Who were you with when you were first diagnosed?
What were you doing when you had that thought "something is wrong"?
When were you diagnosed?
Where were you when you first heard the D word?
Why do you feel your one of the lucky ones with diabetes?

Tags: diagnosis, dx, new

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Who were you with when you were first diagnosed?
My mom took me to the doctor and, later, my dad joined us at Emergency.

What were you doing when you had that thought "something is wrong"?
I knew that I was INSANELY thirsty all the time but I didn't really think anything was wrong because I was only 9. My mom was the one who put together the thirst, weight loss, and me complaining of not feeling well and, realizing "something" was wrong but not knowing what, made a doctor's appointment.

When were you diagnosed?
October 8, 1991.

Where were you when you first heard the D word?
In the doctor's office with my mom.

Why do you feel your one of the lucky ones with diabetes?
I live in a country where healthcare is provided to everyone and where I have access to the medications and technology I need to maintain good control.
My husband and the ER staff
I was at work and thinking to myself, "No one is THIS thirsty".
May 27, 2010
In the ICU
It has made me look at all aspects of my health and actually take better care of myself.
Who were you with when you were first diagnosed? My husband and son

What were you doing when you had that thought "something is wrong"?

I was on my 2nd day of vacation in the Dominican Republic and became very sick.
My resort arranged for me to see a dr. I was pretty delirious and out of it, and heard , "wow she's really dehydrated, then I heard him say, "why, she's diabetic". and "We need an ambulance." I had appendicitis. They took me by ambulance to the hospital and I had an emgergency appendectomy. Not another word was said about diabetes. I was really out of it, there was a huge language barrier, and I don't remember if I ever asked anyone at the hospital about it. I was in the hospital a week.

When were you diagnosed?

June '09 When I got home from the Dominican Republic, the first thing I did was go to the Dr...where he then ran blood work.

Where were you when you first heard the D word?

I dont remember. Every adult on my fathers side of the family is type 2, my younger sister was type 1 and died this past November at the age of 45. She'd lost 3 toes and got MRSA in the hospital at one time, I think it ended up systemic.

Why do you feel your one of the lucky ones with diabetes?

Because I managed to avoid it until I was 50, and seem to finally be getting my numbers down. I have more work to do. I need to exercise more. I managed to avoid gestational diabetes, although I had a 10 pound baby. Both my sisters had gestational diabetes. The younger later had pancreatitis and almost diedand and was type 1 after that.
It was a gradual process. I was in treatment for breast cancer, and about to go in for yet another surgery. My husband (who was always on top of everything) noticed in my labs that my bg was almost 400. He walked across the hospital to my oncologist's office, and was told it was because of the massive doses of steroid I'd had for radiation pneumonia. Not diabetes, it would go away. They had me take insulin and call if my bg went over 400. I woke up a lot of oncologists ;) I wasn't able to distinguish the 'wrongness' from treatment and multiple surgeries from any other symptoms.

That was 2006. It didn't 'go away', my beta cells were permanently destroyed by chemo followed by steroids. So, I didn't really have a moment of diagnosis, or hearing the D word, just a gradual realization that this wasn't 'going to go away'..

I'm really lucky to have a fabulous medical team who actually listen. Very luck to have started on my Ping 2 wks ago, it's been life changing.
I was with my parents.

I didn't think 'something is wrong'.........I was six. I probably just thought I was sick.

I was diagnosed in late July of 1992.

I was in the hospital when I first heard the D word. I had an aunt with Type 1, but as a small child I didn't know about it, and if I did I wouldn't have understood it anyway since I only saw her about 2-3x a year. So I didn't hear it until my own diagnosis.

I don't feel like I'm a lucky one with diabetes. I don't think anyone with diabetes is 'lucky'....
Who: I was with my Mum.
What: She recognised the symptoms and bought a test from boots. It was around xmas time and I had lost so much weight, I looked terrible. She done it at home and it came out positive. I laid on my bed for ages crying and all because I just thought I couldn't eat chocolate or sweets anymore - if only it was just that - I was only 10. She took me straight to the doctors.
When: Jan 2004
Where: Found out at home but diagnosed by the doctor and referred to the hospital.
Why: Hmm ... I still need to understand and figure out why I should think myself lucky to have this!
1. the who was my mom & dad. My mom & Grandfather was the ones who took me to the country dr that then sent me to the "big town" dr
2. I thought I had the flu in the summer of my 10th year
3 I was diagnosed in 1073
4. I had grew up with diabetes b/c my 1st cousin had it so I guess all my life but the 1st time I heard it assocated with me was in the small town drs office that day.
%. At fisrt I didn't but now as my mom told me years ago, "just look around and you will always find someone else worse off than you" I started doing just that and I've found someone who even though her daughter is 32 I think she's NEVER heard the word mama b/c her child can't talk. Not deaf but has something like CP and else. Yes I do look at myself as lucky compared to many ppl in this world who can't even do the things we take for granted each day.
Who: I was with my Pastor in the ER before being sent up to ICU
What: I was waking up in the middle of the night every few hours to pee and then I got 7 charlie horses in one night.
When: September 27th, 2007. There was a going away party for a co-worker, I had a slice of cake and felt horrible after that.
Where: In the ER, I knew my blood sugar was 518 (for a non diabetic that was scary) I kept saying to my Pastor that was there at 11:30 at night, "I don't want to be diabetic, I don't want to be diabetic". I spent 2 days in ICU and left with the understanding that I was in fact a diabetic. It took a little bit of time to get it all sorted out, I was 27 and had just become Type 1.
Why: I feel that I'm one of the lucky ones because God's controlling me. He's given me the motivation and desire to work with my diabetes and in the process I'm learning more about suffering, persevering, humility, and seeing God as my Father... because he's my provider and protector. Since becoming diabetic, my relationship with God has become far more solid.

