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Permalink Reply by marti w on April 28, 2011 at 12:18pm

between my pump and my CGMS, i tell people i'm a cyborg all the time. my friend's kids think it's the coolest thing ever to have a "part robot aunt"

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Permalink Reply by Natalie ._c- on January 24, 2011 at 5:58pm

The answer to are you doing heroin is, "Yeah, would you like some?" and point the needle at them.
As far as the don't touch her -- I suffered from that in the 5th grade, and all *I* had was imaginary "cooties"! Kids can be so cruel, and you just have to put that one behind you -- they were just being the immature little brats that most kids are. Kids are not born kind and gentle -- they are savages, and have to be taught to be civilized. Some become civilized by the time they are adults and some don't. (And if you're civilized, you have some loving parents and teachers to thank!)

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Permalink Reply by alngela on January 24, 2011 at 3:52pm

Mine is when I am at a dinner (i.e. church or work) and people see the choices I am making (healthier by the way) and the amount and assume I don't like the "good" food. then they try to talk you into cake. Please people its hard enough without the mother syndrome.

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Permalink Reply by Lila on January 25, 2011 at 5:25am

At buffet-style social events, I eat exactly the same meat main dishes as other people. The only difference is that I pile it on top of a big plate of undressed salad. Someone once commented, 'That looks distressingly healthy.' So I made it a point to eat the chicken skin right in front of her. Well, 'healthy' means something completely different when you have a faulty metabolism!

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Permalink Reply by Richmatik on January 24, 2011 at 4:11pm

There isn't much that people can say that bothers me, but when someone you're having a conversation with finds out you're a diabetic (I don't know about you, but I don't publically announce this information usually) and then spurs up a conversation like they're a know-it-all on the subject only to give erroneous or innaccurate information, that just seems to get under my skin.

I can't blame people for not knowing about something they don't live with themselves, but please, please, please save yourself the embarrassment that follows when you think you know something about it but you really don't.

 

Although, on the flip side of this - sometimes I can do nothing but laugh at it because some of the information they claim to know is so wildly bizarre. hah. ;-)

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Permalink Reply by Sue59 on January 24, 2011 at 5:33pm

My best friend is an RN who works in a nursing home. She doesn't understand type 1 diabetes. Once when we were visiting her for a week I had a couple of hypos and had to eat some glucose tabs. She told me that when I eat I should wait until the next meal to take insulin based on the meter reading, and if I have a high blood sugar to take insulin then for that blood sugar but not for the meal I'm about to eat. She gives her patients insulin on a sliding scale. I told her if I did that I would always have high blood sugars, she said well at least you won't be having hypo's.

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Permalink Reply by Natalie ._c- on January 24, 2011 at 6:12pm

That is exactly the protocol they followed when I was hospitalized for a week with a diabetic coma, and then for 3 weeks in a rehab hospital/convalescent hospital/nursing home in order to stabilize my BGs. It's a protocol that probably works quite well for those Type 2's who DO have the ability to get their own BG down before the next meal. You don't give insulin if the body is already making the insulin it needs to lower the BG.
Then, think about the fact that the vast majority of patients in hospitals and nursing homes who have diabetes ARE Type 2's. And that makes the nurses think they really do know all about diabetes.
Fortunately, when I was in the hospital, my friendly CDE told them I was a Type 1, which made all the difference in the world, because I CAN'T lower my own BG with my own insulin. Then, when they transferred me to the rehab hospital, I had to endure the Type 2 protocol for 3 days (it was over a weekend -- I would sit for hours in the 300's and 400's until the next meal) until I could find the hospitalist and get him to write orders for more frequent testing (Type 2 protocol is before meals and at bedtime), and insulin to cover meals (unfortunately, a fixed amount), and corrections 2 hours after meals as needed. Then, my BGs finally started coming down. However, it wasn't until I got to see my new endo and go back on the pump, that I finally got in control of my BGs. Never want to go through that again!

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Permalink Reply by Anonymous Jim on January 25, 2011 at 10:35am

Horror stories like this scare the heck out of me. I have heard of this happening in the past. I keep enough on me that most should figure out I am t1 and I have a known tort lawyer on my ICE contact list.

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Permalink Reply by Tracy K on January 24, 2011 at 8:48pm

we had to take our son to the hospital several weeks ago (for something non-diabetes related) and the doctor (who is also the cheif of staff) was asking about Ezekiels pump (which he had heard about since he is the only pumper in our community). He told us he had read about insulin pumps and asked us why we put our son on one since they are usually only used for brittle diabetics. It didn't really bug me, but i thought as one of the best doctors in our town and cheif of staff you might know a little more about something that is pretty common everywhere else. This is also the same doc that diagnosed him. Anyway, i just pointed out the fact that we can give very precise doses of insulin and that he went from 4-8 needles a day to one every 3 and left it at that.

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Permalink Reply by Sue59 on January 25, 2011 at 5:11am

My new endo told me last week that I don't need to aim for tight control because the ACCORD study proved that it doesn't make any difference in preventing complications. I had not heard of the study, so googled it when I got home and asked the question on another diabetes board if that was true. I got replies that it was a study done on type 2's who have cardiovascular problems besides diabetes. Number one I'm a type 1 and number 2 I don't have any cardio problems. Someone there mentioned that the DCCT trial proves that tight control prevents complications. So I now have an endo who doesn't want me to aim for tight control. Sigh

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Permalink Reply by Claire on January 25, 2011 at 5:23am

that's stupid. I've heard that ACCORD was a study pushed towards the results they wanted to get, with a high dropout rate because the patients were not able to adhere. On our last seminar, the doctor wasn't talking nicely about this study. Unfortunately I didn't take notes so I don't remember much from the lesson :-) but I wouldn't worry about what your endo said. Taking a good care about diabetes IS a way to prevent secondary complications. If you compare ACCORD and DCCT, I would definitely trust more the DCCT study :o)

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Permalink Reply by Lila on January 25, 2011 at 5:29am

Sue, it's amazing the ignorance of many doctors.

Claire, I don't think you will be among them. You sound like you are shaping up to be a totally clued-in doctor!

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