The day to day doesn't scare me it's the worry that it will end my life earlier than if I was without it. I'll never know, I guess.
Immediately I'm scared about not getting a job with adequate health insurance, as I won't be able to afford my supplies on my starting salary unless I cut back big time on... everything.
In the long term/overall picture I'm scared of not being able to live out the years I would have been able to enjoy if I didn't have diabetes. I feel like there is a lot I'm going to miss out on because I got dealt a s***** card.
I fear that diabetes will rob me of myself too early... sight, touch, toes, legs, kidneys. That all of the years I spent out of control will catch up to me, despite all of my current efforts.
Chadd, I hoard when I can, too. Not with insulin or things that expire (And I was down to my last 25 test strips not long ago), but for non-perishables, like infusion sets and reservoirs, I say that if you've got a good insurance plan, get as many as you can. Right now, I'm going through pump supplies that I received - I think - in 2008. My endo prescribed me to change a set every 2 days, and I go closer to 4, but every three months -- I mark the calendar -- I refilled the prescription whether I need it or not. Now I know that, if I suddenly lose my medical coverage, I have enough to last me for quite awhile.
I like your way of thinking. I always wait until I run out of test strips to refill. I think I'll start watching the date and refill as soon as I can so I'll always have some put back just in case. Thanks.
That I will have diabetes for the rest of my life. It is not so bad now, I am young and healthy I suppose. But when the years start fading away...that is why it is SO important we work for a cure now. For everyone, no matter what age they are. We have to change things.
Not even laboratory resources seem to help everyone. There's quite a few people who have major challenges despite going to Joslin, which, until I started hanging around online, seemed like Shangri-la or something. I think that a better strategy that would be lighter and heavier at the same time might be a way to help. It seems like a hugely active disease but treatment seems like it's impaired by communication paradigms that seem to lack a sense of urgency? It may just be that there's not enough doctor's to go around but we really have to be our own doctors, nurses, labs, lawyers (to fight with $%^&*@ insurance companies and the government about $#*& they seem clueless about?) and psychiatrists..."is this real depression or hypo depression...I'd test but I can't get enough test strips..."
Say what? Are you meaning that it's like in "Lorenzo's Oil" where if everyone knew D was going to finish us all off next Thursday the doctors, nurses, labs, etc. would get off their butts and cure it Weds. night?
At age 64 (on Mar 7), I don't have THAT many years left, and there is no way I can bank on a cure. I'm much more interested in technology that will allow me to live a healthy life NOW, and die as far in the future as possible of something unrelated to diabetes, with no complications.
Of COURSE I would like to see a cure for the young'uns of both types, and I would like to see prevention even more, so nobody has to suffer at all, but I can't concentrate on a cure at the expense of the life *I* have left to live.
My scarey thoughts about diabetes are about the same as anything else...Bottom line is I dont want to ever be in a position where I dont have control of my body...It really doesnt matter if I get into a bad accident or diabetic complication, its all the same to me...So I dont focus on what could happen with my diabetes because I could live my whole life complication free and something other could randomly wrong. I just do my absolute best to control my BG and enjoy today...thats all I can do