Every year, since 2009 Roche has been organizing a Diabetes Social Media Summit. I have blogged about a couple of times before:
A comment from my friend Mike Hoskins (who now serves as Managing Editor at DiabetesMine.com), made me think that this year's summit which is scheduled to take place at the end of July in Indianapolis, right before the AADE Conference in the same city, is a great opportunity to open up the summit to the entire community.
What would you like us to ask Roche at the 2012 Diabetes Social Media Summit? Please post your questions here and we will make sure to raise your concerns, issues, thoughts, and anything you would like to have brought up.
Hope this question is appropiate for the 2012 Summit ?? ..I would like to know the name of latest type of Roche insulin pump available in all Canadian Provinces and Territories ....( to include available support systems in Provinces and Territories)
I don't pay any attention to what Roche makes vs. what other companies make. Is there a "scorecard" online? I don't have a lot of questions for pharmaceutical companies as to me it seems like "problems" are at the locus of medicine and insurance companies, as pharmaceutical companies will provide us pretty much whatever docs prescribe within the limits imposed by insurers?
OTOH, I have until July to figure out what they make and am only a couple of hours from Indy so, depending on the dates and our Byzantine work schedule, perhaps I can get down there?
Hmmm, I don't seem to use any Roche products. I'd have to say I'd be disinclined to buy lopsided insulin pump? I'm square.
According to experts, the Accu-Check Aviva is one of the most accurate meters available for ordinary home use. But it isn't as precise as a professional lab instrument -- and can't be, or else it would cost as much. But: within the limits imposed by economic reality, is there anything you can do to make it even better than it is?
A wi-fi meter makes total sense! My pump d/l stuff over wifi and it's one of my favorite things about it! It gives the doctor data with less work on my part. I loathe logging anything and really haven't ever logged, except for 30 days to get the pump in the first place. My first thought was "I'll just fake it" but after thinking about that, it would be more work than actually logging?
I would like to know how close the Animas Vibe is to being approved for sale in the US by the FDA?
I'm wondering when the Combo pump is going to be approved in the US. I really want to get it before I run out of COBRA. if they won't say anything, can you see if you can find out what's holding it up?
For those of us who use insulin, we make insulin decisions every day based on readings from blood glucose testers like the Roche Accu-Chek. The entire industry manufactures their testers to a standard published by the FDA.
That standard is woefully inadequate. It permits any fingerstick reading to be considered "accurate" so long as 95% of the results falls within +/- 20%, if the number is => 75 mg/dL, or +/- 15 mg/dL if the number is < 75 mg/dL.
To illustrate how loose this standard of accuracy is, if my fingerstick meter reads 70 mg/dL, then the actual BG could range from 55 mg/dL to 85 mg/dL. And that doesn't even consider the allowable 5% of measurements that can fall out of that range! I don't know about you but my actions relating to a 55 mg/dL are much different than an 85 mg/dL.
This standard does not serve me well. Relying on these numbers, I make critical dosing decisions for insulin, a hormone capable of incapacitating and even killing me.
My questions for Roche are these: Do you support the status quo of ISO 15197 (meter accuracy standard) or do you recognize that this standard blindly compromises the personal safety of insulin using diabetics? Do you see a need for much more accurate home blood glucose meter accuracy? Have you taken any concrete steps to develop a more accurate meter?
I second, third, and fourth what Terry said. I feel this is one of the greatest needs (other than a cure) for diabetes care right now.
Amen. Several times.
AND, Bernstein says that the Accu-Chek is the most accurate and repeatable meter out there! Which means that if you use one of the others . . . ouch.