Celiac and Diabetes

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Comment by Michelle Curtis on November 14, 2009 at 2:57pm

Emily, there are a lot of us! I know plenty from childrenwithdiabetes.com

Comment by Emily Barnett on November 13, 2009 at 4:21pm

So glad to find this group. My 10 year old son was diagnosed with diabetes and celiac this summer. people say it's common to have both, but i'm not buying it! We can't find many people or info. So grateful for this site!

Comment by Aja Fernengel on September 25, 2009 at 5:08am

trying something new that is gluten free is always sketchy with how much insulin i need to take because i have found some GF items that i just can't eat anymore because it doesn't matter how much insulin i take when i eat it, my blood sugar will not come down from like 300 for HOURS and it's *awful* so i'm jsut throwing it out there that you may find some gluten free foods that you just can't partake in~ I also have a pump and it it awesome for everything else but those select foods that jack my blood sugar :)

Comment by Brooke LeMaster on July 15, 2009 at 10:43pm

to Amy, first, I would start counting carbs on injections before going on a pump.

a lot of GF foods have more carbs then non GF foods, but counting carbs makes it EASIER to track. I program what my sugar is into my pump, then how many carbs I ate then it caculates for me how much insulin I need. I still know how to do all that stuff by hand should my pump break or something or I just feel like being in injections I know how. Celiac doesn't seem to make a difference on a pump or off.......I think a pump is much better control (at least for me).

Comment by Amy Carbonneau on July 8, 2009 at 9:16pm

I'm new to tudiabetes also!

I was diagnosed with type 1 dibetes when i was 18 months old (i'm almost 21 now), and i was diagnosed with celiac right before I turned 2 years old. I'm really wanting to switch over to the pump. Is it complicated counting carbs with the pump and celiac? (I don't currently count carbs-I'm still on the 4 shots a day no matter what my sugars are plan.)

Any info anyone has would be great!! :)

Comment by Marc Wilson on July 7, 2009 at 7:05am

I'm new here too as well as new to Celiac disease so I'm no expert but this youtube video should answer your questions and has a lot of good info...

http://www.youtube.com/watch?v=QR2LvQmoF1Y

Comment by Jan Kaay on July 4, 2009 at 11:15am

New here...so this may be the wrong place to post my questions but, here goes...

Are there "degrees" of celiac? Can someone have it "a little" and another person have it "a lot"?

Can those with celiac tolerate a little bit of gluten, such as flavoriing with soy sauce or wearing lipstick?

Can celiac appear in very small children, or is it a disease that develops over time?

Thank you for your support and time.

Comment by Brooke LeMaster on June 22, 2009 at 7:22pm

I work at a diabetes summer camp and some of the people there have celiac as well so that helps. But....it is what it is. can't change anything about it, only work with it!

No, never heard of stop n shop lol. I shop at Sunflower Markets. Cheapest I have found compared to Whole Foods stuff. Trader Joe's has some stuff too. But even Safeway has begun to sell GF foods!!!!

Comment by Katie on June 21, 2009 at 9:20pm

Hi Brooke - Wow I had a very similar experience last fall. Positive blood work, negative biopsy for celiac, but was put on a GF diet and felt much better. Although it is so hard! (and I've also had type 1 for 9 years) And I find myself with simple bread cravings. And am totally frustrated by the high price of GF food.

Do you have a stop 'n' shop near you? That's the cheapest place I've found that has GF food. I've also found it quick and cheap to make GF casseroles over the weekend to eat through the week.

Sorry to hear you're going through this - but glad I'm not alone! Good luck with this and glad you posted.

Comment by Brooke LeMaster on June 21, 2009 at 9:02pm

to Sean's post, I have been packing lunch meat (that is GF) and munster cheese and I will wrap the meat in the cheese and have a cheese wrap thing. Rice cakes, veggies, fruits, GF pretzels, GF cereal bars, GF pasta....dried fruit. thats typically what I take in my lunches. Kinda plane sometimes. But I am also at work and can take some GF frozen meals and heat them up in the microwave. Can you put an ice pack in his lunch box to keep it cool? thats what my mom did for us when we were kids. we would just bring the lunch box and the ice pack home every afternoon.

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