The ongoing saga....
Right so appointment on Friday went surprisingly well all things considered.
Went through all the details yaddah yaddah. Completely different to the last clinic I was at, friendly, relaxed (despite my well founded pre-existing reservations about the actual hospital). My consultant is lovely and my nurse seems cool too. My AMH (egg reserve marker) is 'satisfactory'.
I had a bit of a shock though as I found out that I have something called Antiphospholipid Syndrome (APS), which the previous clinic knew and failed to tell me. This condition apparently is directly attributable to my recurrent miscarriages (3 of which occurred whilst under the other clinic) it's treatable which does rather beg the question why they didn't..... Oh and my ProteinS is elevated too which probably also contributed to the M/C's. Bit of a shocker eh?
Anyhow I have a scan on the 29th to see whats going on and then directly after my next period they want to do a HSG to look at my tubes (as the other clinic failed to do that too).
Dr B is happy to let my period come on it's own, she was open to my reluctance to take Norethisterone to bring on a bleed and agreed that we should wait. My Other Half has a list of vitamins to take too so all in all I have a rough plan to follow :0)
Lou x
Friday 29th July
Scan complete, no aliens in there, it was painless, the sonographer was lovely, it was relaxed considering.... she showed me everything and pointed stuff out, talked me through it all. I mentioned that my left ovary sometimes hides, she smiled gently and said 'it's just high up sweetie, it's the way god made you, we're all different', (little did she know my body is a little freak factory). She checked some measurements on the screen and then 'good lord!!'. I said 'oh nooo whaaaaat...' she replied "you have an extremely mobile left ovary". The bloomin thing had gone and shifted downward miles LOL Just my HSG now and then hopefully it's all systems go! Nice post birthday present :)
Friday 15th August
CD32! Just for the record here as it's not really treatment exactly, but over the weekend I gained some 'water weight' I assumed it was my usual pre-period bloatiness, but on Monday 15th I swelled up and looked about 6 months gone, honestly it was mortifying.
I will add a pic soon...
Everyone seemed to have developed sloping shoulders and I was advised bed rest... I mean seriously? So anyway finally saw my GP who thought perhaps it was super charged PMS... I dunno it was so bad I thought I was gonna pop, running to the loo evey 5 minutes and I found it hard to breathe too... Last time it happened I had a ladycam scan (far too late) which showed 'signs' of a 'rupture' which I can only assume was a cyst, I'm thinking perhaps that was what this was...
TMI ALERT... I also had a lot of 'watery leakage' shall we say so I'm erring towards cyst, It's gone down a lot over the last couple of days but I've had a niggling draggy tummy ache so I've had to take it a bit easy
September 1st CD2
Well my period finally made an appearance, after teasing me for the best part of 4 days in a 47 day cycle) not feeling particularly special, but I did manage to book in for my HSG Thursday next week. Praying the bleeding will have stopped by then as they won't do it otherwise and they only do them on tuesdays and thursdays :0/ something about the dye not going where it should.... the lady couldn't really specify which wasn't toooo inspiring but at least she was nice. So there we go 9.00 am 15minutes of my life and hopefully the all clear, like I said though I shan't count my chickens, but I also am not going to fret either... Honest :)
September 9th CD 10
HSG was fine, took some ponstan/mefenamic acid (I love that stuff) before. I got there 10 mins early, staff were fabulous, no pain really, bit achy after but nothing near my usual cramps. Even went grocery shopping, though i think a liner was optimistic (as opposed to a towel) luckily I always carry both. I had quite alot of bleeding yesterday and some today, and I do feel a little 'pulled about', but not incapacitated or ill with it. So I'll get an appointment and discuss the results and hopefully a plan in a couple, maybe 3 weeks.
September 23rd CD21
So Saw Dr Acharya yesterday, he's nice (a little brusque). My tubes are clear which is a relief, one more thing ticked off the list. The plan is basically keep trying... if I get PG get a blood test to confirm, although by the time I get one I suspect I'll no longer be PG, then be put on aspirin and heparin I'm not really sure where we go from there tbh it was alot to take in... surely aspirin/heparing would be useful before as the APS is affecting implantation... but I'm not Dr sooooooooo...
