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I really hasve no fears, per se, about diabetes..I am pretty sure that my single "complication", ( mild-moderate nerve pain and tingles in my feet, legs and back) will continue to abate due to my faith in God,.tighter control , regular exercise, and alpha- lipoic acid capsules. All have worked before and will continue to work.
I also want to add that i do that too, 'letting my sugar run a little higher?' if i have a presentation or an exam cause i didn't want it to drop while im doing those things? ALSO, it seems that when i get nervous, the reactions are very similar to hypoglycemic. sometimes i dont know which is which. #confused.
When I was going through menopause, I used to not know whether I was having a low or a hot flash! It's a nuisance not to know, isn't it?
It is!! I guess the best way is to keep monitoring your sugar level!
My biggest fear is going low when I have clients with me. I work with developmentally disabled adults and, at times, they can be difficult to handle. I wouldn't want to loose control due to a low during the times when I have them in my care. I sometimes worry that they will pull out an infusion set, but so far, nothing like that has happened.
Not checking usually means you are running high. I agree, lows are not something to look forward to. More recently it has become a much bigger concern for me because I do not really feel them. However, running high has it's own nasty set of side effects- sure, mostly long term but I don't think that road is the one to travel either. In the end it will be MUCH more stressful for your family, you will miss more work etc by letting them remain high. Test. No one says you need to treat so aggressively to cause lots of lows but if you don't test you can't treat at all :-(
Lows are probably my biggest concern at this point. I have always been able to handle them but there is always a first right? My control hasn't suffered too terribly by my fear but.....
In the immediate term - I definitely fear going low at work, and that's why I always run a little higher on the days I'm in the office. I'm pretty hypo-aware so am generally able to treat before things get too bad, but there have been a few that have snuck up on me. I also fear dying in my sleep.
In the long term - I fear being dependent on others, being unable to see or do the things that I love to do...I know that, to some extent, good control can help delay those complications, but I've met too many T1s who developed complications despite having good control, so I know it's not all about control. That really scares me.
All of it and none of it - like that makes sense, right? About as much as Diabetes does sometimes, I guess :)
I get scared about all of the same things you have listed...especially since I am a (stay-at-home) mom now. I try really hard to keep it all in line, but sometimes you can't predict what's going to happen...and not every low is the same (nor every high) and I think that that may scare me most...that and stress...you cannot adjust dosage/correct for stress...recently though because my sugars have been running high (due to stress) my heart muscles have been having seizures and I had chest pains last week that they initially worried may have been a mild heart attack (I had one at 19 when I went DKA)...so THAT was VERY scary, and a different kind of scary especially with a little one at home.
I don't worry about today, because I follow my diabetes pretty closely and can pretty much correct whatever goes wrong. I worry long-term.
I fear not being able to be a good father for my kids as they grow up. I'm 37 and just had my second child a few months ago. That means, in all likeliness, he'll graduate college when I'm 58 and get married when I'm in my 60s or 70s. Who knows if I'll ever see my grandkids, and if I do, if I can play with them.
I also worry about retirement -- how much extra money I should be putting in my 401(k) and other retirement funds so that I can afford to continue taking care of myself when I have no insurance or income at all. I'd love to think that I'll be cured by then, but I can't take that chance.
I share all the same fears and worries. Honestly the fear of lows is what keeps me checking my bg constantly. If you fear lows, the only way to know where you are is to test, right?
I am especially fearful of lows right now because I've had unexplained severe drops in bg at night...from 40 to 140 points. Thank God for my Dexcom. I've had to run high at night for the last month while testing how much of a drop I get as the dosage is lowered. I hate running high so often but the alternative with a significant drop at night is that I might not wake up the next morning to continue the fight.
Because significant drop in nightime basal needs bring to mind kidney issues, I had to do updated labs to check kidney and liver function. Thankfully everything was fine. But that 12 hours I had to wait overnight to go to the lab, all I could think of was dialysis and transplants and what if I can't work. Add to this major stress as my husband is unemployed at the moment (and our health insurance is with my employer).
I also pray frequently that I live to see and hold grandchildren and am healthy enough to know them and enjoy them.
You said, "Because significant drop in nightime basal needs bring to mind kidney issues, I had to do updated labs to check kidney and liver function."
I didn't know this about night time basal changes. What does this mean exactly? (my basals are variable at night too) - Also, when you speak of labs is it the standard blood panel or special labs for kidney function?
Basal changes are normal for diabetes...we all fight that to some extent.
What happened to me was major drops at night between midnight and 3 a.m. One night I went to bed at 190 with a small correction at bedtime and woke up at 1:30 a.m. at 50. I kept dropping every night for several weeks as I continued to reduce my evening Lantus dose. Finally found the tipping point last night for nightime but now the daytime numbers are high from reduced basal (on MDI). To illustrate how extreme the change was, I went from 29 units of Lantus to 7 units of Lantus in a 2 week period.
My endo said that when your kidneys aren't functioning properly the insulin continues to circulate in your body longer than it should causing major drops at night. I really don't understand why it happens at night and not all the time.
And it was the standard blood panel. He redid my kidney, liver and thyroid function bloodwork. Kidney and liver were fine, still waiting for thyroid result. Endo mentioned thyroid could be a possibility but I've been on thyroid meds for years already.