YES, I will have to have a Vitrectomy in my right eye. No choice. The Retinal Specialist is a very nice man, I truly like him and trust his expertise. Surgery is being scheduled and I will go to my Primary Doctor very soon to have blood work and EKG prior. Laser Surgery in my left eye in two weeks as well.
I have educated myself on the Vitrectomy and I am fine with having it done. I would lose vision and possibly blindness in that eye if I do not have the surgery....SO, that is a no brainer :)
I am overwhelmed with gratitude......I would not have the strength I do now if it wasn't for ALL of YOU, my friends whom I just love and treasure, admire. Saying "Thank You" doesn't seem to be enough. All of you mean more to me than I could ever express.
I look forward to being able to see without this "Web" of blood that I have had for the last 13 months.
The Doctor told me that this isn't my fault......"You were dealt a hand, called "Diabetes".
Grateful for this Technology. and most of all my friends and loved ones. Thank You.
Links Added by the TuDiabetes Administration
I love you all so very much.....family? YES. Thank you for all the support and advice. Books on tape is a wonderful idea, thank you. I will try this.
I am strong and positive most of the time, just the last week has been hard, as I have so many other "personal" problems I am dealing with as well. I break down for awhile and then I get mad and determined. I have a check-up on the 13th. and will find out what is going on. I know that with the amount of Laser I have had on this eye (4000) dosent help with the healing, scar tissue and the Dr also did alot of Laser when I had the Vitrectomy. So....my dear friends, I want to say Thank You for helping me and I am very, very grateful that I have all of you and TuD. Much love, Robyn
And with apologies Robyn , ...I have missed reading lately about your " heart aches " ... you are always on my mind ...hope you are resting comfortably at this time of night ...hugs .
I'm sorry to hear this. We all had great hopes that you would come through "simply." But I guess life is never simple. I am sure this is dissappointing, but keep your spirits up and have faith. And in the meantime, stay busy. One thing you might try is books on CD. I listen to them in the car, but recently got a nook and an android phone. I can now download audio books from my local public library and listen to them on all those devices. Totally cool.
Hi Robyn. Happy New Year, and may it bring a better year for you.
I got a Kindle (Amazon) for Christmas in 2010. The Kindle (NOT Kindle Fire) has no glare, and you can make adjustments on the font until its comfortable. There is also a little gadget for light if you want to read in relative dark. I'm not familiar with the nook, but the Kindle also has the audio books available from the library.
Hello Robyn and others,
I am following along here as I am in the SAME boat as Robyn. I am 16 days post vitrectomy and am looking through wax paper with slightly distorted visual field. My vision has been the same since day one with no improvement noticed yet.
I completely understand the monumental frustration of feeling like your life has been taken from you. Normally, I am a very active person who biked, ran, hiked, every single day. Not to mention takes care of my 5 and 7 year old kids (with my wife of course) and worked full time as an occupational therapist and have a small guitar repair business. Battling retinopathy for 10 months has taken a significant toll on pretty much everything and everyone in my life.
With that said, the advice given above by cinderfella really strikes a cord and IMO is the best thing you can do in this recovery process. I have been really making great effort to re-engage as much as possible. I am taking light hikes, playing with my kids, I plan on returning to work soon, with one eye and doing the BEST I can.
This is a great community. I thank everyone for sharing experiences and advice. Hang in there Robyn. We will get through it.
I know I have not been through this and ADMIRE the strength you both are showing. I know I would be a mess. But that said, I know you both will be back to normal given enough time. It is never fast enough but your body went through a huge trauma. Allow yourself a break emotionally and know this is something that has been done countless times with excellent results.
My thoughts to you both.
Patience is the biggest component to vitrectomy recovery. I can't stress it enough. Sixteen days out is way to soon to expect to see any kind of positive changes. At six months out, my doctor said there was still healing going on in my eye, even though my vision had pretty well cleared out. Pryde and Robyn, you guys are going to recover, each in your own time. It's going to be about a month before you even begin to see any shred of improvement. Even at that, it's going to be probably another month or two before your eye is completely free of floaters, etc. If your op. went like mine, your eye has been filled with saline to replace the natural vitreous gel. It's going to take about six weeks for that saline to be absorbed by your body and for your own natural vitreous gel to refill the center of your eye. My doctor said that he was not able to get all the blood out of my eye during the operation and that I would probably still see blood in there for a time until it was all reabsorbed. He was right. I looked through a red haze for several weeks. Gradually, and I stress gradually, it started to get a little clearer every couple of days. If you have been having small eye bleeds prior to your vitrectomy, then you know that it takes 2 seconds for your eye to bleed but two months for that one drop of blood to clear out. It's the same process here. It's going to take time for the process to be complete and for clean vitreous gel to once again fill your eye. Hang in there. It's going to happen. I think the thing that is sometimes too bad is that the medical professionals don't give thorough enough information on what recovery is going to be like. Your situations are most likely progressing completely normally, but you don't have a clear idea of what to expect so it's frustrating you. Again, my brother went through this process about four years ago. I was on the phone with him every couple of days in the weeks leading up to the operation and then the weeks after. He talked me through every step of it. You are going to get there. I am living proof of it.
Thanks for the response cinderfella and support from others.
I am certainly aware that I am in for a long recovery with this. I got a little discouraged at my 1 week follow up as my Dr said he noticed some macular edema which I never had before. He "thinks" it is because of the surgery. As I could only read the big E on the chart (although fuzzy/blurry) he commented that I should be seeing better than that. Obviously that kind of thew me as I know it had only been a week after the vitrectomy.
Also, I don't have any red haze, just very blurry/waxy vision (like Robyn) with a distorted field. Funny when I look through a pinhole the vision is a little clearer but I see all kinds of little dark "cracks" sort of like dry desert ground in my visual field. Maybe it is some blood on the surface of the retina?
Anyway, I look forward to following Robyn's recovery and thanks again for everyone's support and comments
Thank you Cinderfella...and everyone. I realize I am in for a log haul....now. I will stay strong. The replies sure help and I wish you the best Pryde. I am keeping busy and just tell myself it will heal and get better. Thank you all very much. xo
Love you Robyn. Cinderfella's comments were so inspiring.. It is so hard to have patience. But I am sure you will recover and see better slowly but surely in the next weeks and months.
God Bless, dearie