Who were you with when you were first diagnosed? I was by myself. I bumped into my pastor in the waiting room beforehand, though, and told him what was going on when he asked me why I was there. He told me he would pray and that helped me feel less alone. What were you doing when you had that thought "something is wrong"? After a week of 2 or 3 nightly bathroom trips. Since type 1 runs in my family, I knew that I was experiencing symptoms. I tried to explain it away, though, and didn't get it checked out until a month later. I was doing laundry and needed half an hour to haul my laundry up the three flights of stairs from the dorm laundry room to my room. When I was done, I needed an hour long nap to recharge. When were you diagnosed? January 24, 2012. My blood sugar was 342; high enough to make me feel really bad, but not high enough to require hospitalization (thankfully!).
Where were you when you first heard the D word? I don't remember where I was when I first heard the word, but I know I was about 9 years old. I first learned about type 1 when my cousin was diagnosed at the age of 7.
Why do you feel you're one of the lucky ones with diabetes? I don't really like the word "lucky" in this question, because I don't really believe in luck. However, I do have a lot to be thankful for. First, I am very thankful that I'm alive and fairly healthy. Prior to the isolation of insulin, people with diabetes lived short, painful lives. Life with diabetes might not be fun, but I'm grateful for the chance to live!

I'm also grateful that I don't have to deal with diabetes on my own. I have an uncle and two cousins with t1 diabetes, so I've known the basics of type 1 for a long time and I know they're there for me when I have questions and need support. (My patient uncle put up with calls from me at all hours of the day and night in the weeks immediately following my diagnosis and still gets lots of calls). My boyfriend's sister has type 1 as well, so he was in some ways more familiar with it than I was when I was first diagnosed and has been a great help as I'm in the process of adjusting. I've got many, many supportive friends at school as well who have driven me to appointments and the pharmacy (I don't have a car at school).

I don't understand why, but I believe God allowed diabetes in my life for a reason, and I'm confident that He will bring good out of it, even though diabetes itself is bad. One of those good things is increased humility. It's reminded me that I'm not invincible and given me greater sensitivity to struggles other people are facing.

Who: I wasn't actually present. At dx I was in a coma induced by DKA. I didn't really wake up until the ICU--my mother was there and told me I'd been diagnosed with diabetes.
What: I'd been ignoring symptoms for a couple of months. Probably the biggest clue was having to get up in the middle of some movie to go to the bathroom. And being willing to drink from the fountains at the theatre. And then there was that last really bad nausea thing that I had going on.
When: 24 July 2008. I was 31 years old.
Where: In connection with my personal body? In the ICU as I was drifting back to consciousness. I'd heard of it before, but not in connection with me or anyone else in the family.
Why: I don't know. Sometimes bad things happen, and there isn't ever a good reason. I just have an overactive immune system, I guess. I may never know the proximate cause. But it doesn't really matter, I just have to deal with the reality I've been given,

Who: my mother.
What: I was making a new notch in my belt because it had gotten too big.
When: September 1, 2006- about two years later.
Where: Ironically, I had been interested in diabetes for years. The first time somebody agreed with me that my symptoms might be diabetes was when I was talking to my boss about my symptoms, about two weeks before I was diagnosed.
Why: 'Cause I'm special.

Who and what and where all go together for me. I had been wondering for a couple months about increased thirst and peeing. Then I started losing weight without trying which at my age (58) was definitely odd. I knew the first two things were indicative of Diabetes but didn't know about the weight loss so I looked it up online and saw it was. So I asked my doctor for a blood test. When they called and said my fasting blood sugar was 325 I didn't know what the number meant, so just said "so that means I have Diabetes?" I wasn't surprised and just assumed I had Type 2 as that "was what people my age got". The doctor assumed the same and I didn't figure out any different for 15 months. When Original diagnosis - July 2007. Correct Diagnosis and treatment - February 2009

why am I lucky? Because I'm smart enough and the internet is here and TuD is here, to figure out I'm actually Type 1. Because I have good insurance (even into retirement) and can pay for my medical needs including my pump. Because I have all of you.




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