For the last 11 days I haven't taken any basel or rapid acting insulin. For the first week I ate what I wanted - carb overload - and for the last few days I've eaten very little and practically no carbs. I only tested about 3 times during the first week and got readings of 10.2, 11.6 and 4.6. The last few days I've tested every few hours and I've gently moved between 4.9 and 6.0. What's going on? Why are my levels not sky high? Am I not really diabetic (and there was some confusion as to which type I was at diagnosis)? I'm worried about whether it's bad news not to have any basel insulin in you as, apparently, is used for other functions in the body aside from dealing with carbohydrate.

Any ideas?


Tags: Stopping, insulin!

Views: 2886

Reply to This

Replies to This Discussion

Could you explain what insulin regimine you were using before stopping treatment? How much basal/bolus? What were your reaadings like? I think a little background would help us give better answers.

Thanks for replies so far. Here's the deal with me:

Dx 2 years ago, age 40.
(39 yr old brother dx same weekend.)
Started a basal bolus regime at about 4 months in.
I'm a researcher by trade, so researched.
Decided on very low carb approach.
Very successful - lost weight, A1C around 5, felt better than for a long time.
4 units Levemir in the am, 4 in the pm, Novorapid for food but no more than 3 units a day (30g carbs).
Testing about 7 times a day.
Got fed up.
Ate carbs, got carried away, stopped testing, had a week off.
Got cross.
Fasted for 2 days.
Now eating the way I want to in terms of what I believe to be best long-term (low carb, low doses, rule of small numbers etc) but levels seem good without any insulin at all.
Though it's only been 2 days!
If I take insulin surely I'll go low.
What to do?

I'd do what you're doing to avoid a crashing low. As long as you're testing frequently to catch & correct any highs & to see a pattern if BG starts creeping up. How are your fasting readings?

Fasting readings totally normal - in the 5s

That's great!

11.6 is sky-high enough to suggest something's not right. I think that many theorists (e.g. Dr. Bernstein) and many members agree that having reasonably normal BG is the goal. I know quite a few folks who work to avoid taking insulin through a number of strategies (diet, exercise...) but I don't think that 10.2 and 11.6 mean you're clear. It may indicate some "home grown" insulin still being put out by your body but it may not last forever so it probably would be a good idea to stay on top of it? 3 tests is also a very small sample size for a week of "carb overload", were those pre-meal, 2 hour post-meal, fasting, a mix?

Just because you have type 1 doesn't mean all your natural insulin production is totally zero. In fact, most T1s, even after 50 years still have some residual insulin production. My bet is that after you dropped to "no carbs," your natural insulin production was kinda able to keep you "ok." In fact, before the discovery of insulin, patients were put on a starvation diet which had almost no carbs. Children with T1 could live for as long as 4 years, albeit in misery. You can read about the personal experience of Elizabeth Hughs in the book "Breakthrough." If I remember, she lived for three years on the diet before finally being saved by insulin.

I have to tell you, even though you might find that you can go without insulin and at times seem fine, your blood sugar is still running high. And it is not uncommon to find your natural insulin production surges and wane, so please don't be lulled into a sense that things are fine. You could wake up tomorrow having lost your insulin production and find yourself with a dangerously high blood sugar and in DKA. Please consider testing on a regular schedule, at least 4 times a day and it would be prudent and safe to continue your insulin regime. Please think about it.

It's likely that you still have some residual insulin production. When were you diagnosed? Is it possible that you're honeymooning?

Not uncommon for a pancreas to produce some insulin, as the others have said. Many see this with lows for which there isn't an explanation. Of course, the highs burn out remaining beta cells. Please, please don't risk not taking insulin.

I agree with the others. Because your age at diagnosis it is likely you are slow onset Type 1 which means that your beta cells are destroyed more slowly and you might still have significant insulin production left. If you are curious about this a c-peptide test will tell you how much insulin you still make. But studies show that early use of insulin can slow down beta cell death so since you are scientifically oriented you might want to research this and consider whether using a small amount of insulin is in your best interest.

Based on the insulin doses you were using, I agree with Zoe and others above.

So the average T1 uses a total daily dose of 0.7 units/kg (some more, some less, depending
on insulin resistance, exercise, etc). Since you said your TDD is around 11 units/day (you said 8 units basal and 3 units bolus) and my guess is you probably weigh more than 15 kg (34 lbs), you are likely producing some native insulin.

If you were producing none, what you would see is a fairly rapid increase in BG over a period of a few hours, even without eating. The symptoms of diabetes would return (peeing , thirstiness, weight loss, vision changes) as your blood sugar rises and soon ketoacidosis would start. untreated, that leads to coma and death.

I would not fool around with the experiment you are trying for several reasons (a) you will burn out your remaining beta cells faster as they are overstressed trying to keep your blood sugar under control. This will make control harder in the future. and (b) you risk DKA if for some reason things start to spin out of control suddenly as native production falters.

(c) Extended periods of high blood sugar will cause microvascular damage to your organs (retina, kidneys, limbs, etc).

At a minimum, have some basal insulin in your system to prevent DKA.

numbers in the 10 range (180 mg/dl ) are NOT GOOD.




From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service