Comment

Comment by Sarah on September 24, 2009 at 8:09am

Hi Tony - it has been a while since I checked in, thanks for your kind words and advice and encouragement! It is a long haul, I am a teacher and like to be in CONTROL - so the high numbers are what make me frustrated. Plus, you know what it's like - you get older and the weight doesn't come off like it used to! I have lost 27 pounds in the last 13 months - slow but steady, my numbers are still in the 200's but no side effects like with glyburide or metformin. So, that's cool. I feel less frustrated as I lose more weight but for the first time in my life I am scared about the diabetes - scared that even as hard as I am trying, I will end up losing my eyesight or something in the future. I used to be diet controlled. But, who knows? The weight loss is important, at some point it will make a difference. I will try the walking after meals and REMEMBER TO DRINK!!! Thanks again!

Comment by carolyn mcquis on September 23, 2009 at 6:52pm

Has anyone had any experience with Novolog 70/30? I am on it and have joint pain. Endo says it's nothing to do with insulin. Mighty strange I never had this until on insulin.

Comment by Tony S. on September 20, 2009 at 11:18pm

Hi, Jerry --- was having same problem recently, but diabetes educator told me to eat a small protein snack before bedtime. Reason is body is lacking protein and thinks it needs to retain glucose or the body will starve during the 6 to 8 hours of no-food. I suggested a tablespoon of peanut butter and she agreed that would do it. Worth a shot, so to speak. I did this once before, just by chance, and was surprised at low a.m. reading; I knew I'd eaten a late snack, but counter-intuitive as it seemed, it worked, the numbers were lower. good luck.

Comment by JerryInPDX on September 20, 2009 at 9:40pm

Glad I found this forum!

I have been searching and for a few references, but I figured id throw the question out there:

Has anyone seen real improvement in their morning test as a result of using byetta? I seem to be doing pretty good with my 1000MG metformin and exercise during the times im awake to manage things (94 2 hrs after dinner tonight :) but in the mornings and fasting im pushing 140-150's (this reading at a yearly physical led to my T2 diagnosis)

Im not crazy about injections but ill suck it up if there is a chance it will help. Im not even sure the doc will give it to me with most my other numbers in the 80-120 range but... Id loooove to fix that morning number!

So... its it helping your morning numbers?

Comment by Tony S. on July 26, 2009 at 6:21pm

Hi, Sarah Congrats on the good work and results! I started Byetta in April and threw myself into exercise and diet. I'm down 17 lbs. and still losing. My numbers, like yours, are also up there. I saw my endo on Wednesday and he said not to worry about the numbers, the Byetta is working, and was really elated about the weight loss, which he thinks is more important at this stage. He believes if that continues, I may come off of Byetta eventually. His belief in Byetta is that it is regenerating/restoring Beta cells and that that takes time. I really feel great and healthy despite the numbers, which confuse me too. Some tips: drink plenty of water and walk after meals. I'm also trying to eat more low carb and avoid high-glycemic index foods.

When you say you feel miserable, do you mean frustrated at not being able to figure this stuff out? That's how I feel from time to time. I do trust my endo. I got off the drugs like Glyburide which they say wears out your pancreas. I want to get down to only Byetta and then the doc says I may come off that too.

Hang in there and give the Byetta a little more time to work. And stay in touch --- keep up the good work. We all get down about this but it is winnable. Chin up!

Comment by Sarah on July 26, 2009 at 1:20pm

It is great and informative to read all these comments. I started Byetta a week ago, have eaten PERFECTLY and exercised every day. I lost 6 pounds the first 2 days! And I have gained two since, and my sugars are the SAME all the time. 201, 210, 213, 202, argh. All times of the day. I have a terrible liver disease as well so I can't handle a lot of meds. This is so frustrating. I am pretty miserable. Any ideas?

