Whats the most annoying comment you've ever gotten about diabetes?

I've gotten quite a lot of really annoying and sometimes even hurtful comments about my diabetes...

When i told a family friend who (by the way) is an assistant nurse about my condition she said "really? but you will get better right? it will go away when you start taking care of yourself?"
and i said "no, i will always be a diabetic and i will actually get worse since my body will eventually stop producing insulin all together"
and she still kept insisting that I would get better in time and that my condition would go away...

i couldnt believe she knew so little

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With someone who loves you....all of you, Type 1 included!

I was at a conference recently and there was a panel of family members and one woman kept referring to her husband's Type 1 as his "affliction". "Affliction??" and this guy who was about 65 years old was a very active racing cyclist and D advocate - nothing about him seemed "afflicted". If I was 18, diagnosed with Type 1 and dating, I would be looking for guys who saw me as the strong self-sufficient woman I am, not someone "afflicted" or who had to be "taken care of".

He is a lucky guy! I don't know about women with this, but I do know myself and my brother, who both have had trouble keeping people in our lives. T1 causes issues with mood, especially when low, which can make us difficult to be around. I know my brother's wife left for that reason and I myself know it has caused problems with my relationships. Not saying it will, but just so you know the pitfalls it can cause.

Yeah, that's how I see it. A friend of mine ask me this question a little while ago, "If you didn't have diabetes what would you do differently in your life?" I sat there thinking about all the wild adventures I've had in my life, and that I plan to keep having, and I said "Ya know man, my life would be exactly the same. I already do whatever I want to do, diabetes doesn't restrict me at all...it just makes me a little more precautious when I'm climbing or skiing or whatever."

My life would have been very different if not for T1. Had planned to join the military, let them pay for college after a few years. I could not get in with T1 so had to figure that out on my own. Took about 13 years but did get it done on my own. Who knows where life would have taken me if only.....

Girl at school: "You can't have chocolate, can you ?"
Me: "Of course I can eat chocolate. I can eat anything I want."
Girl: "Ah, I know, that's what you've got your insulin for."

In the last few years I've met so many people who think diabetics only need insulin when they want to eat sweets. Most people at my school know of my diabetes. But they are totally unaware that I have to take insulin for non-sugary foods too. This girl was shocked when I told her that I have to take basal insulin even if I don't eat anything. Her reaction was like "Well ... I think I couldn't live with that."

Personally I think we'd all be better off if Diabetic educators went back to suggesting people needed to limit sweets and other carbs in their diets.

For adults, I definitely agree. For children, it's a tighter line, because all their friends are eating candy and cake and cookies and ice cream and pizza and soda and hamburgers, etc. And teenagers, especially, mostly want to be part of the crowd. So I think the emphasis needs to be to learn how to eat that stuff appropriately (like one slice of pizza instead of the whole thing), and how to dose for it.

With that said, a major problem I've observed over the past year is that children with diabetes grow into teenagers, with their parents still taking most of the responsibility, and then all of a sudden, they're adults, and they really didn't understand what was going on, and they've moved away from home, and don't have a clue as to how to manage their diabetes, because it was always done for them. I think ages 15 - 30 are a crucial time for young adults with diabetes, and that's the time to teach them about carbs, and appropriate eating and calculating ratios and handling stress, exercise and illness, and all the other things that mess with BG control. In the past, insurance companies (if they had insurance at all) wouldn't cover the intense education they need at this time in their lives; I don't know if that will change with Obamacare, but I somehow doubt it. Maybe someone will cheer me up in this department!

When I meet parents of those with kids with T1 I try and stress to them that they need to teach their kids to take care of themselves. We are all primarily responsible for our own health and well being, and these kids need to have as much information to take care of themselves. Parents need to let them, too!

I think I just see a larger cultural attitude of self-indulgence. We all seem to feel it is our entitlement to eat carbs, sugar, etc and not to in any way be deprived of anything. I think the change of doctors attitude from advising Diabetics to not eat sugar and lower carbs to "you can eat anything you want and bolus for it" is symptomatic of that incredibly spoiled entitlement that's become almost the hallmark of our materialistic culture.

Oh! I do that because I want to "live" my life, or did in the past anyway. I eat much better now than I ever have. However, I don't listen to doctors either. After so many years of T1 I know as much as I need to know. Most of the doctors I have talked with don't have as much experience with this as I do, and don't live with it either. They are a necessary part of getting my meds and testing, but otherwise I haven't gotten good or new advice from one for years.

I think my point is that our cultural value defines "living our life" as indulging every whim, satisfying it immediately and to excess and anything less as "being deprived".

I don't think they market it correctly. It's way more self-indulgent to do less work and I am 100% certain that eating less carbs is less work. I don't totally low-carb b/c I'm sort of nutso and enjoy experimenting and risk taking and taking little boluses and jellybeans here and there to "cover" experimental variation but it's important to have a strategy and I don't see how the medical industry hasn't figured out the benefits of lowering carbohydrates and all of that.

Although the last couple of years, I guess I've seen places tossing less fries on plates and stuff like that but I wasn't sure if it was medically oriented or more a consequence of the restaurant industry struggling with the economy.




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