 60s and he can take a couple glucose tabs and raise his blood sugar? Or are they signficantly lower putting him at risk. If so than he might want to talk with his endo and get some assistance in changing his doses and his regimen. Exercise is another thing that can cause lows, but I'm not the one to give advice on that subject!
He has had diabetes for 50 years, he is 53 now. I have read about nerve damage that can occur will long term diabetes and one of them is "hypounawareness" but also known as autonomic nerve damage. I am convinced that's what the problem is. The bigger problem I have is explaining this knowledge of the nerve damage and convince hime that as soon as he feels the "tired" sensation to check his surgar, and if he cant because it is unavailable, then I suggest he eat some sugar. He doesnt' seem to realize his sugar is low until he is 50 or below, and by this time he starts to believe he has time to get sugar, since he is not thinking clear. It is a vicious cycle. Before you know it I need to administer Glugocon. His numbers are as low as 16, 36, 33, at the time I administer the glugocon. I have been married for 23 years, and know him very well, and only want to help him. How can I convince him that he is unable to feel early detection, and to think "sugar" or "check sugar" if he feels the least bit tired?
I am 28 and have been type 1 for over 22 yrs and I to have hypounawareness. I do not feel lows at all meaning I can be completely fine and hold a complete conversation with you with a bg of 25 mg/dl. It is frightening but my guy and I decided to get me the CGM to help me identify these lows prior to them happening or at least before they get to low. I have a big scare at college when I went to take finals last semester and tested before the the only to find out I was 31 mg/dl with no symptoms. I had eaten and done everything I was posed to do but it seems the stress from the fianl got to me and since my professors are all nurses I had to go to the ER. Still no symptoms and bg had droped to 26 mg/dl and I had eaten no one could figure I was that low with the way I was presenting. I now where my cgm 24/7 and have not had a low below 40 mg/dl since getting it. usually my pump alerts me to a low at 70 mg/dl and I treat from there. Really my only symptom is I will fall asleep and not wake up so the cgm was the best choice for me and for my guys peace of mind. We diabetics who have had it for so long tend to be set in our ways and that may be why he is so hard to convince on trying to test more or treat when no meter is around. I would recommend sitting with him and telling him why you feel he needs to deal with this and how it scares you.
I agree with med464. Hypo unawareness has nothing to do with nerve damage, and it can occur to people with 5 years or 50 years living with diabetes. It is caused by having a lot of lows for a long time. I agree that a CGM is a great idea. But your husband has to want to take care of his blood sugar, not just you. I know that sounds harsh, but you can't do it for him, no matter how much you love him and want to help. The fact that you are posting here and not him tells me he is not motivated to learn more and change. He sounds like he is feeling hopeless. I suggest counseling to help him deal with these feelings and to working on reinvolving himself in his own diabetes management, not relying on you. There are things you can do to get him to think "check sugar". You can have a conversation when he is feeling normal where he agrees if you say certain words, such as "I think you're low, remember we talked about this" he acts. But he has to "buy in" to this process. Diabetes management has changed a lot in the last 50 years. It's changed in terms of tools available to us (such as the CGM) but it's also changed in terms of diabetics knowing that they need to be proactive in their own care. I strongly encourage him (and you) to get counseling or join a group for type 1 diabetics. At the very least, he should get involved on here, because he will hear a lot from other diabetics who are proactive in their own care. Also, at the very least the two of you should meet with his endo and discuss his problems with hypo unawareness and what can be done about it.
