Replies to This Discussion

Permalink Reply by LavanderBlue on June 18, 2011 at 9:14am

You were diagnosed as a T1, and you are an adult? Are you sure you didn't mean T2? just asking.

I'm in the Quebec province and there was something like that, 3 weeks ago. I wanted to go but, i could not affoard it. What part of Canada are you?

Permalink Reply by JLey22 on June 18, 2011 at 11:09am

Yup, I am a 1. I have the honor of being my endo's only one of that age. I am in Nova Scotia but I would be willing to travel elsewhere.

Permalink Reply by nel on June 20, 2011 at 9:35am

Jley22, I like to suggest to get a hold of Tu member Jen ( Hanson ) ...she is on the Canadian site as well and maybe she can help you .
I googled your question , however it seems to be for type 2's the way I read it .

Permalink Reply by Virtue on June 22, 2011 at 8:18pm

I'm Toronto. I know that Women's College Hospital used to have something like a week long course around all things diabetes. You need to be referred by your physician and I'm not sure if you have to be living in Toronto. I have done the course a couple of times. It's been a good refresher course... though I know the staff has changed a bit since I was there last and the program has gone through some shifts. I'm not sure how this has impacted things. The clinic is called Tridec and their site is here: http://www.womenscollegehospital.ca/programs/program107.html

I am more than willing to help you out if you want to email/chat. I'm not a medical personel, but I've had Type 1 for going on 18 years and I can at least offer some support. Do you think that part of what might be happening with you is that you are coming out of the honeymoon phase? Things can get tricky during that time...

As for Jen (she is great!), I am friends with her and she helps run a group called Connected in Motion (http://www.connectedinmotion.ca/ ). They are having a canoe trip one weekend in August. The trip is full, but you can register to be put on the waiting list. There is another event they do on a weekend in January. If you follow them on Facebook they also post various events going on around the country and sometimes from the US.

I hope some of this is helpful. Let me know if you have any questions...

V.

Permalink Reply by Tracy O on June 27, 2011 at 8:13am

Hi JLey,

I was also diagnosed with type 1 later than most and it is so frustrating that every thing I find is about type 2, which is ok but I really would like more information on type 1. There doesn't seem to be enough support or information around people getting type 1 in adulthood.

Permalink Reply by Virtue on June 27, 2011 at 12:33pm

I think there is generally a lack of type 1 supports for adults, but it's especially frustrating when newly diagnosed :(

It's not quite the same, but: I was diagnosed when I was in my teens and too old for any of the camps, so I didn't even know anyone else with diabetes until a year or two ago... I remember trying to at least find support groups and they told me there were none available at the time for people with type 1. At least the internet came along, but it really shouldn't be the only thing there for people.

Anyway, I will keep you guys in mind and let you know if I hear of anything happening in your areas...

V.

Permalink Reply by nel on June 23, 2011 at 6:04pm

Jley, am I correct in my thinking, that you likely are aware of this program ?? ...yes waiting for appointments as you mentioned for 2 -3 months is less than ideal !!
Is your Medtronic Pump Nurse available to you ?? Use the person, please !!!
http://www.diabetescareprogram.ns.ca/dc/HalifaxQEII/halifax_qeii.asp

Permalink Reply by nel on June 24, 2011 at 1:10pm

I received an invite from Chris Jarvis yesterday for a July event in the Okanagan, BC ...a little bit of research took me here : http://www.eventbrite.com/org/802030185?s=4405771 He has lots of stuff happening Canada wide ...hope useful

Permalink Reply by Tracy O on June 27, 2011 at 8:09am

This is exactly what I was thinking. There really should be programs that are not so pricey. If anyone hears of anything in the Manitoba area please let me know.