We both had Karyotyping bloods taken (sp?) which will take up to 2 months to come back... minorly worrying but I mean, there's no point in fretting is there, before I might have but I am tired, nay exhausted after 10 years, I know whats happening sort of, I'm kind of numbed out to being distraught or even confused now, there's nowt I can do in the mean time so I'll be boxing it up and thinking about it when necessary and not before.
Went through all the details yaddah yaddah. Completely different to the last clinic I was at, friendly, relaxed (despite my well founded pre-existing reservations about the actual hospital). My consultant is lovely and my nurse seems cool too. My AMH (egg reserve marker) is 'satisfactory'.
I had a bit of a shock though as I found out that I have something called Antiphospholipid Syndrome (APS), which the previous clinic knew and failed to tell me. This condition apparently is directly attributable to my recurrent miscarriages (3 of which occurred whilst under the other clinic) it's treatable which does rather beg the question why they didn't..... Oh and my ProteinS is elevated too which probably also contributed to the M/C's. Bit of a shocker eh?
Anyhow I have a scan on the 29th to see whats going on and then directly after my next period they want to do a HSG to look at my tubes (as the other clinic failed to do that too).
Dr B is happy to let my period come on it's own, she was open to my reluctance to take Norethisterone to bring on a bleed and agreed that we should wait. My Other Half has a list of vitamins to take too so all in all I have a rough plan to follow :0)
Lou x
Friday 29th July
Scan complete, no aliens in there, it was painless, the sonographer was lovely, it was relaxed considering.... she showed me everything and pointed stuff out, talked me through it all. I mentioned that my left ovary sometimes hides, she smiled gently and said 'it's just high up sweetie, it's the way god made you, we're all different', (little did she know my body is a little freak factory). She checked some measurements on the screen and then 'good lord!!'. I said 'oh nooo whaaaaat...' she replied "you have an extremely mobile left ovary". The bloomin thing had gone and shifted downward miles LOL Just my HSG now and then hopefully it's all systems go! Nice post birthday present :)
Friday 15th August
CD32! Just for the record here as it's not really treatment exactly, but over the weekend I gained some 'water weight' I assumed it was my usual pre-period bloatiness, but on Monday 15th I swelled up and looked about 6 months gone, honestly it was mortifying.
I will add a pic soon...
Everyone seemed to have developed sloping shoulders and I was advised bed rest... I mean seriously? So anyway finally saw my GP who thought perhaps it was super charged PMS... I dunno it was so bad I thought I was gonna pop, running to the loo evey 5 minutes and I found it hard to breathe too... Last time it happened I had a ladycam scan (far too late) which showed 'signs' of a 'rupture' which I can only assume was a cyst, I'm thinking perhaps that was what this was...
TMI ALERT... I also had a lot of 'watery leakage' shall we say so I'm erring towards cyst, It's gone down a lot over the last couple of days but I've had a niggling draggy tummy ache so I've had to take it a bit easy
September 1st CD2
Well my period finally made an appearance, after teasing me for the best part of 4 days in a 47 day cycle) not feeling particularly special, but I did manage to book in for my HSG Thursday next week. Praying the bleeding will have stopped by then as they won't do it otherwise and they only do them on tuesdays and thursdays :0/ something about the dye not going where it should.... the lady couldn't really specify which wasn't toooo inspiring but at least she was nice. So there we go 9.00 am 15minutes of my life and hopefully the all clear, like I said though I shan't count my chickens, but I also am not going to fret either... Honest :)
September 9th CD 10
HSG was fine, took some ponstan/mefenamic acid (I love that stuff) before. I got there 10 mins early, staff were fabulous, no pain really, bit achy after but nothing near my usual cramps. Even went grocery shopping, though i think a liner was optimistic (as opposed to a towel) luckily I always carry both. I had quite alot of bleeding yesterday and some today, and I do feel a little 'pulled about', but not incapacitated or ill with it. So I'll get an appointment and discuss the results and hopefully a plan in a couple, maybe 3 weeks.
