Comment

Comment by ShelbyH on May 24, 2012 at 2:16pm

Hi Dewdrop,
I know it is hard to believe or feel over a computer screen, but seriously, you are not alone. We all understand where you are coming from. Sorry you are going through all this. Where do you live? Have you heard of meetup.com? It is a great way to meet people with similar interests or needs where you live.

I understand feeling down. I have had strep throat for a week, and now my ears and chest are all a mess. Already took a round of antibiotics and am now going to Urgent Care. I wish I had someone to drive me! My husband is at sea, since he is in the Navy. I just keep telling myself this will pass and it is not forever!

So, hopefully you can have some improvement. How you feel right now is not forever.

Good luck,
Shelby

Comment by Phill Dill on October 25, 2010 at 7:24pm

Reply to bikette on August 22, 2010

Well everytime I seem to get controll something else goes wrong but I hope to have it all worked out soon.

Comment by Linda G on September 20, 2010 at 3:42am

That's great Sunny...let me know how it all works out. I'm removing my post and relocating it to "Pets and People", where other pet lovers might benefit from it!
luv.....linda

Comment by Jonah on September 2, 2010 at 9:00pm

I have lots of symptoms and abnormal things that don't add up to diagnoses. Here's what I've had for sure:

I had chronic gallbladder disease until my gallbladder was removed in April 2009; this didn't help the pain and in March 2010 I was hospitalized and operated on again for gallstone pancreatitis. I still have stomach aches and nausea that make my blood sugar more difficult to manage in addition to interfering with my sleep, eating, working, etc.

I've always had Asperger's and sensory integration issues. I may have neuropathy right now as well; I've been losing sensation in my feet over the last couple of years. It's not a really big loss, just I don't feel movements or vibration unless they're big.

I had subacute thyroiditis in 2009 which has mostly gone back to normal although my neck still hurts.

I have extra bones in my feet (not accessory naviculars; mine are too rare to have a name) and had tendonitis because of them that made it really hard to put weight on that foot for a few months this winter.

Some of the things that have been suggested by labwork or symptoms that a doctor agreed with me about but aren't diagnosed include: an arachnoid cyst, hyperfiltration, arthritis, gastroparesis, acid reflux, irritable bowel syndrome, sphincter of oddi dysfunction, rosacea, and adrenal hyperplasia.
I've also had in the past vitamin D deficiency followed by toxicity, and low testosterone levels followed by high levels (in both cases, we treated with a supposedly low dose).

Comment by Cathy Jacobson on August 22, 2010 at 8:25pm

Right now, it's pretty tough to deal with everything that is wrong with me. I have a hard time, concentrating on much of anything but the "D". I have hi bp; diabetes, arthritis and some emotional issues that have made it impossible to work in my chosen field or any job actually. Of course this puts a BIG stressor on our life, marriage and my mind....do I spend the money on the things that I need to work on my healthy or do I pay a bill. I know that this isn't news to any one who doesn't have insurance, yet it is a big deal when it's you. I would like to have the knee surgery that the docs have been recommending, that alone would make life a little easier, yet....whose going to pay, whose going to come and help with getting up and down stairs, let the dogs out, etc., and then my ortho doc won't even do the surgery unless my bg's have been under control for three months...that means under 120 for three straight months. With all the stress, I doubt that is going to happen no matter what I do, and the pain doesn't help at all with good numbers. Whine, whine, whine....some cheese please. All I can do is live with what I've been given, and hope that I can make the healthiest choices I have available and things get better.....HOPE

Comment by bikette on August 22, 2010 at 4:48pm

Hi Phill - Welcome to the group. Diabetes is hard enough but it does get complicated when it starts involving other organs. It seems like a lot of folks in this group have multiple auto-immune disorders. I think that must be the plague of our generation. Try to keep positive, somehow... and take care of yourself! If all your heart, hearing and sight problems are related to diabetes, you must not have it under control very well. I hope you're getting some help.