Comment by Ahmad on June 25, 2009 at 6:26am

I don't use Byetta, but find this free offer and thought about letting you know about it!
Free BYETTA Pen Carrying Case

Take care

Comment by Tony S. on June 8, 2009 at 2:18am

Big realization for me tonight: I'd had a good dinner, but an hour or so later I wanted to eat again. When I thought about it, I wasn't really hungry at all. I've been on Byetta for almost 2 months and have lost some weight already. With Byetta I'm usually not hungry after meals. But then I remembered a slogan from Al-Anon: it's the word H.A.L.T. standing for Hungry, Angry, Lonely, and Tired. Any one or combination of these feelings is a red warning signal to STOP and analyze what's going on, before you do something to harm your recovery. I realize that I do have a cold and am somewhat depressed about a situation with a friend, and I guess the cold's made me tired. This memory lead me to see that overeating for me is really emotional --- and that the recovery here in this forum is still recovery, on many levels, no different than in a program like Al-Anon. Recovery is first of all and most profoundly a spiritual journey. Here I've been imagining Byetta was the Silver Bullet that would cure my problems; you know, quickly: Lose Weight, Feel Great. But as they also say in Al-Anon: "Let it begin with me." Meaning any recovery must begin with me. That I've got to be my own Silver Bullet, not the Byetta. I'm in charge here, of my disease, not the doctor or the meds. I've decided NOT to live by what the scale says, or the glucose meter, or the HgA1c test results, but rather listen to myself, how I'm feeling. I need to learn to be more patient, both with Byetta's slow progress and my own slow spiritual/emotional healing. And I need to change my own attitudes and behaviors, especially regarding dieting and exercising, and to go out there and make my recovery happen. I wonder if anyone else has given thought to these things. It's late, and I'm not sure I'm making any sense. Anyhow, thanks for reading this.

Comment by Pamela on June 4, 2009 at 5:32am

Well here we go with a new month...6 months into 2009...Where does the time go....Oh I remember...Day by Day with Diabetes...Hour by Hour with Byetta....Oh Well...guess someone has to carry this cross.....I just thought I would give all of you a SMILE today. I am sooo thankful for all the good advice and encouragement. I am doing really good since my last "hick-up". My doc lowered my dosage back to 5mg. Then we found I could lower my dosage of synthroid. So all the aches and anxiety have slipped away. I have come to recognize which symptoms go with what disease finally (after 20+ yrs). My bs average is around 110 now. My T1C is the lowest its been in years...6.0. I give most of the credit to Byetta. I don't think I could of corrected my eating habits as easily without it. All the days of nausea really helped break bad habits of munching and emotional eating. It kept awareness forefront in my mind throughout my day to make good choices or feel bad the rest of my day. I hope I can encourgage any doubters to hang in there. Give the Byetta a fair chance to work. Its a very slow weight loss process that really comes by your eating habit changes. I do enjoy my meals now and DON'T crave sweets at all. I find it easy to say NO to sugary things without feeling deprived. When I feel the desire for a dessert or extra snack I lean on no sugar puddings or Dreyers NO FAT/NO SUGAR ice cream. The rule of thumb is to eat a balance of protein and carb at each meal. Don't take meds AFTER your shot. Those are the secrets to my success I think. Thanks to "my many friends" here that helped me through some tough times. I will try to be here for anyone that needs a hug or a shoulder. In all reality it will be a lifelong fight to contain the D monster, but to know we don't stand alone on the end of the cliff when we are cornered by it, really really makes us powerful. So put that smile on and begin again if your on your knees, but always know that your in control, not the D....Your All in my Prayers....PAMMIE

Comment by Joanne on May 29, 2009 at 8:00pm

I have been on Byetta 10 mcg for about a year and don't see changes that warrant the cost of the treatment. My A1C came down 0.2 and my BS are not a whole lot different and have lost no weight , so am I doing something wrong ? I also take Metformin 500 mg bid and Amaryl 2 mg bid. My sugars range from 114- 180 but am desperate to lose weight. I gained weight when I first started with Amaryl and just can't lose any. Help !!!

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