My husband really doesn't want me to be too involved with his diabetes. He would also think it is rediculous that I am posting this. As a matter of fact this is the first time I have gone looking for a place to get support for myself because I am having difficulties with his unpredictable lows. It has effected me and my 2 daughters lifes in many ways, but I don't think he can help what is happening in regards to catching the low before it becomes danagerous. He does take very good care of him self, goes to the endo 4 times a year and takes all of his meds, for years. No one can believe how good he looks. But no one knows about our hidden family problem. I am many responses.......my goal is to have my husband take a look at the responses someday. Thanks for your response
A CGMS is a continuous glucose monitoring system. Right now, there are only 2 brands available - Dexcom & one from Minimed. The Dexcom itself is about $1,000 for the system and the monthly sensors are about $325. You are supposed to change the sensors every 7 days but alot of people get 10-14 days out of them so you would not necessarily need a whole box (the box has 4 sensors for $325). Some insurances will cover them and others you have to fight to get covered. My insurance denied mine but I appealed and won because I was passing out from lows. Your final cost would obviously be whatever your insurance covers. I have to pay 15% of the cost.
I am also hypounaware and can’t tell if my BS is low. Unfortunately when you are low, you feel normal but the people around you that are close to you know that something is not right.
I was testing 18 times a day and had my basals set right. I could go along for several days with no problem. I eat the exact same things every day then all of a sudden, my BS would crash with no warning. I also have gastroparesis, which is nerve damage to the stomach – that causes digestion problems so if your food is digesting at different rates, it can really play havoc on your BS.
I live alone & have no one to help me. It got to the point I was passing out about 3 times a month. I have a CGMS – I have the Dexcom. You can set alarms to warn you when your BS goes low or is dropping fast. It has literally been a life saver for me. I would suggest checking into getting one for your husband.
A good book to learn about adjusting insulin is Using Insulin by John Walsh.
Zoe said it all:"they need to be proactive in their own care". Patty your husband has to want to avoid the lows.... Patty you wrote:"How can I convince him that he is unable to feel early detection..." It is HIS job to want to do that.. I know I am sounding harsh, but he has to do this for himself.. You can help him find the info and the resources about hypoglycemia.. but all the "convincing" in the world will not help him if he is not willing to help himself!!! The book Using insulin is a good source of info, as
Kelly noted. I was diagnosed 43 years ago and all the new-fangled techniques and equipment were not around. I fortunately, do not suffer severe hypo-unawareness,;but I do not have as strong symptoms as I used to have when my sugars are low; NOW I get moody and "loopy" and sleepy, and I know it is time to check my blood sugar.. so I DO . I treat as it is almost always LOW when I get those feelings.( in the low 50's or 40"s)
This sounds helpful, I will check intothe Dexcom. Your situation seems to be the closest I have gotten to someone with the same sympoms. How to they test for gastroparesis. He had a colonoscopy 3 years ago, and that was fine. What other way to they test for gastroparesis. He also gets blood test 4x per year.
The test for gastroparesis is a gastric emptying scan. You have to show up for the test fasting then you eat radioactive eggs (it really sounds worse than it is!). Then you lay on a table and a camera follows the eggs thru your system. Most places do it for 90 minutes but some places do it longer. Mine was 90 minutes. They will know how much food is getting digested. Unfortunately, the medication for gastroparesis has some really nasty side effects so I won't take it - I prefer to follow the gastroparesis diet and that really helps.
Patty, this is tough. Fortunately, I feel my lows in a huge way. But feel or not feel them -- if I were going low on a regular basis several times a week (or for that matter -- even once a week), I'd be looking to make adjustments. He must know he can't feel them if he ends up needing you to come to his aid with the glucogon. A constant glucose monitor (CGMS) is a great idea -- would he be willing? This way the low is right in front of him on the CGM regardless of his feeling lows. If he is resistant to that, would he be willing to commit to regular testing -- upon waking, before meals, 2 hours after, and before bed? Frequent lows often are attributable to too much basal insulin. Cutting back on that slightly or splitting the dose could help reduce the number of lows. Definitely see if you can find a pattern to the lows. For example -- if I'm going to go to low it is either going to happen between lunch and dinner or while sleeping. That's my pattern. So knowing that, I tend to make sure I'm a bit higher in my target range when heading to bed. I also test extra times between lunch and dinner -- particularly when I'm stressed or engaging in exercise. I should also mention, as I believe others may have already in their response that nerve damage and lows are not related. This is something that is all about the insulin.
If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →
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