September 23rd CD21
So Saw Dr Acharya yesterday, he's nice (a little brusque). My tubes are clear which is a relief, one more thing ticked off the list. The plan is basically keep trying... if I get PG get a blood test to confirm, although by the time I get one I suspect I'll no longer be PG, then be put on aspirin and heparin I'm not really sure where we go from there tbh it was alot to take in... surely aspirin/heparing would be useful before as the APS is affecting implantation... but I'm not Dr sooooooooo...
We both had Karyotyping bloods taken (sp?) which will take up to 2 months to come back... minorly worrying but I mean, there's no point in fretting is there, before I might have but I am tired, nay exhausted after 10 years, I know whats happening sort of, I'm kind of numbed out to being distraught or even confused now, there's nowt I can do in the mean time so I'll be boxing it up and thinking about it when necessary and not before.
Replies to This Discussion
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Permalink Reply by mhynes on -
I am so glad that things are going better. It is very reassuring to have someone listen to you and be forthright. I am wishing the best for you and your husband.
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Permalink Reply by Lori on -
I am also happy to hear about your appointment at the new clinic! It sounds like you are in much better hands now. Shocking that the last clinic neglected to tell you about APS and did not treat it.
A word about the HSG exam... I had one done last year and I swear it was one of the most painful things I have ever experienced. My doctor neglected to tell me that I could take a pain killer before hand to ease some of the pain. So be sure to ask the clinic about that (I forget which is recommended - tylenol or advil). -
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Permalink Reply by Lou on -
Thanks ladies <3
@Mhynes it was a surprise to be listened to ha ha
@Lori Thanks for the advice, I think the sheet they gave me said Ibuprofen (so i guess that would be advil in the US?) I fully intend to be dosed up *winks better safe than sorry is one of my mottos LoL x -
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Permalink Reply by Rachel on -
Forgive my conspiracy theory kind of mindset just now, but seriously? What was the underlying reason for that move on their part?
Here's hoping that things look great at the scan! We (read 'I'), put one ours off for almost a year after some surgical reconstruction because I was too scared to hear that the surgery didn't work. It did, and now I regret the time that we lost... bottom line I guess, is don't make the same mistake :)
Good vibes to you both!
Rachel -
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Permalink Reply by Lou on
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Hi Rachel, Yeeeeah Seriously!!! LoL
In all honesty I have nooooo ideas on that one (it may have been that I'd already been PG but they didn't tell me anything, it's still not a brilliant reason though). I'm pretty much flummoxed about their whole approach (well lack of it LoL). I am also of the conspiracy mindset *winks.
I think I (read my T1) was too much for them to cope with or something along those lines, that combined with my bodies apparent rebellion against their best initial efforts I was on to a loser :0)
It's natural to be nervous and put stuff off that in hindsight seems daft, I've done it enough LoL.
Hopefully things will be better at the new clinic though I hope to try and keep a detailed(ish) record of thins maybe it will help others, I am so glad lori formed this group. -
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Permalink Reply by Lou on
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Apparently so, I knew the was some room for shiftage, but not to the degree where the sonographer exclaims "Oh MY!' LoL x
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Permalink Reply by Lou on
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Thanks hon, sitting this month out as it were (because of the HSG for some reason) but I shall be on it next cycle LoL x
Hope you're well x -
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Permalink Reply by Rachel on
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Lou~ don't know how you did it waiting for the HSG... ss did an 'impromptu' check of my tubes during a vag u/s (and they were blocked just like the tubal ligation was supposed to make them :0/ )... I thought I was going to die, and I am glad that I did not have the period of time before hand to worry. You are my hero today!
When we started this round of IVF we were told to start baby aspirin right away in order to help prevent clots, and that we could stay on it for the whole pregnancy (when and if at that point) with no worries. I would question the doc about just starting that now at least, as it seems to be so innocuous, but I am huge P.I.T.A. in that regard :0)
Good luck!
Rachel -
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