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Comment by cherie on May 9, 2013 at 5:22am

Ok so I went on Byetta and reacted to that drug, My doctor is saying that pretty much they have tried all that they can for me..Here in Australia and New Zealand I am facing the same thing they have never come across anyone like me..It is so frustrating as I am here right infront of you help me!!! I think I would be better off in the UK or USA you seem to get all the help..I am at my wits end..!!

Comment by Gail N. on April 26, 2013 at 6:05am

Hi; I haven't been here for awhile but just read the latesty comments. I take apidra on insulin pump but insoppulin stops me from sleeping wake up every 2 hrs with crazy dreams all night long since I started 4 1/2 yrs agi. Take benadryl to sleep helps slightly am allergic to allinsulins have tried them all used to take pork for 25yrs until they stopped making it; have very rare problem have seen many physicians i USED to get hives but only in summer that stopped last yr but who knows why about any of these crazy reactions to insulin

Comment by mollyjade on April 24, 2013 at 7:22am

That sounds really rough and scary, maryann. I hope you and your team of doctors can figure out a solution that your body can tolerate. Have you tried cortisone cream on your injection sites? It doesn't affect your BGs the same way cortisone shots do. Though that's because your body doesn't absorb as much.

Comment by maryann on April 23, 2013 at 10:38pm

i am on day 2 of a 3 day cortozone drip to try to suppress the reaction i am getting to insulin, we have tried all insulins, within a few weeks of being on an insulin the reactions start, usual small rashes which become unbearably itchy and spread all over, i am also starting to notice swelling of eyelids. i actually went to a dermatoligist with every insulin available here in SA, he did a series of patch tests which showed that i had +++ reactions to all of them. Only 1 had no reaction to- was Biosulin L- which i then switched too. i was on it for about 2 months when the reactions started there too, and then went into the worst reaction ever ( my whole one side of my face swelled up) within an hour - from nothing to that, so i am back on humalog, have been for about 2 months and reactions have started again- happy days!!!! the cortisone inj. did help, i had a reasonable night of less itching, but my bg this morning is 18.8 so have had to up insulin. also injection made me feel very nauseous.

Comment by CWDancer on March 2, 2013 at 5:14pm

I have a strange reaction when I give myself my insulin. When I give my shot the enzymes in my skin eat up the insulin before it gets into my body to do anything. Also what actually gets by that gets released hours later when there is no food left in my stomach. My doctor and I have been fighting medicaid and medicare since 2011 for an insulin pump but they keep denying it. I don't know if this is an alergic reaction but it is definately a strange one. No one has heard of this reaction before. When I saw this group I thought I might fit in here and not feel so alone.

Comment by Jennifer Dharmasurya on January 1, 2013 at 6:57pm

How many kinds of insulin are there to try? I've so far reacted to NPH, Novo-Rapid and Humalog. I'm just wondering how many kinds I'm going to have to try before I find one that works. And what happens if you can't find one that works?

Comment by mollyjade on January 18, 2012 at 2:06pm

I took Lantus for ten years before I gradually became allergic to it. Thankfully, I've been able to switch to Levemir without any reactions. But I've got about 30 keloid scars from the injection sites, which my doctor says usually only occur from something really traumatic like surgery. I hate having a visual reminder of diabetes on my body.

Comment by Gail N. on October 21, 2011 at 3:56pm

Hi everyone; I haven't been here for awhile but still struggling with my allergiv reactions; hives; and many other symptoms. I was wondering how the other members of this allergic to insulin group are coping with their allergies. Would love to correspond with anyone who posts, Please comment back and let me know any details. We are few and far between and nobody else understands what I go thru not even other diabetics who are notallergic.

Comment by Nearing40years on March 18, 2011 at 8:19am

I moved over to your discussion page to post now. One thing I would note here--with myself and others I know with severe or unusual allergies, in the end, we end up finding the answers ourselves. Usually through research and very good documentation of reactions to medications, etc. I suppose it's because we live with the problem and know what is real and what is not. Having multiple conditions that are rare, I generally do lots of research and then wing it! I'm actually estatic when my skin rash or mouth sores have genuine names!! Is that wierd?? :)

Comment by Gail N. on March 17, 2011 at 3:14pm

Hello Nearing 40 yrs;
thank you so much for your story; you do sound like me in many ways; I;m wondering where do you get the red welts; all over or just at your sitesof injection?and also where do you form the hard lumps? I find it fascinating to find anyone at all who reacts to so many things- not just insulin-just like I do. Also; may I ask which blood pressure meds can you tolerate? I've tried to take some beta blockers because of sometimes high pressure and a fast heart rate(by the way Bendadry I read can cause a fast rate in rare people) ha ha that's us ; and I could not even tolerate a very mild one Toprol or the other Diovan- so I take nothing and that's not so good; Sometimes I feel my heart racing and I don't know if its due to Benadryl itself; diabetic retinopathy which cardiologist said could be a mild factor- or maybe my allergy to insulin raises the rate alone - who knows? I ;m also curious if you have found any supplements useful- i take quercetin with bromelain- its supposed to quell allergies and inflammation; don't know if it does anything for me. I also cannot tolerate any antibiotics; its terrible; I also had to take it for years for dental work due to a slight mitral valve prolapse; and then they changed the rules about that and I suffered all those years from unnecessary antibiotics for dental work. I'm wondering if you also have mitral valve prolapse- theysay manypeople who are highly sensitive to medications and all kinds of environmental issues also have mitral valve prolapse- i'm not sure if i have found a connection because I know others who have it and have no problems withtheir meds at all. I alsohave to use the nongeneric Valium- because the insulin makes me agitated almost like i am taking a steroid- and the generic form once agreed with me but now does not- very very expensive and not covered by my plan even though I take it for strictly allergic reasons and reactions.. Thanks for any info and so interesting to hear your story and others; what insulins were you on for all of these 40 yrs? I'm wonderng if people who were started on animal insulins- over 25r yrs ago had a problem then switching over or if that has nothing to do with it; Again- i never felt right on pork either so maybe has nothing to do with it.

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