Hi Saraln - Regarding your insulin adjustments, I have a similar problem with oral medications in that they do not get a chance to break down and do their job before my digestive tract spits them out the other end. Ergo, I take a lot of liquid meds! And chewables - all my vitamin supplements are chewable. And the pills I take cannot be enteric coated - that is a coating the drug companies add to their pills to postpone it's breakdown until it gets to your large intestines. In my case, that just doesn't work since my colon is missing. In your case, it might not work because your colon isn't processing slow enough. 'Timed release' drugs work the same way - s l o w l y. We need to avoid them. But you have to keep asking, because nobody else remembers.

I have not yet had a doctor or pharmacist advise ME whether a drug will or won't work in MY system. It has always been ME who asks if that drug will break down quick enough. I do ALL the reminding and that is difficult because there is so much to remember. It has taken 10 years but I think my GP now has a fairly accurate big picture when it comes to treating problems in my mangled body. I credit email with that success as I can keep reminding him of complications by referring to older notes. Besides, I get so nervous and tongue-tied in a doc's office, if it weren't for email, they wouldn't know anything about me.

Medics like to lump people together in various bundles - all the crohn's people in that bundle, all the diabetes people in that bundle. And so on. We have to keep reminding them to mix up the bundles because we never really belong in any single group. We are a monkeywrench in their neat, tidy little textbook cases. tsk tsk tsk.

Comment by Phill Dill on August 22, 2010 at 12:21pm

New to the group
In addition to diabetes as if that is not enough there are heart problems, almost deaf, went from perfect vision to bifocals in one year and now looking at trifocals , asthma and RA.

Comment by Sareln Pupkies on August 22, 2010 at 11:02am

Thanks Bikette! Pregnant, OMG!!! Although I would probably be worth a lot of money since I had a hysto at the age of 31 and am now 61. 61, OMG did that actually come out of my mouth. Am having a hard time accepting my age, LOL! Crohn's landed me in the hospital for 2 months at the beginning of the year. Learned a lot from that little experience. My father died from Addison's Disease at the age of 41, so autoimmune problems do run in my family. I have been on prednisone for over 10 years, I often wonder if my body could even function without it. I have not yet been able to adjust my insulin to the problems that Crohn's presents, like taking insulin to cover my carbs but then my body ridding itself of what I have eaten within a short time after I eat. Any suggestions would be appreciated!

Comment by bikette on August 21, 2010 at 1:52pm

Jeez, Sareln, your body is really out to getcha, isn't it?
Crohn's is no fun, but you can enjoy long periods of remission. I had it's cousin, Ulcerative Colitis - but that can be 'cured' surgically. Crohn's can't. Managing colitis and other autoimmune disorders is probably trickiest when it comes to dehydration - at least for me. Make sure you drink lots 'n lots of water, especially when you are sick. Grape juice is supposed to help too but I didn't notice much benefit from that. Look around the waiting room next time you see your internist - everybody is carrying a bottled drink! Where's yours?
And watch that dang Prednisone. It can cause more problems than it fixes. Keep up to date on the meds and try to get your internist to keep you apprised. Most butt docs freely admit that they have more problems with the complications from their medications than they do from the diseases alone.
Prednisone is also tricky to take as the dosage is always being titrated up or down. My cousin had Crohn's and his pharmacist screwed up his prednisone one time, issuing him 500 times the prescribed dosage. It took my cousin 3 weeks to realize he was on a much stronger pill. Check your prescriptions - that they are the right med, the right dose and the right person! I sometimes get confused with another lady of the same name in the city where I live. Don't just assume every one else does his/her job.

Paranoid? Moi??? I am Not parnoid!! Which of my enemies told you that????
Seriously, a little paranoia can save you a lot of pain and suffering when it comes to the medical "professionals" entrusted with our care. They ain't perfect and we need to take responsibility for our own care.

So hang in there, Sareln . . . it could be worse . . . you could be pregnant! :-)

Comment by Sareln Pupkies on August 21, 2010 at 12:16pm

Along with LADA I have rheumatoid arthritis, autoimmune hepatitis, and was just diagnosed with Crohn's disease. Anyone else out there with Crohn's? How do you manage it and D???

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