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Celiac and Diabetes

Well, since Celiac Disease (Gluten Allergy) is such a prevelant disease with diabetes, I figured we needed to have a group for it. Let this be a group for questions and suggestions.

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Another Gluten Free site

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Type 1, Hashimotos, and now Celiac -

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Comment by Trudy on April 10, 2014 at 5:32am

I prefer white wine, Riesling for a treat, but a glass of red now and again is also nice. My weight is low and stable, but increasing the size of meals would soon change that! So would eating all those rich GF cookies for sale... I guess there's something to be said for eating mostly meat, fish, vegetables; I also eat fruit, esp. apples and berries.

The "Stop Following" showing on this page means you will get an email whenever someone posts on here. You won't be notified when it says just "Following"; clicking on it changes it back and forth. I notice that one of your comments is blank--you can delete that by clicking on the little x on the upper right hand corner of the comment. You might like exploring this site a bit; much has been added in the last year or so. There are live events on Thursdays on the homepage. Many people like using the chatroom. I'm a bit of a lurker myself, but I love TuDiabetes!

Comment by Charlie on April 9, 2014 at 6:18pm

I love dry red wine and usually stick to one glass day. On this page someone talked about gaining weight. I eat 50 carbs at most meals unless I am on a cruise. I weighed 128 when I joined the USAF in 1957. I weigh 132 now but I do a lot of excercise and bike riding. If I am the one "following" I apologize I'm not familiar with using this post and this is the first time I have commented in years.

Comment by Charlie on April 9, 2014 at 6:07pm

Comment by Trudy on April 9, 2014 at 5:16pm

I guess when we have autoimmune diseases and have had to deal with such as hepatitis, life is a constant daily experiment. That GI doctor was obviously clueless. Btw, I'm 83 years old and have 5 autoimmune conditions.

Good story about the first GF beer! I do envy you your ability to drink beer. I now drink Redbridge (not too much foam!)and wine.

Comment by Charlie on April 9, 2014 at 4:46pm

I have talked to some who can drink beer and others that can't. CD is usually genetic but a blow to one's system can cause it. I got lucky and went to Thailand instead of Nam.
I wasn't exposed to agent orange but managed to come back with infectious hepatits in 1966, then it was Diabetes in 1971 and DH in 1992, CD in 1996, before I got a computer. All of this was explained in the artice I saw, in fact it was one of the best articles I have ever read, written by Dr. Murray's nurse & and she often speaks at the CSA conferences.
One time I asked this GI doctor why my villi had never been affected by drinking or using the same toaster. He said; "you don't have Cd and you can eat regular food" I hurried home and told my wife what he said. She said: "that is BS just because the first GI doctor you saw can't find your records, still I would stay on a g/f like the Article said." If you have ever seen someone with those red, itching DH blisters, there is no doubt that I had that". My dermalogist refused to see me about getting his records, and his nurse said "He only does liposuction surgery & he won't see you". I had even told him that I was on a whole wheat diet because of my diabetes and he thought that was a good thing. I even put wheat germ on my ice cream when I ate that.
My wife bough me a 6 pack of the first g/f beer they ever made. It was so bad that even this next door alcoholic couldn't drink it. It foamed and foamed & foamed some more when we opened it.

Comment by Trudy on April 9, 2014 at 3:11pm

Charlie, I've tried drinking two beers that are brewed with barley, but claim that the gluten has been removed, Daura (from Spain) and Prairie Path. They both gave me symptoms of Celiac. There are some beers brewed with rice and/or sorghum, for instance Redbridge, but I find that the taste is not too beer-like.

Comment by Charlie on April 9, 2014 at 2:08pm

I haven't told this story for awhile.
I was diagnosed with T-1 in 1971. In 1992 I was diagnosed with DH by my dermatologist so he said I would have to take Dapsone for the rest of my life. The blisters got worse and my diabetes got completely out of control. There was this artice in Diabetes Forecast entitled "wheat is your problem." I immediately went on a g/f diet and the DH diabetes started acting normal, but I ddi go to a GI doctor.
Since we are talking about our diet. I stayed on a strict g/f diet for at least 3 years and in the mid 90's I called Budweiser & asked them if they would ever make a g/f beer. "our beer is g/f, it is made from a rice grain & the barley that is used in brewing is turned into amino acids & our specialist's are unable to detect any gluten." I asked them to send me this in writing and they did, so I have drunk a lot of their beer over the years. One time in Paris we had been riding this tour bus and waiting in traffic most of the day, so when we finally got off a Subshop was nearby and I ate one of theit subs & it didn't bother me. I have had at least 4 endoscopys since I have had CD or at least was diagnosed with CD. On the first one after I went to see a GI doctor, he said I was his first patient with CD, but he surmised after looking at the results. "you probably have CD after reading the article you brought me." The others was done at a clinic in Charleston & on the last one I also had a colonoscopy and he said "I will see you in 10 yrs." I am 74 now and other than the beer I do stay on a g/f diet. The CSA claims all beer has gluten in it? Most people don't believe this so I have had many arguments over the years.

Comment by Trudy on April 9, 2014 at 11:03am

Hi LBD. I agree whole-heartedly with svenmint. I believe I had Celiac all my life, and that it did indeed do damage. The symptoms became apparent when I was also diagnosed with Type 1 at the age of 63.

If you decide that your son should go gluten free, I would recommend looking at the discussion above, "Another Gluten Free site". I just looked at that site, and they have a section for gf kids: http://www.glutenfreepalate.com/gluten-free-kids/ Looking through the entire site, I downloaded her Gluten Free Flour Blends, Pumpkin Pancakes, and Chocolate Chip Peanut Butter Cookies for us! Her recipes look fairly low-carb to me. Buying bread, pizzas, etc. at the grocery store (with higher carb), I like the Udi brand. Best wishes to your son.

Comment by svenmint on April 9, 2014 at 10:14am

LBD: My understanding is that symptoms don't correlate to damage done by celiac and the risk for later complications. Meaning, that if your son does have celiac, damage is being done to his GI track even if he doesn't have symptoms. Don't take my word for it, but that is my understanding. My son went through an endoscopy at age 4 that confirmed celiac and he has been gluten-free since. The endoscopy is no fun but going gluten-free is a serious lifelong commitment. I didn't want to sign my son up for that unless it was absolutely necessary. Best of luck to you and your son.

Comment by LDB on April 9, 2014 at 9:39am
Does anyone have any info to share on diagnosing celiac disease? My 10 yr old son though showed no symptoms was tested and found to have a slightly elevated transglutomase number. the docs group wants my 10 year old to see a pediatric GI to do a endoscopy to diagnose if he really is positive for celiac. I don't want to put him through this test when he has no symptoms and the current test does not mean for sure he has celiac.
Will it do long term damage if we don't go gluten free if and until he has symptoms?
Thanks!
 

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